Cysocele and in so much discomfort

Posted , 3 users are following.

I was diagnosed with a cystocele a few weeks ago after being in discomfort for a couple of weeks with pressure especially on the rectum. At first I thought it was hemorrhoids as have pressure and fullness in my rectum.  

I was examined and given treatment for them, but it didn't help.

I saw another GP and she gave me a good examination and said I

had a cysocele.

Today  I had a pessary put in, I was told it may not work as I have had a hysterectomy. Needless I knew straight away that the pressure on my rectum had not gone away.  I returned to the Dr surgery an hour later and had a different pessary put in.   It's no better, I can hardly sit as feels like there is something pressing on my rectum. 

I have an appointment the day after tomorrow with the nurse who fitted it to try another pessary, but I feel nothing will work.

I am so worried that something is wrong. Has anyone else experienced  this before.

I should mention that I am over 65.

 

2 likes, 10 replies

10 Replies

  • Posted

    So sorry to read that you are in pain and discomfort, Taffy.  My experience is not exactly the same as yours but it comes close!  I have a grade 2 cystocele and a mild rectocele, diagnosed a year ago.  I was offered three ways forward, doing nothing (apparently unless it bleeds this is an option), a pessary or an operation.  I was told by the consultant that an operation may result in permanent pain and would most likely need to be repeated.  As I was not happy with that, I chose the pessary route.  I had a hysterectomy in 2013.

    I have had 5 different pessaries fitted.  The first two were very painful and were removed after 24 hours.  The third, a shelf pessary, was better but that fell out after 5 days.  The fourth and fifth were gellhorns.  Both of these were too painful to bear, and even more painful to remove.  I was discharged from the hospital consultant's care and went back to my GP for advice.

    She told me nothing further could be done except to go down the operation road.  As I had been told by the consultant that I would be asked to sign a form absolving them from blame should I suffer permanent pain after the op., I said no.

    i did my own research and have found an option that works for me, though it is fiddly and takes some determination to stick to the advice on the leaflet.  I use sponge pessaries, natural sponges specifically harvested for intimate purposes.  You cut them to size, then stitch on a length of tooth floss so that you can remove them easily.  Each day you need to make sure you remove them after 8 or so hours and soak them for a while in a solution of tea tree oil and bicarbonate of soda.  This disinfects and softens them.  I can give you the name of the company that sells them specifically for prolapse (they are a larger size than cosmetic ones) but wonder if we are allowed on here?

    I hope this has been of some use.  We are all different and I would advise that you try another hard pessary and see if that suits you.  If not - well there is a way forward!

    with best wishes,

    Pam

     

    • Posted

      Thanks for your reply Pam. I found it very interesting.

      i had a dreadful night but then something happened, maybe the prolapse recinded  and the pessary slipped into place. For most of the day today I have had a bit of relief.  I can still feel it, but it's more comfortable than it was over the last 24 hours.

    • Posted

      You seem to be having a bad time too.  I never thought a prolapse would taking over my life so can imagine what you are going though. There doesn't seem to be an easy answer.

  • Posted

    I had the third pessary in three days removed today and am back to square one with constant pressure from prolapse which feels as if it's bearing down on my rectum.  Getting really anxious now.

    • Posted

      Sorry to read this, Taff.  What are the medics advising as the next step?

      Pam

  • Posted

    Basically try another pessary.  
  • Posted

    Two more attempts at pessaries which did not work and was suggested I see GP.  She  diagnosed a cystocele which I knew about, and a rectocele as well which I didn't know I had.

    That explains the pressure on my rectum!!

    I have now been referred to the hospital to see about having a gel horn fitted.

     

  • Posted

    Good luck with the gel horn!  You never know, it just might work.  Let us know, please!
    • Posted

      It could be a while as should will be seen within six weeks at the hospital.

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