Could it be Fibromyalgia???

Hi all,

I’ve come to this forum because I am really struggling with what is happening to me. I  would like to share my experience and possibly get some advice. I haven’t had a diagnosis but I suspect I may have fibromyalgia and/or some form of R.A.

For the past three years, I have been experiencing, unexplained muscle aches, joint pain, pelvic spasms, lower back pain, pain in neck, and shoulders.  I originally put most of these symptoms down to the woman change but that has now been ruled out due to a full hysterectomy.

My thyroid function was just below normal, and after taking medication for this it is now normal. I was vitamin D deficient, but I am now taking Vitamin D supplements and the level is higher now.

Recently I have been experiencing difficulty carrying out simple tasks, such as cooking, washing my hair folding laundry and extreme fatigue after any physical activity.  Walking to my local bus stop is painful and I end up walking like a drunk robot. I lose my balance a lot, my concentration/memory is bad and my ability to ‘find the right words’ in conversation is a problem. Terrible headaches, painful feet if I walk for any length of time.  I wake up feeling as if I haven’t slept, my entire body is really stiff and in pain, my hands feel swollen and I can’t grip things properly.  This usually eases off after an hour or so.

I’ve seen a Neurologist – who has ruled out a neurological reason, but  he did note that I was ‘unsteady’ on the Romberg test, and he mentioned that I found tandem walking difficult and I have a waddling gait. (drunk robot)………..  I had an MRI scan for my neck and upper spine – (results to come), and I am waiting for an appointment to have an EMG  for muscle testing.

I have been seeing an Endocrinologist and had loads of scans/blood tests, most have come back normal -  my ESR -27 and CRP- 3.8 then 2.7.   She wrote to my GP and asked her to refer me to a Rheumatologist. My GP called me in and said she didn’t want to refer me to a Rheumatologist until I have more blood tests.   So she ordered yet another set of blood tests  which will probably come back ‘normal’.

I have just spent the past 3 days in bed because, I had two appointments last Thursday and Friday – both long bus trips and long waiting times. On Saturday I felt like I had the flu and couldn’t do a thing for two day 2 days.

After a lot of researching and ruling out other similar conditions, I came across Fibromyalgia, and suspect FMA and/or possible R.A  is what may be going on with me.  After coming across this forum and reading posts from members with similar symptoms, and experiences I really hope  someone can shed some light on all of this.

REALLY SORRY FOR SUCH A LONG WINDED RANT, but I’ve had a crappy couple of days.

Thanks Ela808

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