Diagnosed with Hyperthyroidism - What next?
Posted , 4 users are following.
Hi...So I was diagnosed with Hypothyroidism yesterday.
I first presented with symptoms Aug 2015, bloods were ok but I felt restricted in my throat. After an USS in Oct 2015, I was told I had a Multi- Nodular Goiter & didnt really need to be seen again! This worried me so went back to GP & asked to be referred to Endo, this took 8 months! Anyway had bloods repeated which showed TSH of 0.03, have crazy symptoms: heat intolerance, palpatations, brain fog ++, super anxious, jittery & the most horrendous anger issues, which come from nowhere!
My Consultant diagnosed Hyperthyroidism caused by a Toxic Multinodular Thyroid. He initially suggested RAI treatment but my youngest children are 1, 2 & 5, so not an option. He then moved onto a 10mg daily dose of (something beginning with C??). No prescription yet as his receptionist was busy 😒, or surgery to remove part of my thyroid.
Now im not sure what to do...I read that medication rarely helps with a toxic multinodular thyroid & that the side effects can be horrid. I also read that RAI or surgery is better as it may cause me to be Hypothyroid, which is easier to treat?? Surely we would all prefer to have a healthy thyroid rather than a hypo or hyper one - is either one better??
Please can anyone help, I feel like im going abit crazy & would really appreciate it if anybody could share their experience...
Thankyou so much...
1 like, 11 replies
VeeveeJames
Posted
calissa VeeveeJames
Posted
I had Hyperthyroidism which was not diagnosed until I was very sick. I had cabin ample to reduce my levels and then I opted for surgery to have half my thyroid removed. The half that contained the toxic nodule. It's it you whole thyroid?
calissa
Posted
VeeveeJames calissa
Posted
Thanks for your reply, i have nodules on both sides, but the 3 larger ones(2.8cm & smaller) are on the right hand-side.
How did you feel on the Carbimazol, did it reduce your levels? Do you feel better are your operation?
I hope you dont mind me asking... & hope your feeling much better...
Best wishes, Veevee xx
calissa VeeveeJames
Posted
Sue1247 VeeveeJames
Posted
VeeveeJames Sue1247
Posted
I think surgery may be the route im going, but still so unsure!
My consultant basically said its up to me to choose what i think is best...
Hope you feel better soon, sending positive thoughts your way!
Best wishes. Veevee xx
Guest VeeveeJames
Posted
If a biopsy of the removed nodules shows that they are malignant, most surgeons would recommend a follow-up treatment with radioactive iodine I-131 after the surgery. This is to make sure that parts of the nodules that may have been missed during the surgery are destroyed.
The biggest advantage of RAI treatment is that it is non-invasive. The toxic nodules have a far greater uptake of radioactive iodine than the rest of the thyroid and can be very effectively targeted.  You will have to be quarantined for about 4 days and then avoid close contact with family members (like hugging) for about 3 weeks. You should also avoid fathering a child for the first 4 months following the treatment.  Â
VeeveeJames Guest
Posted
Hi Dan,
Thanks for your reply... My Carbimazole dose is 10mg and its been suggested that such a low dose shouldnt pose too many side effects.
RAI & surgery now sound rather drastic, so im going to start meds combined with some alternative remedies & see how things go!
Sue1247 VeeveeJames
Posted
Provided you can be stabilised and possibly go into remission it's best not to do anything too invasive. Remember that it's not a good idea to be on carbimazole long term. I went into remission and it came back at the beginning of 2013 and they can't stablise me. I going for surgery and seeing the surgeon next month. Thyroxine is a safer option and carbomazole is decreasing my white cells which is not good.
VeeveeJames Sue1247
Posted
Hi Sue, thanks for your reply. I must admit that the thought of long term Carbimazole has crossed my mind! I think im going to try the meds initially, along with some supplements & see how I go...I'm seeing my Cons in 2 months for a review & in the meantime Im going to keep researching! x