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I've not been diagnosed with Chiari but I'm starting to suspect it - I have IIH for 2 years and a lumbar shunt with no valve which has been shown to be overdraining in the past. I'm worried this could cause acquired chiari from the overdraining. My head pain is severe everyday, mainly at the bottom of my head at the back, I also have very bad neck and shoulder pain, mainly on the right side. My head pressure pain is worse upon bending, laughing, crying (10 times worse!), straining etc. I've always have issues with blurred vision, tinnitus etc with my IIH.
Over the last few months I've had a lot pressure pain in my face, nose, roof of mouth. But the main symptom which is worrying me and making me wonder whether it is worth me asking my neuro for a scan at my next appointment to check for chiari is that every morning when I wake up I have a throat pain on the right side only which only lasts for about half an hour after Ibe got up. It seems worse the flatter I've led in the night. I'm just wondering for those who have chiari, if you get a throat pain when led down from it or perhaps I'm barking up the wrong tree?
Any advice you can offer would be greatly appreciated. I'm feeling a bit lost on who to turn to with all this at the moment! Just had face/throat pain investigated by ENT who didn't find anything wrong with sinuses so I'm confused as to what is causing the pain. Thanks in advance!
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