Doctors don't know what's wrong with me - "Nose" problems for over 3 years now.

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I can't get over my symptoms, and it's been 3 years since they began! I can't live a full life like this; I feel like I'm slowly going to go mad at this rate!!

I've seen ENTs, Gastro specialists, GPs, Emergency Room doctors, I've traveled across the country and ordered online tests out of desperation. I have no idea what is happening to my body, and neither does anyone else I've seen.

- My nose is permenantly blocked and almost impossible to breath through. If I lean back in a seat, take a hot shower, excercise or sit in my car it gets worse, and has begun to get worse since sunny weather set in. I have no known allergies, and even if I did I've tried 5 different things which have all failed me - right now I'm on Flixonase and Cetirizine Hydrochloride. I've tried other allergy meds too, as well as sinus rinses and decongestants, steam inhalation and plenty more besides - if you suggest it, I've tried it.

- When things get at their worst, I get so much post nasal drip my airways block and I literally cannot breath properly. It isn't hyperventilation; I know how that feels. My body cannot get enough air, so it makes me gasp. I have to hunch over to get any air in - if I sit hunched over at a computer, things improve. Only "Oxymetazoline Hydrochloride" forces opens my sinuses, but I still don't get a runny nose and when it wears off, things become twice as bad as before. Also this stuff works for everyone, not just me, so it doesn't assist in proving what I have.

- I haven't had a runny nose for 3 years, which means I can't clean out my sinuses when something like this happens. It keeps me awake at night, gives me migraines and makes me tired and depressed.

- On top of that, I'm struggling to prove I have LPR reflux to doctors, which can't be controlled either. Every single medication diet change and lifestyle change I've tried has backfired on me. There is NOTHING I can do about it.

I want to be able to walk, talk, breathe, exercise, laugh and enjoy life like a normal person, but right now I'm scared to even get out of bed - and even then sometimes the problems follow me into bed too! I have no idea what is happening to me, but it makes me scared to keep living. I'm afraid one day the airways will block up so much even the emergency rooms won't be able to save me, and I dread the arrival of summer now in case it has something to do with heat.

I know for a fact it isn't an allergy. I get hayfever but I know how it feels when I do. I'd get an itchy throat, itchy eyes, and most importantly, a runny nose. That's not bad at all, I could live with that, but I haven't even had that for 3 years!

An ENT scoped my nose in winter - too late to catch some of my symptoms - and said nothing was wrong with my nose. Of course that means nobody believes me now, and everyone says all my symptoms are to do with anxiety. Surely that's nonsense? How can anxiety cause so many specific problems, under such specific conditions, and especially when I'm NOT ANXIOUS about life?!

What's happening to me? Please, please, please help me. I'm not sure if this is against any rules to say, but I CANNOT LIVE MUCH LONGER LIKE THIS.

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4 Replies

  • Posted

    ""Doctors don't know what's wrong with me".        JOIN THE CLUB!
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  • Posted

    Maybe you should try balloon sinuplasty surgery. I hear great things about it.
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  • Posted

    Dexter set back and try to breath . ur totally overwhelming ur self which can make things a million times worse. When my anxiety peaked I thought I had a million things wrong with me. Sit back take some good breaths from the abdomen not the chest and get ur self collected. You mind has to be going 100mph.
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  • Posted

    Daxter,

    I am not a professional, just a poor sufferer like you looking for a cure of this devilish disease!

    Try going to a lung doc.  I've gone to one and he finally figured it out and gave me an H2 blocker and Dulera, an inhaler with mometsome and formortorol...forgive the spelling.  100/5 in mcg.  I went to an otolary....and he performed sinus surgery and it was to no avail.  Finally I went back to my lung doc and he put me on a regimen of and H2 blocker and Dulera and it slowly came into control.  He is now thinking of taking me off of the Dulera and keeping me on the H2 blocker, which is Ranitidine.  I also take a promethezine before I go to bed and it has work wonderfully for me.  It's been about a year and a half since my first symptoms while on vacation in Lake Tahoe.  A tickle in the throat that wouldn't go away.  Like I had something in there and it wouldn't clear out?  It progressively got worse till one day I couldn't hardly breath!  The Dulera was the only thing to get my air passages back to where I could breath normally again.   It's my understanding that pepsin gets imbeded into your bronchial tubes and whenever you drink anything acidic or carbonated, it gets activated and begins eating away at your lining.  It does two things, irritates the lining and causes it to produce phlegm and constricits the airways making it harder to breath.  The pepsin needs to be eliminated so it doesn't give this response.  You need to reduce the inflamation by using a corticosteroid in an inhaler and reduce your output of acid in the stomach.  Don't go the PPI method as it's too harsh in my humble opinion.  It's getting my life back on track and I'm glad I finally found someone who know what is going on.  I'm not sure if you are still following this post but I hope you are.  Give it a try and I think you will be pleased with the result.

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