1. Community
  2. Gut, bowel and stomach
  3. Crohn's Disease

Extremely high Calprotectin 1800!

Posted , 4 users are following.

angie18891
angie18891

Please can someone give me some advice? My son has had 2 tests one in Dec and one in March both results are up at 1800!! He had this test in 2013 which was negative and has suffered stomach problems undiagnosed for years. He had an endoscopy last July which was clear and now is going in for both scopes and a MRI. He is only 11 and I am worried sick.

0 likes, 6 replies

6 Replies

  • susan07204
    susan07204 angie18891

    Posted

    Hi Angie so sorry to hear that about your son I myself have never had

    that test but I know if it high then he could have IBD as that would show

    a high result were if it was IBS then it dose not show a high it doesn't

    show anything is he in a lot of pain with it .I was told I had ulcerative

    colitis then it was IBD now it I been told its crohns I really hope he

    doesn't have it cos it no fun for an adult never mind a 11 ur old boy I also know that the pain can be really really sore I don't even go out the house

    when I got a flair up as I can be in the loo at least 20 times a day and

    also vomiting but it can go into remission and be normal for years so

    good luck let me know how it gos Susan xx

  • penny49988
    penny49988 angie18891

    Posted

    Angie,

    I too am really sorry to hear of what your son is going through.Unfortunately I don't know the answer but as a Mother who has had a child go through this I just wanted you to know I was thinking of you both and wish your son all the best on his test results.

  • jo19531
    jo19531 angie18891

    Posted

    Hi, I've been told I have ibs for years despite always being ill, loose bowel movements, vomiting etc. Then I had a fecal calprotectin test and it's was 350 ish and my gastroenterology specialist said it's more likely to be crohns. I've had a colonoscopy and small bowel barium recently, both came back normal so I'm still at a loss to understand what is happening sad I would say 1800 is extremely high. I know others on here have much greater experience than myself so hopefully someone can help u. I would say if ur son is really poorly right now, at that level especially, then u need to be pushing for answers urgently. Good luck to you boy and u x
    • susan07204
      susan07204 jo19531

      Posted

      Hi Jo I sound like your crohns has went into remission and

      that's why your test came back normal

  • bin_agil
    bin_agil angie18891

    Posted

    hi

    just registered to answer your Q, though it's been long since you posted it may help other sufferers

    CALPROTECTIN  could be caused by intestinal worms and parasites which are not seen in normal stool test

    it could be a sign of another dreaded disease as well

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.