Doc doesnt want to label me!? Need to work less
Posted , 6 users are following.
Having never heard of fibro until last wk when a new doctor said "I would class you as fibro but dont want to label you" I want to be labelled so I know Im not mad! started 3 years ago with extreme tiredness as in my eyes roll to the back of my head! Hip and leg cramp and back pain. I was given codine, dicloflenac and physio and put down to me covering 3 ppls work as a housekeeper. I left and went self employed but still more symptoms appear along with constant hip leg pain.. pain in jaw, arms shoulder, back, swollen tingling feet and fingers, head aches only if I lift something heavy? Hair has fallen out badly, weight gain hard to loose, constantly need to pee! I either sweat or freeze cannot where a coat, extreme pain on period, my feet cramp and curl while cramping,no sex drive what so ever, heart palps, fitgue, irratible with noises, ocd and ibs diagnosed 10 years ago. I paint furniture for a living from home which includes alot of heay lifting, I find if I over do it in anything in life Im wacked for the next 3 days!? I love what I do but would like to reduce my hrs but cant for tax credits. Having found this page and others I feel better about my self but guess this is going to be a task to get dianosed!? Thanks for any help advice in advance x
0 likes, 14 replies
joy47826 dee01002
Posted
And hormones.... If you can get yourself into a supplement routine that would help you and not so many painful drugs.
I've been at this Fibro thing since 1999 and never heard it before a thyroid specialist said "you have fibro"......I had a sluggish thyroid for 10 long years. My story is long but I do have my story. Try to do some changing. Joy 76 US
dee01002 joy47826
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joy47826 dee01002
Posted
I've worked hard to keep calm and not much bothers me anymore except my daughters and grandkids lives when they are having issues....mom's umbelical cord is never cut.
Other people we do the best we can to co-exist but it ain't easy breezy ...
dee01002 joy47826
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joy47826 dee01002
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Daughter and I both went thru divorces and I know our lives are much calmer...both our ex's are dead now, mine died last year at 76, my daughter's ex last year at 55..
I love being alone at my old age. Lots of history to remember. J
nitropilot dee01002
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dee01002 nitropilot
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michelle17282 dee01002
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dee01002 michelle17282
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Thank you x
eileen64__UK dee01002
Posted
I havent got fibro...OA, Scoliosis, spinal stenosis, osteoporosis etc LOL
So I'm not answering about that bit of your post
Its your doctor........that is absolutely ridiculous......dont want to label you!!!!!!!!
You dont want a label, just a diagnosis so you know what you are dealing with and how to manage it.
The only way you'll get a label is to label yourself.......If you think I'm Deee and have fbro......great.......itw if you think I have fibro and I'm Dee....thats labelling yourself and i'm sure you wont do that
Love
Eileen UK
dee01002 eileen64__UK
Posted
I felt so happy when she said an actual name of an condition but took it back in seconds. Since looking up about fibro I feel I have 90% of the symptoms and I'm wondering why a doctor has never mentioned it as a possibility before. If anything theyve found my symptoms strange same with physio and put it down to my manual work.
I'm due to see my doctor again this wk to talk medications. Any advice on asking/demanding a diagnoses? X
eileen64__UK dee01002
Posted
Its 6.50am in the UK......I'm sitting here in pj's with a cup of tea and just taken meds.....waiting for them to kick in
By doctor did you mean GP or consultant at the hospital?
If its a GP ask or as you say demand a referral to a hospital....they should give you a diagnosis.
Just explain that you cant cope with whatever it is or manage the symptoms until you know exactly what is wrong
Good Luck
Love
Eileen UK
dee01002 eileen64__UK
Posted
Hope your meds have kicked in now
Yes GP sorry. I've kept a rough diary of my symptoms since my last appointment so going to bring that. If I ever get through to them on the phone!
Thankz for advice.. x
eileen64__UK dee01002
Posted
Good Luck and keep us updated.
I was lucky at that time.........after my GP {then} saying he couldnt find anything wrong......eventually I asked for a referral.....before I knew it i was referred to the hospital {I'm in Northumberland}
He was one of these useless GP's who would do anything to get rid of patients.....write a prescription, refer you to the hospital......I was pleased about that it made things quicker. Needless to say I'm not with him now
Take care
Love
Eileen UK