Does anyone else with Fibromyalgia feel like they are unreliable??

Posted , 5 users are following.

Lately, I have felt really guilty and unreliable when it comes to doing something I said I would or being somewhere I was supposed to be.

For instance when I am supposed to be up for a certain time and I oversleep people get annoyed or start to lose patience and I feel so guilty!

Today I was supposed to visit my friend and help her decorate her sons bedroom (something I offered to do). I didn't even take my tablets because they make me drowsy and I was so desperate to wake up and be there when I said I would but no! I overslept for hours. My mind knew I needed to get up but its as if my body would not co operate and I physically couldn't lift my head of the pillow as if I was in a coma but still aware of things!

Has anyone else experienced this?

I know for me, its just one of the many irritating things about living with FM that I have no control over sad

0 likes, 8 replies

8 Replies

  • Posted

    Hello PRINCESS drowsiness and sleepiness in the morning may be caused by taking sleeping tablets the previous night. Another insidious cause may be too much consumption of milk and dairy products. What you regard as normal milk consumption may be excessive for your body.

    Solution: reduce your milk consumption by 50 to 75%.

    I have been through this condition from 1999-2008 when stomach ulcer made me to be consuming milk regularly to obtain relief. I am free now!

    And you will also be free very soon.

  • Posted

    Being so tired is one of those things we have to deal with, meds we take can interfere and cause fatigue or it could be your not sleeping due to pain which causes more pain. I regularly have to ditch friends or not make dinner or clean cause I'm so tired. Look up something called the spoon theory google it. A very smart lady wrote it, basically every day you have so many spoons. Each spoon is something you do. It could be one is getting outta bed, walking the dog etc. you only have 8 a day so use them wisely after that you can't do anymore your done. Hope you feel better smile
  • Posted

    Sounds like you need a house full of very loud alarms which you have to get out of bed to turn off wink Maybe you need to look at adjusting your sleeping tablet amount if you are taking them? Maybe either they are too strong or you need to take them earlier in the evening? Also so others know and you don't feel guilty, you have to set a meeting time not in the mornings. Then if you are awake and with it in the morning that day you will let them know and maybe bring the meeting time forward? That way they are not let down and you don't feel guilty and under pressure?

    The spoons theory is a brilliantly written piece which I also showed to my mother and husband. Since then we talk in spoons and so does my 8 yr old too. I find it nicer to say that I am short of spoons today, have you got any spoons to share rather than I'm feeling pathetic and everything is hard work. It means the same but it sounds less depressing for me.

    Not being reliable any more I do find very hard. I was the one people could count on. I was the one to volunteer. It does get me down when I'm reminded of things I would of done. As I've been told, focus on what you can do and what you have a achieved rather than what you haven't. It's good advice if you can remember to do it. Best wishes x

  • Posted

    Hi , I have learnt over the past 20 years to stop saying I will definitely do something , it is very hard to cope as it is without more pressure iv spent so many years feeling I was letting others down and sadly lost many friends as they just do not understand I'm lucky to have a wonderful husband and daughters. If you are up and feel well enough then just ring a friend and pop round then you have no pressure on yourself and you aren't letting them down either. One of the main things dealing with long term illness is being positive and that's so hard when you put pressure on yourself or allow others to do so . Take care and be kind to yourselves x
  • Posted

    Thank you for sharing your advice everyone. I just find it so hard because I was the friend everyone went to for things, that was my role and now everything has changed and its hard not being able to say to people "don;t worry I will help you with that" etc. But I suppose I just have to learn to pace myself. I will definitely read up on the spoon theory too.
  • Posted

    That's exactly the same for me I was always the friend who everyone turned to and confide in and I got to the age of 40 before I felt I needed anyone's help I rapidly found out who was a genuine friend I still get upset that I lost a lot of friends cos they couldn't accept my life had to change . I was told look after yourself stop thinking of others , but I disagree with that because if I focus on myself it gets me down even more , try to keep smiling x
  • Posted

    That's exactly the same for me I was always the friend who everyone turned to and confide in and I got to the age of 40 before I felt I needed anyone's help I rapidly found out who was a genuine friend I still get upset that I lost a lot of friends cos they couldn't accept my life had to change . I was told look after yourself stop thinking of others , but I disagree with that because if I focus on myself it gets me down even more , try to keep smiling x
  • Posted

    Hi,

    I don't have the 'hung over feeling "you spoke of because I don't take meds but OH MY GOODNESS do

    I dislike having to meet deadlines and appointments,.

    I would rather say if when I finally get up and feel better I will come by,what we get accomplished will

    depend on how I feel upon arrival,if I arrive.Really,you have to live day to day with this condition.

    If I have to do what I really don't want to-I get moody,annoyed and unpleasant with myself and others.

    The World does not evolve around ME so,I have to take care of Me,smiles.

    Elaine,

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