Depresión over this sickness

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Hi everyone,

I also have this horrible disease. I was diagnose about 7 years ago, only then I had no symptoms. I was told not to worry since most people don't ever know they have it and don't develop symptoms. So, I did not worry, a year ago I landed in the hospital with the most horrible pain, and I was told it was the diverticula, I was having a full blown attack. Since I been in and out of the hospital. And now, I get so depressed over the fact that the disease progress so much. Will I ever feel healthy again? Seems that I have mild episodes so often. An full blown every few months. I eat only was allow, I cut everything that hurts me. I just don't know if I will ever be the same person I was a year ago.

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  • Posted

    I'm so sorry you are having such a bad time. I was diagnosed 8 years ago aged 45 and have just had my first hospital admission which has really frightened me. I have suffered on and off though constantly. I also feel very down & wonder where it will end. This forum is a god send though , I hope you get some comfort reading others experiences and feel brighter soon x

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  • Posted

    Have you made a note of foods that trigger it. I cant eat bread broccli and lots of other. I dont eat red meat. Im in cyprus and living on salads with lots of olive oil 😮 I feel so much better. Exercise also helps. Good luck x

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  • Posted

    It's the same with me. Constant pain and feeling like I need the toilet all the time. I don't go far from home incase I need the loo I am seeing a specialist on Friday so hope he will sort me out. I hope you feel better soon

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  • Posted

    I believe all that have this terrible disease have fear to some extent. I for one but after reading , reading and more reading about this I have come to learn to live with it. I pretty much watch all I eat. Trying to watch that you don't become contipated is my big problem. Of course I have IBS too so that causes diarrhea. It's a vicious cycle but keep busy try to focus on the good and be prepared. It will happen but thank goodness for the right antibiotics and care you will live a long life. Most most recent encounter was with a woman who had surgery and still have problems so that's not always the answer. Prayers for peace and comfort living with this.🙏🙏

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    • Posted

      Thank you all for cheering up.

      I'm having yet another episode now, ended in the ER at 3am. Even though it is a mild one, constipation made worse. I'm now on cipro and metronidazole, and dicyclomine for the spasms. Yet another day lost at my job. Sometimes I wonder if they will not fire be for missing so much work. I do have a food diary, I sometimes forget to write things down. I know I can't not eat broccoli, tomatoes, pinaple, cherries, corn, red meats, white rice, and so many other foods!

      I'm on a liquid diet, so I make myself a papaya shake with soy milk for the cow milk substitution. I also can't eat dairies.

      What does you all eat while on the liquid phase?

      I lost my appetite, know I most put something down or I get even more sick.

      Thank you all.

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    • Posted

      I too have lost appetite with the attacks. It's really hard to say but tea , toast with a little seedless jelly seem to work in the first few days for me. After a few days then Soft foods like mashed potatoes. Cooked carrots and soft rice. Cook the rice really well until tender. Then I add chicken. I have found if I boil chicken as in making chicken soup the chicken is easy to digest.

      Watch skins. As in peppers, grapes and apples. I remove the skin from apples and have found applesauce to be a life saver.

      My serious attack was in February and just the last ten days I feel I can eat and am hungry. How many attacks have you had since you were diagnosed? I feel talking to a conservative surgeon is always good. Personally I waited until 5 years ago and I just went back and he said basically the same this time. If it is affecting the quality of your life you may opt for surgery. You are young just maybe if the attacks are too frequent it might be the right choice for you.GET MORE THAN ONE OPINION!!!! Bless you I know what you are going through.

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    • Posted

      I have chicken soup and water for the first day then I add bread So many things I can't eat I haven't had fruit since my bad attack at Christmas every time I am going to try some I have a flare I can eat chicken some veg and mash but very little gravy beef tomatoes chocolate spices yogurt kill me I do feel hungry a lot but just don't know what to eat X

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  • Posted

    I have had this since 2006 I hate it every time I think I got it under control yes you guess it I get a flaire up .I am in the middle of one now on antibiotics which makes me feel terrible I should have known started with horrible lower back pain and I get very tearful but I did drink last week on hoilday so didn't do myself any favors so looks like social life is havnt to take a back seat unfortunately because I do like a glass or two lol

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  • Posted

    Since diagnosed I have 3 serious attacks and many mild ones.

    Don't know how supportive the families are, I live alone, and I feel like they think that I'm not taking good care of myself and that's why I keep getting it. The truth is that I really make sure I don't consume anything that can remotely hurt me, but I get it anyway. So, yes! It is impacting the quality of life. I stop going to restaurants with my friends, try no to go family gatherings because I can't eat anything they cook. And I don't blame them, they are not sick, I am.

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    • Posted

      Family are not always sympathetic unfortunately. No matter how well you take care of yourself some people are more prone to attacks. For peace of mind get a physician consult.you need to talk about this to a qualified doctor.🙏

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    • Posted

      I had my first attack 5 weeks ago worst pain ever and l also have lupus so know pain. Ct scan diagnosed collapsed colon as well as DD l now have to watch everthing l eat and basically living on salads and wholegrain crackers. Im from uk but currently in cyprus its easier here to buy fresh produce and organic olive oil. In pain today as l ate some turkish delight and dont think l have digested it properly

      Good luck x

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    • Posted

      I do believe this disease has a lot to do with how our body properly digests certain food groups. I too have an immune disorder and have had flair ups . Not lupus but I had to have my spleen removed. I do believe DD is part of the immune disorder. Prayers to you. Think only good thoughts. We are not alone and support groups like this one helps.
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    • Posted

      I agree I am grateful for all the posts on here it really helps when I am feeling down and I feel I am alone My family don't seam to understand what DD is. One of my daughters told me it's just old age IBS I told her I wish that's all it was

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  • Posted

    So sorry to hear this.  I know you are both suffering and frightened.  I was diagnosed 13 years ago and never had a single problem until June of 2016.  Since then I've had 5 attacks one of which landed me in the emergency room.  I see the surgeon this Tues. to set the date for surgery.I have chosen to do this because I fear that the next attack could cause my colon to rupture requiring emergency surgery and a temporary colostomy at least.  Best of luck to you.

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    • Posted

      I hope your surgery goes well please keep us updated. I see a gastroenterologist tomorrow hope he can help me fed up of antibiotics and pain. In the U.K. They only do surgery as a last resort. X
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    • Posted

      Thank you. Through this forum I have gathered that they don't do much of this kind of surgery in the UK.  What surprises me is that a number of people have talked about being hospitalized several times with lengthy stays within a year.  I would think it would be more cost effective to due surgery providing the patient is willing.  If I could be assured that my colon would never rupture as long as I took antibiotics, I could live with that, but nobody can promise that.  I hope that the antibiotics will work for you.

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    • Posted

      Hi Sally

      It is difficult to tell, but I suspect the majority of people who have been hospitalised are US based - where overkill and getting money out of the patient or their insurance company seems to be the priority, although the patient does get good treatment.  They also seem to push for surgery after the 2nd flare, and recommend everyone has regular colonoscopies after 50, regardless of symptoms or family history.  Again, how to make money. 

      When I had my 2nd flare, I was in agony, with a rigid stomach, but just sent home with antibiotics.  I ended up having a further 2 courses, at home, before the flare started to ease.  But there was never a question of being sent to hospital.  I was told by my UK GP I would only be sent home with antibiotics, short of collapsing.  That is actually what happened to my cousin, who had a fistula, had to undergo emergency surgery, remembered nothing of the next 2 weeks and ended up with a permanent stoma.

      And of course if it is elective surgery, who knows how many months or years you'd have to wait.  One post on here a patient in London waited over 6 months just to get the colonoscopy!  The NHS is good at emergencies, but I recall the wording of the Consultant who wrote to me - "ONLY Diverticular Disease, a benign conditions".  Bet she didn't have it!!!lol

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    • Posted

      I was told it's only diverticula not cancer here is a web site for wind. My GP do there best but don't seam to know what to do. That's why I am paying to se specialist today just to talk to him to ask if there is anything else I can do to help myself I was one of the lucky ones I was sent down the cancer 2 week rule so had my colonoscopy within 14 days x

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    • Posted

      Good luck today - hope you finally get some answers.  Yours is certainly the most persistent case reported here and I wonder if there is another gut problem going on as well, as nothing seems to have worked for you yet.  Some people report having both DD and IBS, which is also badly affected by stress.
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    • Posted

      They told me there and then I had a polyp and diverticula and discharged back to GP it was such a relief to find out on the day xx
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    • Posted

      Also when I feel ok I try to eat like fish and chips and bacon I really do need to stick to eating what I know won't upset me. Also my daughter and 9 year old granddaughter have lived with us for the last 8 years I have a lot of stress when I am asked to look after her Also my daughter is going through a ruff patch at the moment so are some of my grandchildren and I let it all get to me. I really do need to calm down and maybe try meditation x

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    • Posted

      I was told today that if my pain don't ease then to go to AE as on two lots of antibiotics worse flaire up yet and I have been hospitalized three Times in 6 years and I do not want to go back in so I don't know what to do

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    • Posted

      I have cancelled my appointment with specialist can't see the point of paying 200 pounds just to ask what I can and can't eat and what meds to take. So I have made a appointment with my GPwho I get on with really well to talk to him I am going to watch what I eat and make sure I fill my food diary in I am also going to try meditation. I can only try and see how I get on. I honestly believe I have let DD take over my life and it has to stop x

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    • Posted

      I too have suffered many years with flair ups taking antibiotics that worked and some that didn't. When I went to see a surgeon (twice) after an attack (one after being admitted to hospital) he still gave me the option of having surgery or not having surgery. His take was (different than I was lead to believe) and I trust him . To quote him" the walls of the colon actually become thicker after repeated attacks and perforation is unlikely". Having said that I felt a little more comfortable but still will worry. No surgery right now but when I feel so sick and my quality of life is diminished I go back to those fears of an abscess or perforation. It's a vicious cycle. And yes it's a catch 22 with US healthcare. You must find a conservative physician who you trust.

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    • Posted

      Ct scan showed DD as well as collapsed colon the radiographer couldnt determine why colon had collaped. While waiting for colonoscopy l had ultra sound on my abdomine and pelvis which l was told straight away were fine.
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    • Posted

      You need to take care of yourself and do what the GP tells you. I hate hospitals even though I worked in them for 25 years you can't be to carful x

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    • Posted

      Hi Felinia,

      Thanks for the information.  As I mentioned the only reason I am submitting to this surgery is to avoid the possibility of rupture and a permanent stoma.

      ?I know what you mean about the NHS being good at emergenices but not so much in other cases.  My daughter, son-in-law and granddaughter live in London.  When my granddaughter had an attack of croup, the ambulance was there in minutes, took her to a hospital where she went to the head of the line and was treated immediately.  As the doctor told my daughter - a baby turning blue goes to the head of the line.  My granddaughter was born in London.  At that time my dauhter had private health ins. through her American employer, and had very good maternity care.  Her company was brought out and the new owners cancelled the private ins. She has purchased private ins for her daughter and husband which is expensive.

      ?She didn't get any for herself because she can't afford a policy that covers maternity care. England is such a wonderful country, but I hope the USA never institutes a national health care system.

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