Posted , 7 users are following.
I have recently changed surgeries, and we were discussing My DD
and I asked if there wa a dietician or nutricianist attached to the practise.
No, was the answer . Why. ?? So I told him that WE Divi sufferers were
floundering in the dark ,about food, or lack of it,
His reply was ----- eat what you like until a flare occurs ,then eat a low
protein diet.
Now, what do you fellow flare sufferers think about that ???
protein diet.
0 likes, 27 replies
maryanne46 jacqueline01135
Posted
Hi that's very reassuring lol. It may work for some not others. Everything I find is trial and error. Think there is not enough support with this condition.
jacqueline01135 maryanne46
Posted
Very early morning to you Maryanne, to say I was surprised by his
blase attitude , it was obviously unaware that we all fight NOT to get a flare. I can only say ,that he is unaware of the pain and more pain
that a flare brings on,
If only there was someone ,,somewhere ,who could just take time
out and explain thoroughly the food problems and worry that we
all go through ..Trial and error is all very well, but then it is too late.
and we are back with the same scenario ,,,hospital . drips ,and
a colon that is in danger of being removed,
Needless to say,, I have ignored his ""advice""
maryanne46 jacqueline01135
Posted
Hi
Good for you. Yes I know exactly what you mean. Just hate taking time of work because of this condition. Although my work are very supportive of this thank goodness. I live in Devon and will research if there are any support groups about. It's good that I found this forum but think it's also good to actually talk to those who have the condition. Do you have anything near where you live??
jacqueline01135 maryanne46
Posted
In a word Maryanne NO,, I am my support group, In fact ,I started a
forum caleed Divi Diners ,for help,with this FOOD problem ,the response
was amazing, and such a wealth of ideas and suggestions. because
DD was new to me ,and no one in the medical department to offer
help. just a diet sheet .Now there are so many of us "Thank Goodness" that come on with information, that we find out for
ourselves
Try the forum it's called Divi Diners ,you can find it on Google ,or
through the Diverticula group.
sadly ,you are the other end of the country from me .Yorkshire ,so
a coffee and a moan are not on the menu (pardon the pun )
However ,,,we are but a few buttons apart,
jacqueline01135
Posted
CALEED .
appendectomy jacqueline01135
Posted
linda346 jacqueline01135
Posted
It's a funny old world! No one really understands what this disease is like unless they actually suffer (and I mean suffer!) from it! After my recent problem with bleeding I needed a CT colonography as not able to have a colonoscopy. My consultant said all looks ok tho can't be certain there's no cancer! (He said the same 12 years ago when I was diagnosed) asked me what I ate, I told him I eat only low residue now and he turned to the trainee doc and said 'yes, if someone has a lot of pockets the colon narrows and you can't eat fibre'. Luckily I had researched this 5 years ago when I changed to low residue but I wondered why GPs, consultants etc don't give this info to patients instead of banging on about 'lots of fibre' - my family are very considerate and my husband and daughter check menus first if we're going out to eat to see if there's something I can eat! (Usually not much so Italian it is then!!!) but even my husband sometimes says 'just give it a try' re food and really why would I as it's taken me all these years to realise exactly what can bring a flare on (root vegetables, beef, pork, lamb, fibre, processed meats, eggs etc etc!) Your surgery seems to think a flare is a little tummy ache!!!! It's comforting to know that WE all understand - sending calming vibes to everyone's colon out there!
madge07350 linda346
Posted
linda346 madge07350
Posted
Yes I think that is the case, you are right. My DD was caused by bad constipation for 2 weeks, and my doc told me to take fibogel but didn't point out that I should drink lots of water at the same time so I got properly bound up, fever, bad pain and was ill in bed for another 2 weeks and lost a lot of weight, that was the start of it - I feel my low residue diet is right for me, I have very few flares now (touch wood) I try to drink 2 litres of water a day and the lactulose is magic! Just softens everything so it goes through the colon easily. I do find generally the medical profession doesn't know much about DD. Kings College Hospital has the only specialist DD department in the country, I think we need a few more!!!
appendectomy madge07350
Posted
I totally think insoluble fibers are the culprit. It wasn't really a staple product years ago but I grew up in 70s and it appears they add it to everything now. I also believe some people inherit the worse form of diverticulosis that progress to diverticulitis. Remember only 15 % of all people with diverticulosis have diverticulitis. Of them 15 only something like 2-3 % have another flare!
That's the statistics but it seems a lot more common than that. Yeah, steer clear of insoluble fibers.
madge07350 jacqueline01135
Posted
jacqueline01135 madge07350
Posted
on call
madge07350 jacqueline01135
Posted
Not exactly on call. It takes about a month to get an appointment. But I do have a number to call if I need to go into the clinic ( our insurance is good for a private clinic here). Having been floxed at the last one I can't say I'm that keen and I don'the fancy the op she wants me to have either!
jacqueline01135 madge07350
Posted
Madge,,, please remember you are talking to foreigners ,What does
FLOXED mean ?? you were damaged ,,,or ripped off. ???
i have tried to access .consultants ,and others privately,to pay,, but
the stupid thing is You still have to be referred by your G.P ,but super wealthy won't have this problem.
madge07350 jacqueline01135
Posted
jacqueline01135 madge07350
Posted
madge07350 jacqueline01135
Posted
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