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Did anyone else feel they were going mad and what about surgery?

Posted , 4 users are following.

suziqueues
suziqueues

I have just been diagnosed with firbomyalgia but for years I have been suffering with no idea what was wrong.I knew I had ostioarthritis in my hips and knee but the pain kept spreading and I was constantly at the doctors with new problems I felt I was going mad and no one could help. Finally I lost all strength in my upper body and some days could not even lift my arms up. The doctor thought Polymyalgia rhumatica (sorry about spelling) But the specialist at the hospital xrayed my legs which surprised me and gave me the diagnosis. he also found my hip is damaged and has referred me for a hip replacement. This is worrying as I have read any injury can be more painful for us, Is it? I find people think I am lazy and playing for sympathy. I have even had an abusive phone call by someone because I get DLA and benifits. I feel so sad and lost. Suzi x

2 likes, 5 replies

5 Replies

  • shelagh6
    shelagh6 suziqueues

    Posted

    Hi Suzi,

    i don't know about feeling pain more than others, I have been told I have a high pain threshold. Ignore the people who think/say those things, if you don't respect their views what does it matter? As for benefits, how does anyone else know you are getting them? Try to ignore them, it isn't easy but it's all you can do,if they get to you they've won.

    S x

  • Malarose
    Malarose suziqueues

    Posted

    Hi Suzie,

    ive also had the pain in the knees and hips then the shoulder blades and upper arms. Sometimes numbness in the hands. Also have neuropathy in the feet. Headaches as well as fatigue. The Dr. When I finally went the upper arms said it was Fibromyalagia, put me on Steriods horrible side effects now I have to have an op. And coming off them Sirgeon won't operate while on steroids. I will not use them again so not sure what to do re pain now. Also does every one always have pain on both sides or do you get it on one side and sometime more painfull on one side than the other. It's a horrible problem to have and people do not seem to understand how debilitating it is. Good lunch Suzie. 

  • Malarose
    Malarose suziqueues

    Posted

    Sorry meant to be good luck not lunch!!! 

     

    • suziqueues
      suziqueues Malarose

      Posted

      I was told by the neurolagist that steroids don't help so I can come off them, I was put on when they thought it was polymyalgia rhumatica almosta year ago and take so many tablets now to stop the side effects. I think I might just rattle if I could walk faster than I do lol.

      Good Luck to you too. Suzi x

  • dobie2
    dobie2 suziqueues

    Posted

    hi there,

    People will always have their own views about people on benefits more so at the present time with all the changes, ignore them and just think how they would cope with what we go through every day.

    i have not been diagnosed yet waiting to see rhuematologist but the pain does not wait, it is there in the morning to wake us it there throughout the day to torment us and at night to stop us sleeping.

    the worst paini have is the pain in lower back and my legs. will plod on till i have answers.

    keep strong.

    janet

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