Doc doesnt want to label me!? Need to work less

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Having never heard of fibro until last wk when a new doctor said "I would class you as fibro but dont want to label you" I want to be labelled so I know Im not mad! started 3 years ago with extreme tiredness as in my eyes roll to the back of my head! Hip and leg cramp and back pain. I was given codine, dicloflenac and physio and put down to me covering 3 ppls work as a housekeeper. I left and went self employed but still more symptoms appear along with constant hip leg pain.. pain in jaw, arms shoulder, back, swollen tingling feet and fingers, head aches only if I lift something heavy? Hair has fallen out badly, weight gain hard to loose, constantly need to pee! I either sweat or freeze cannot where a coat, extreme pain on period, my feet cramp and curl while cramping,no sex drive what  so ever, heart palps, fitgue, irratible with noises, ocd and ibs diagnosed 10 years ago. I paint furniture for a living from home which includes alot of heay lifting, I find if I over do it in anything in life Im wacked for the next 3 days!? I love what I do but would like to reduce my hrs but cant for tax credits. Having found this page and others I feel better about my self but guess this is going to be a task to get dianosed!? Thanks for any help advice in advance x

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14 Replies

  • Posted

    I'd put money on thyroid issue....FM and thyroid are so so connected....and docs just don't get it right....I've been there for 10 long yrs from 1991 to 2002 when I finally got on desiccated thyroid support....   hot and cold = thyroid dsyfunction...

    And hormones....    If you can get  yourself into a supplement routine that would help you and not so many painful drugs.

    I've been at this Fibro thing since 1999 and never heard it before a thyroid specialist said "you have fibro"......I had a sluggish thyroid for 10 long years.  My story is long but I do have my story.   Try to do some changing.   Joy 76 US

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    • Posted

      They did mention hormones at the beginning and I was sent for tests, all were clear but I believe theyre suppose to be done every 6 months? Could it be stress? Ive just read a traumatic ecperience can set fibro off or start it? Thanks for your reply 
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    • Posted

      A major stress set the Fibro off in my body....at age 61 and this was the topper on many stressors in my life......it would be nice if we could all go thru life in a light airy feeling but "s**t" happens...a physical stress too..sets off the fight/flight/fright mechanism controlled via hypthalamus....this was in 1999, I love my retirement life....no bosses or people to answer to. 

      I've worked hard to keep calm and not much bothers me anymore except my daughters and grandkids lives when they are having issues....mom's umbelical cord is never cut.

      Other people we do the best we can to co-exist but it ain't  easy breezy ...

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    • Posted

      That would make sense, thank you. I was in a horrible relationship for 10 years and have been in womans refuges with my daughter (6 years of running) strangley all the symptoms began when I met my husband 3 years ago and settled down a bit. Being self employed Im as stress free as I can be just now i.e today  my legs are in agony and I still have to work lifting heavy furniture but dont have to rush..
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    • Posted

      Both myself and daughter choose controlling men, of course, we didn't know this before.....back in my early days, people didn't live together before marriage and  you ended up with what you got.....even today, women settle for the wrong partners....

      Daughter and I both went thru divorces and I know our lives are much calmer...both our ex's are dead now, mine died last year at 76, my daughter's ex last year at 55..

      I love being alone at my old age.    Lots of history to remember.   J

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  • Posted

    Some of those symptoms sound like Thyroid.
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    • Posted

      Yes the weight and hair? But all have come on together in the past 3 years. I've went from a size 8 to a size 20. I really don't eat enough for that amount of weight. I have sruck to all sorts of diets and lost a pound or 2. My hairs so bad now I wear a half wig!
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  • Posted

    My doctor believed i had fibro and was refering me to a reumatologist but told me the waiting list could be up to six months. Due to work issues i paid privatley and had a diagnosis the same day. I had already had blood tests etc with my gp. Well worth the cost. I am being finished from work on ill health with my pension which is such a relief as i have been off sick for six months.
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    • Posted

      Sorry Michelle only just seen this. Thank you that is an idea! Not sure if I could afford it. I'm happy to keep working like I said I'm self employed painting furniture. I could do smaller things and just do them when I'm upto it. Ideally 16hrs. At the moment I'm having to do 30hrs to qualify for tax credits as my husband is a fulltime carer for his terminally ill gran so can't work at the moment. I feel so bad asking him to do things for me or around the house. But privately is something I'll look into.

      Thank you x

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  • Posted

    Hi Dee

    I havent got fibro...OA, Scoliosis, spinal stenosis, osteoporosis etc  LOL

    So I'm not answering about that bit of your post

    Its your doctor........that is absolutely ridiculous......dont want to label you!!!!!!!!

    You dont want a label, just a diagnosis so you know what you are dealing with and how to manage it.

    The only way you'll get a label is to label yourself.......If you think I'm Deee and have fbro......great.......itw if you think I have fibro and I'm Dee....thats labelling yourself and i'm sure you wont do that

    Love

    Eileen  UK

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    • Posted

      Oh my thats alot. Hope you're managing your symptoms o.k?

      I felt so happy when she said an actual name of an condition but took it back in seconds. Since looking up about fibro I feel I have 90% of the symptoms and I'm wondering why a doctor has never mentioned it as a possibility before. If anything theyve found my symptoms strange same with physio and put it down to my manual work.

      I'm due to see my doctor again this wk to talk medications. Any advice on asking/demanding a diagnoses? X

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  • Posted

    Morning Dee

    Its 6.50am in the UK......I'm sitting here in pj's with a cup of tea and just taken meds.....waiting for them to kick incheesygrin

    By doctor did you mean GP or consultant at the hospital?

    If its a GP ask or as you say demand a referral to a hospital....they should give you a diagnosis.

    Just explain that you cant cope with whatever it is or manage the symptoms until you know exactly what is wrong

    Good Luck

    Love

    Eileen  UK

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    • Posted

      Hi Eileen I'm UK too.. East Scotland.

      Hope your meds have kicked in now smile

      Yes GP sorry. I've kept a rough diary of my symptoms since my last appointment so going to bring that. If I ever get through to them on the phone! 

      Thankz for advice.. x

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    • Posted

      Hi Dee

      Good Luck and keep us updated.

      I was lucky at that time.........after my GP {then} saying he couldnt find anything wrong......eventually I asked for a referral.....before I knew it i was referred to the hospital {I'm in Northumberland}

      He was one of these useless GP's who would do anything to get rid of patients.....write a prescription, refer you to the hospital......I was pleased about that it made things quicker. Needless to say I'm not with him nowbiggrin

      Take care

      Love

      Eileen  UK

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