Extreme "sinus" like headaches since decompression
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I need some advice. I was decompressed on Nov 4th. The first couple weeks after surgery I felt okay - (maybe because of pain meds). Been then I developed "lumps" by my incision. My NS did a CT and said they were CSF pooling and would go away on its own. Looking back at the timeline, ever since I had these lumps I have had extremely painful sinus like headaches. It feels like a sinus infection going up into the the front of my head times 1000. I also have blurry vision once in a while. My NS referred me to a headache specialist who is treating me for "migraine" headaches. The meds barely last 3 hours and then the headaches are back again. The lumps are still there. I go see my NS the end of the month - what questions should I be asking? I feel 10 times worse now than before the surgery
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htch ann50132
Posted
I had quiet a severe one after my decompression in March last year due to very high pressure. I had quiet a severe swelling on my neck in the area of the decompression scar. In the end the CSF actually began to leak through the wound due to the pressure being so high.
If you are concerned I would ask to see your surgeon again, have they checked your eyes for swelling of the optic nerves/discs ? This is a sign of pressure. Also do your headaches get any worse on lying down as this again is another sign of high pressure.
Unfortunately it is common to have these complications after this surgery but many go on to have them resolve over time without further intervention, but some do need further treatment to resolve the issues. I had to have a shunt in the end to stop the leak due to the pressure being so high but it did give me immediate relief.
Hope you get some relief soon, you are still in the early days of recovery
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ann50132 htch
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htch ann50132
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