Diverticulitis advice

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Had colonoscopy nine months ago but still suffering as much pain and diorea changed diet really tried different things but nothing seems to improve any idears

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  • Posted

    Hi Trevor

    I'm guessing you were diagnosed with multiple diverticula.  Lots of questions.

    Were you actually given any advice?  Are you being prescribed antibiotics?  Have you been prescribed anything else, like Fybogel (a stool softener), something for the diarrhoea (like Immodium), something for the stomach cramps (like Mebeverine), something for gut bacteria (probiotic)?  Have you tried any of these off your own bat?  Have you kept a food diary?  Where is the pain?  Pardon the question, but how often do you "go"?

    I've had Diverticular Disease (DD) for 16 years, and up to last year had just 3 flares, but since then I've had 3 more, and was in pain from August to November.  Since then the pain has slowly eased, with a couple more minor flares but I am (touch wood) virtually pain free.  I take Fybogel once a day, plus extra if I seem to be getting constipated.  I also take pure aloe vera juice twice a day, and a probiotic drink.  I "go" 3 - 6 times a day, but Fybogel does have that effect on me.  It bulks and softens the stool, makes it easy to pass (less strain on your poor bowel) and keeps it fairly empty.  In addition I have cut gluten, wheat, full fat from my diet, and have a lot of fish, chicken, pureed veggies, home made blended soups.  I remove all skins (ie spuds, apples) and skin and de-seed tomatoes.  I'm not a lover of red meat, nuts, seeds so have very little.

    So this is how I manage my disease.  It is not unusual to take months to get on top of things.  However there are others on this Forum who have other gut problems as well, like IBS, Crohns Disease, Colitis.  This can really complicate things and I don't have the experience to talk about them.  Do you think you might have other gut problems?  IBS sufferers seem to benefit from the FODMAP Diet, which is for a restricted 8 week period.  Do you have a GP you trust and can talk to, or are they one of these "you'll just have to live with it" ones.  Most actually have less idea of treatment than those who actually live with it, so the Forum is a help.  We find we are all different and have to find our own way.  It can be very frustrating - two steps forward, one step back.  All I can say is, if it is just DD without complications, it does settle down eventually.  Best wishes.

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    • Posted

      Thank your reply I've tried most of what say not tried the probiotic will try that. I have to have another colonoscopy this October tried contacting the specialist but hasn't bothered to reply. Have seen three Doc's at local surgery but basically useless. I go roughly 4_6 times a day but just can't guess how the mornings going to go from what I can gather it seems you've got it put up with it. Thanks for your input

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    • Posted

      Fortunately I go twice within an hour of getting up, and once in the evening if I'm lucky.  If I'm not, then all points between!!!!!!!

      My Consultant didn't even bother to see me, just sent a letter saying "only Diverticular Disease, a benign condition".  Not the word I would have used.  My GP was very good the first time, when I was worried, and also quickly gave me antibiotics when I had a flare just before my holiday.  But she thought I had medical training, as I knew as much if not more than her about what to do and not to do!  Well at least it seems I know  something correct about the condition.

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    • Posted

      Hi Felinia,

      Could you tell me what probiotic drink you take and also where I can buy aloe vera juice from as I have never heard of it before.When I was in hospital with DD the doctor mentioned this juice and I've only just remembered some of what he said. Wasn't in the right frame of mind at the time. He also mentioned probiotic yogurt. Would be grateful for your input.

      Kathy

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    • Posted

      Hi Kathy

      Hope the moderator doesn't block this.  I get the Pure Aloe Vera juice from Holland and Barrett Online.  It's not cheap but they sometimes do it on special offer.  I find a bottle lasts a month, 2 teaspoons a day.  You don't want the drink with added juice or flavours.  Or you can get online with Amazon, and check out the reviews at the same time.  I go for the pure maximum strength 1000ml bottle.  But it tastes REVOLTING!  So I always have a drink handy to follow.  Someone suggested a Polo mint - that would kill the taste!

      I get the Actimel mini yogurt drinks, but there is also Yakult.  There are lots of actual probiotic yogurts around in the supermarkets as well.  They are usually near the cholesterol lowering products.  Lots of suggestions on this Forum as well.  Good hunting!

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    • Posted

      Oh thanks Felinia, that has helped a lot. I have Yakult at the moment so at least i'm on the right track. I also have Yoe yogurts too, I believe they have good bacteria? As for the pure Aloe Vera juice, I will buy it but have a drink or a polo at the ready...thanks for the tip!

       

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  • Posted

    The colonoscopy is only a diagnostic tool, start slow with diet, No residue, very low fiber,.lots of wayer,.probiotics, yogurt, drink aloe Vera juice , couple Oz / day, when pain goes away, start fiber back slowly, with fiber supplement, works!!
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  • Posted

    Hi Trevor,

    I am having a colonoscopy in 8 weeks time as I had my first bout of D a few weeks ago. I know how you are feeling, but I'm not able to help you much as I'm still new to it all myself with regards to diet etc. I do know I have had lots of advice on the blog so I'm sure we will both in time work it all out. At the moment for me, the pain has subsided a lot now, but still have diorea, just drinking lots of orange barley water (I hate plain water) also cornflack with water, not very nice but at this moment in time better than milk plus cornflacks are low fiber. also having jelly pots (any flavour) + I can manage two crumpets per day with butter!!

    Sorry I can't give anymore info as I'm still learning myself.

    Kathy

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