Posted , 7 users are following.
I was diagnosed with hyperthyroidism in 6 of 2017. I tried methimazole. Didn't work. In Oct of 2017 did the radiation iodine pill. Found out yesterday 11 21 that didn't work. Why? TSH is 0.01 T3 is 11.1 T4 is 3.8. Told to get back on methimazole. If it didn't work the first time why get back on it?
0 likes, 12 replies
rose65668 kimberly03735
Posted
This is what I found on radiation iodine pill.....didn't your doctor go over anything with with you? In almost all cases, your thyroid hormone levels will return to normal or below normal after radioactive iodine treatment. This may take 8 to 12 weeks or longer. If your thyroid hormone level does not go down after 6 months, you may need another dose of radioactive iodine.,,,,,,if you had it done in October...only a month ago....
kimberly03735 rose65668
Posted
All he said was no hairless, that bs, and I would not loose time from work. Another bs line. I am looking my hair due to the radioactive mess and I lost a week from work. Couldn't be around others.
JayValle kimberly03735
Posted
Hi Kimberly
Sorry you're not feeling well. RAI could take time to work. My Endo told me sometimes you need it twice. But I pulled this up from the net.
There is considerable individual variation in the timing and extent of response to radioiodine. However, by three months after it is given, the treatment has usually had its maximum effect. Most patients are no longer hyperthyroid by that time, although in some patients this may take as long as six months.
Others will come by and talk to you about supplements and diet to help with hyperthyroid and advice.
hugs
Jaye
linda187 kimberly03735
Posted
When you say "Methimazole didn't work" was that because not all your thyroid values normalized, especially TSH? My TSH did not rise for 2 years although my Free T3 and Free T4 normalized immediately when I was on Methimazole initially at 10 mg daily.. My TSH only started to rise when I added back some of the vitamins, minerals and amino acids I was deficient in because of my hyperthyroidism. I started taking Regular L-Carnitine, 3,000 mg a day after being tested for this amino acid and found to be deficient. I also took Vitamin D, 1,000 to 5,000 IU per day and was found to be deficient in that as well. Vitamin D is extremely important for healthy thyroid functioning. I was also low in Magnesium so added that as well. My TSH started to rise when I took first the Regular L-Carnitine and then Acetyl-L-Carnitine along with my Methimazole. Unfortunately Regular Medical Doctors are not trained in this and are not open to learning about it either.
kimberly03735 linda187
Posted
Hi Linda, my endo does not do supplements. He states my body is not short of any of that. Just tsh very low t3 and t4 very high. He wanted to kill it and start over. But, my thyroid doesn't want to die lol.
linda187 kimberly03735
Posted
linda187 kimberly03735
Posted
Mike61308 kimberly03735
Posted
Since Kimberly already took RAI treatment which isn't reversible, but may be stopped for further treatment, my opinion is to focus on and seek other RAI patients' treatment experience and post-treatment remedies. Hope the experienced RAI patients would chime in here to help. (sorry have no input and real help)
Guest kimberly03735
Posted
What exactly do mean by methimazole did not work? What dose were you on and what were your thyroid values?Â
In my case, I had to take anti-thyroid medication for 18 months.Â
Your radio surgeon might have used a RAI dosage that does not destroy your entire thyroid. There are even documented cases where thyroid tissue has regenerated after a thyroid ablation.Â
The reason you did not respond well to Methimazole the first time might have been that your thyroid was very overactive and your thyroid levels could not be controlled with a reasonable daily dose. Maybe your ablated thyroid produces less thyroxine and you might respond better to Methimazole this time. Â
kimberly03735 Guest
Posted
I was diagnosed with graves disease in July by my endo man. 1 weighed 152 now as of Nov I weigh 129. My numbers were off the chart. Was looking at over 30. I feel fine. Doctors are telling me I feel bad. I took methimazole 10mg 3x a day. In the beginning. Now I kept looking weight and heart rate and bp were well above normal ranges pulse 120- 150 bp 150/90 - 160- 100. I felt fine. They said no its not acceptable. I wish i had never done anything about it. Now here I am. The guinea pig. Let's see if this or that will work.......
kimberly03735
Posted
Some have come down but still overactive. The still extremely low they say. In combination with others not in balance.
linda42017 kimberly03735
Posted
TESTS RESULT FLAG UNITS REFERENCE INTERVAL LAB Thyroxine (T4) Free, Direct, S T4,Free(Direct) 1.07 ng/dL 0.82 - 1.77 01
TSH 0.006 Low uIU/mL 0.450 - 4.500 01
Reverse T3, Serum 18.2 ng/dL 9.2 - 24.1 01
Thyroglobulin Antibody <1.0 IU/mL 0.0 - 0.9 01 Thyroglobulin Antibody measured by Beckman Coulter Methodology
Thyroid Peroxidase (TPO) Ab 305 High IU/mL 0 - 34 01
Triiodothyronine,Free,Serum 2.9 pg/mL 2.0 - 4.4 01 I'm no help....I'm trying to make sense of the above lab results. I would love some feedback if anyone has any.
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