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Having suffered for years with symptoms typical of gallbladder issues and having no success with diagnosis from GPs and Consultants I arranged my own HIDA scan privately which showed a 20% ejection fraction which by any measure shows it be classified as non functioning. I was eventually passed to an upper GI consultant who doesn't like Hida scans!!!! Thinks they are notoriously inaccurate etc etc. He therefore wanted me to be subject to a full battery of tests before he would in his words take it out himself. Therefore I had a CT scan an MRI scan and an OGD. This was after ultrasound and a previous CT scan and which was now meant to cover all other possibilities. During the OGD he also took a biopsy to check for Coeliac issues.
today I attended clinic and was told that nothing has been identified. I therefore pointed out that the only thing that we have to account for the pain and discomfort I suffer is the HIDA scan showing a non functioning gall bladder so could he either fix it or remove it. Which was as he had agreed to do.
However this has not happened. He has now sent me for a helicobacter test even though I said I did one I bought on Amazon which was negative and which I repeated today and was again negative.
he asked me would I consider a second opinion?...I said I'm not going through this whole pro
he told me he was going to run the whole thing by his colleagues?...
At the end today he did say I dont think I'm going to get rid of you unless I do the operation!,,,,,
however I am now here a year down the line from this attempt to get something sorted and still in needless pain.
i have had all the dangers pointed out to me and I accept them and I have considered everything carefully but want the procedure.
i am so frustrated I am on the verge of going into casualty and making my own incision in my side and starting it for them to finish it!!!! Well not really but I think you get the point.
i told him I think he really has covered the whole clinical protocol as far as I can see but he still seems reluctant. I have a strong feeling that when the helicobacter test a returns negative he will still not be wanting to do this operation and even more time will have elapsed.
what can I do???????
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