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Hello, dear fellow patients and health professionals. This message is my desperate and possibly last attempt to get any help with my mysterious condition. I understand that I am very likely not alone here with my troubles, but so far my personal research didn't get me much of a help... I'll try to keep my story as short as possible to not waste your precious time, but of course feel free to shoot any questions in the comments below if you need more details.
I am 32 y.o. male, currently non-smoker (smoked a pack/day between ages of 16 to 24). Exactly three years ago in the span of one week, I started feeling pretty spaced out and lightheaded. It was accompanied by a heavy sleep disorder, chest pain, and some breathing issues, though the last one wasn't that obvious at that point. I should mention that prior to that I smoked at least a pack a day for 3-4 months due to some stress in school. My family doc ran all possible tests (blood, chest x-ray, spirometry etc.), but everything came back clear. After it started, the condition never went away. I tried a few more docs during the next year, same results - everybody suggests depression or some mental disorder (bipolar etc.). After living a year with heavy fatigue symptoms (memory loss, constant brain fog, muscle pain, sleepiness etc.) I started noticing that my shortness of breath is getting worse and some other physical symptoms started to show such as bluish fingernails with changes in the shape (curving, lines across thumbnails) with occasional pain, freezing feet and hands at home, bluish lips.. heavy flu-like symptoms without temperature that never go away. Since then I've done several thorough tests on my heart, lungs ( at least 3 spirometry tests inc a stress test) brain, stomach etc. with no conclusive diagnose. My life has turned into a total hell and I am gradually giving up on any hope lies ahead. So far I lost several jobs because I can't function normally on a daily basis. And the worst thing is that nobody believes my story, including my family, though I'm trying not to share too many details with them to avoid all the stress. I also can't exercise as my fatigue and shortness of breath keep getting worse and on some days I can't even get out of my bed. I know there are lots of people struggling with the similar symptoms and I'm of course in no way saying that my case is unique or needs some special attention... It's just that I am becoming so desperate after the endless number of useless tests and healthcare professionals who really don't give a damn, that I literally considering ending my life. I just can't see myself struggling like that without a chance living the active life I used to live. Again, guys, I don't mean to discourage anyone here or say that my struggle is worse than others... I love life and I know it's absolutely worth fighting for, which I'm doing every day, but the faith is getting thinner.
Some additional symptoms I'm currently experiencing that I also worth mentioning:
- constant need to inhale some air even when resting
- occasional sweating when resting
- no cough, no wheezing when breathing normally, but I have this occasional urge to forcefully exhale the air from my lungs and I hear some rattling sounds
- wheezing sounds when I move my chest sideways, especially with the open mouth
- ocassional sore throat
Additional info: my last spirometry/stress test was done in September and my pulmonologist said that I just need to sleep better, then prescribed me some sleeping pills...
Thank you so much for bearing with me here and taking time to read this. I really hope to hear some insightful comments and of course feel free to share your stories, maybe we can help each other on our tough journeys.
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