Ct scan came back fine 😕 so fed up of this pain!

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Had an appointment with urinology today simply because they couldn't decide between gall bladder and kidney stone when I first started with the pain. It's took them 8 weeks to sort this appointment lol. The specialist said it's definately not my kidneys and said the ct scan I had the other day had come back fine. My bile duct is no longer dilated as it was on the ultrasound I had weeks ago. My endoscopy although traumatic was clear so now there's not many options to take. The specialist said he will refer me as an urgent case to the general surgeon and I will be seen soon. I'm just so fed up now and feel ill never be diagnosed 😕

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  • Posted

    Hi, Alison, sorry to learn you're having these problems.  They've referred you to a surgeon.  That's good news.  Sometimes gallbladder problems don't show up on ultrasounds or scans.  You might have sludge, or tiny stones.  Take heart!  Let us know how you do!
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  • Posted

    I was seen by a general surgeon and he is the one who diagnosed ,correctly, gallbladder stones. Don't be despondent. Was it a kidney specialist you saw?

    Have they done bloods and lft's? My diagnosis was made with an ultrasound, confirmed with an MRI.

    Try and keep positive. Xx

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    • Posted

      I really hope it will help after 8 weeks of agony barely eating, sleeping and being prodded and poke by loads of doctors I'm just so fed up. I've already had an ultra sound which just showed a dilated bile duct but now the ct scan came back saying my bile duct is normal. I've always got the pain but the "worser" more painful attacks are becoming more regular and I'm exhausted. My last blood tests showed everything normal except slightly elevated bilirubin levels. But don't think they did specific lft's unless that's included with fbc. The gastrointestinal specialist who saw me when I was admitted to hospital said providing the endoscopy comes back fine he'll refer me for HIDA scan but also said even if that's ok with the symptoms being like they are he probably would recommend I have it out the problem now is that unless I fall lucky and manage to see the general surgeon soon I'm waiting til 30th June for the gastrointestinal specialist to refer me for the HIDA scan then waiting for that appointment to arrive. My shortest "urgent appointment " has been 6 weeks minimum waiting time I just feel like I'm hitting a brick wall at every turn 😕
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    • Posted

      Hi Alison, I am so sorry for you. It is awful not knowing. I was on a waiting list for surgery after diagnosis but ended up admitted with inflammation and operated on the day after. Still no date on the waiting list so I have told them I don't need it now.

      I am not a doctor but if already had ultrasound showing problem even though ct scan showed nothing I would think there is an issue. I was OK until an attack and then it was so painful I was in agony. Just before the op I ended up in a and e in 2 different hospitals within a month. Luckily for me the surgeon offered me the op rather than painkillers. I am so grateful to him. If you feel unwell and in pain I would say keep going to a and e until you get some help even if on a waiting list to see a surgeon.

      Its your health and you know when something is wrong.

      Let me know how you get on. You are not alone. Xx

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  • Posted

    Hang in there. I was in a similar situation. Finally had a Hida scan and when they injected the substance into the iv that resembles a fatty meal, I really go sick.

    The surgeon is the one that said that was a sign it was the gallbladder.

    From what I have heard, it's not the easiest to diagnose, but a good surgeon can help.

    Best wishes.

     

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  • Posted

    Thank you everyone. I'm trying to stay positive but after hitting brick walls at every turn it really is hard. I've had countless gp visits, 3 visits to a&e 3 visits to sugical admissions as well as ct scan, urinology appointment, ultrasound and endoscopy. The surgical admissions team were adamant it was to do with ulcers/infection in my stomach or duodenum and said adamantly it's not my gall bladder which is why I had to go through the torture of the endoscopy 😕 I'm hoping the appointment for the general surgeon comes through soon but if not I have an appointment with the specialist from gastro who saw me in a&e on the 30th of June. His action plan was endoscopy to rule out that side and then when he sees me ill be referred for the HIDA scan. He did also say even if that comes back fine most likely I will be having my gall bladder out. I think with how bad the pain is lately and the lack of food the waiting is really killing me so much even the 30th June seems like so far away 😕 I just want to feel back to normal, eat a proper meal and be able to enjoy family time with my kids and OH rather then feeling completely drained and stuck on the sofa all day. They really seem to be lacking when it comes to diagnosis of gall bladder issues so many are left in pain and struggling with no answers 😕
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    • Posted

      Alison, so sorry you're going through all this!  I had a female surgeon tell me that my gallbladder wasn't the problem, either.  She was rather young, and implied that my gallbladder automatically emitted the same amount of bile each time I ate, no matter what I ate, so it had to be fine.  I was so angry, I almost asked her if she thought that reasoning applied to her menstrual cycle.  For "educated" people they can be so willfully ignorant it's maddening!  It would do them good to read some of the posts on this site! Please try to take heart and take care of yourself as much as you can!  And, continue to let us know how you're doing!  XXOOO  
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