di here
Posted , 3 users are following.
hello all my good friends..just back from gran canaria though i had a nice time i had to get a doctor out on hols as my whole face went all swollen gave me a injection so cleared in about 3 days...
when i arrived back got my tribunal for my disablility care claim for the 19th november so now i have to work hard to see what i can do..so any info that would help woud be appreciated xx
speak with u all soon xx di x
0 likes, 10 replies
Squires
Posted
Good to here from you and you had a good holiday. It is a shame your face was swollen. Hope if didn't spoil your holiday too much. Everyone was worrying about you. I suddenly remembered you were going away because the last message you sent to me you had been shopping for the boys.
Well hope to see you on here soon when you get chance.
Take care
Love Tess x x
dianepaterson
Posted
you know ts always nice to think people who u really care about worries when someone isnt on... i know i could not get on with my life if it wasnt for people like u. i had a good holiday had to stay in for a couple of nights because of face but to be honest 14 days was a bit much im not used to being out all day and in the evening but tried very hard so my family coould have a lovely holiday. im trying so hard to keep positive but sometimes i feel so sorry for us all..why should we be like this why should we suffer and why should we always have to fight for people to believe us.. also im terrified for the 19th nov for my appeal and i sometimes get into a panic wheni think about having to go to those people and basically beg them to believe me...
i hope ur day is ok and u and the rest of our friends is keeping well... well im off to put more washing in the machine... guess its welcome back di lol.. xxx
Squires
Posted
It is alwlays hard to remain positive but that is all we have really! You did really well wiv your holiday and put your family before yourself so they could have a good time. I am sure you had a good time as well but must have been difficult for you with tiredness etc.
I got a book from my Library all about Fibromyaglia. It is called \"The first year Fibromyaglia\" It is by Claudia Craig Marek who has fibromyaglia herself. It is a really interesting book so far. She does from first being diagnosed to a whole year of having Fibro. Might be good for you to read if she like reading.
I feel quite tired tonight as haven't felt quite right these last two days. Think could be my new thyroid meds that had to be changed. Don't overdo it with too much washing lol :cry:
Take care
Love Tess :lol: x x
dianepaterson
Posted
i will see if i can get a hold of that book.. im interesting in reading up on fibro.. so i can understand what i have a head of me...
this weather is so depressing isnt it....
im trying to look up info about the tribunal i dont know how i will feel if i dont get it, im trying not to get worked up but its hard...
how u feeling tess does the weather make u feel worse??
speak to u soon xx
Squires
Posted
Yes the weather does make me feel worse and I don't like it :cry: Don't like the dark nights coming up as we change the clocks this weekend I think.
Didn't sleep to well again last night. Might sleep seems to have got worse since I been taking different thyroid meds. I ache all over from waist down today and feel like I have been run over :cry:
Still managed though to do my first lot of exercises today. Not sure if really helping with pain but I feel at least I am doing something. :lol: If not helping fibro might be doing some good for OA.
Yes I am like you like to read up about a condition that I have. I did that with my thyroid cancer read all about it. When I was told I had it still was a shock but at least I had read that it was a good curable one!
Well time for breakfast now and may be another read for a while! :lol:
Hope you are not in too much pain today. Talk soon.
Love Tess x x
paddy
Posted
So glad your hol was ok. I know just what you mean about trying to keep going for the rest of the family, I`m my husbands carer and he just doen`t understand what I`m going through. So I just try to keep going for his sake! It must have been nice though just to be somewhere warm!!
Tess I read that book last year when I was first diagnosed, its about the best one I`ve found. Like you I like to read up on the condition I have and that book was better than any of the others I looked at.
Been out for lunch today to the carvery. I felt really good after the first morning stiffness and eased a little, but am really exhausted now I`m home. At least I don`t have to cook tonight!! Its the most awful feeling this exhaustion, its not like feeling naturally tired when you have been busy, it sort of washes over me and feels like someone has pulled the plug out and drained away all my energy. Sometimes to the point of feeling sick.
Well going to rest now before the family gets in from work.
Take care Love Linda
dianepaterson
Posted
hi.. heat was good on better than here im freezing... was going to ask u.. do any of u get really sore thighs mine have been aching but dont know if its part of the fibro.... its great when u dont have to cook eh..thats my biggest task that i find really difficult to do.. its the organising the watching and the dishes after that i hate. my 15 year old daughter said to me on holiday i will start helping u at dinner time mum.. bless..but wait and see if it happens lol
well im trying to keep positive but im struggling . i have made a appointment to get my hair done (its badly needing it) maybe that will make me feel better xx
hope u are not all in to much pain and hope the fatigue isnt to bad for u all today..
luv di xx
Squires
Posted
Must have been good for you to go out to lunch. Like you say though it can take it out of you! :cry: Still important to go though. I have another book from library called living with fibromyaglia. The other one looks the better book and is really interesting. Will look at other book as well. But really like the first one! :lol:
Hi Di yes having your hair done will make you feel better. I need to get mine done. Only had a light perm on it a couple of months ago and didn't take very well because of all my hormonal changes. Will have to have a stronger one next time. :cry: Lets hope your daughter will be true to her word and give you some help with making the tea!
I am lucky as I only have to cook for two of us now! Do miss having all the children round the table at tea times. As my husband shifts are 7 til 7 I am now always eating my meals on my own a lot of the time. I use to cook for seven of us when all the children were little. :lol:
Well I hope we all get a good night sleep and not too much pain :cry:
Love Tess x x
dianepaterson
Posted
well kerri made a chicken stir fry for t it was lovley... so she done very well... i will let u know how the hair cut goes hope its nice its costing a lot of money we dont really have...
I wish we could talk on a chat room sometimes i would really like that... to talk straight away when u feel u need our friends on here eh
well hope u sleep well and hope to talk to u soon xx
di xx
Squires
Posted
How are you today! I bet you really enjoyed your tea and well done to Keri who never let you down. :lol:
You can contact me on my normal email address if you like. You can send a private message. To do this you need to go on members list at the top of site. Where is says search for members name type mine is SQUIRES and will come up with my details and you go onto contact and send me a private message from this site. After that we can email as normal.
I slept a little better last night but got a sore back and knees today. Had a lay in today. Looking after my new little granddaughter Sophie later while Amy my daughter goes into school to have lunch with Molly. Sophie is three weeks old now and putting weight on nicely.
Hope you have a good day and don't overdo it with catching up on things whilst you have been away. We all do it lol!
Speak soon.
Love Tess x x