Fed up

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I'm now 14 weeks post op. A&P repair, you saw my consultant after 9 week'sas struggling with pain, I was told and shown that my vagina is normal,since then it feels like my bowels have started to die on me, I'm now taking 5 different laxatives to.get them moving, all!the dragging down sensation is back along with a pain, I can only describe as though someone has.kicked me.up the bum,the consultant wasn't sure if I'm reacting to the internal stitches,ohhh and also my bladder has dropped, I'm feeling so down I can't even get back to work, has anybody else experienced any problems like me and will Get there in the end xx

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  • Posted

    First off you need to have the original tests repeated and compared. See if there's improvement of if you've regressed. If you've regressed they need to go back in and and repair whatever has now gone wrong. If it's not a surgical issue then you need biofeedback and counseling but first step is being rescanned to see if your tests have shown significant changes or not. Some people actually get worse before they get better. Good luck?

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    • Posted

      I didn't have any tests before my surgery just an internal, my Dr had mentioned about me having a small bowel prolapse but when I mentioned this to the consultant it was dismissed without any examination, I do feel really bulge at the back while walking and standing, im seeing my consultant nxt mth so hopefully I will get some answers as no further forward in my recovery x

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    • Posted

      If your having issues and they didn't do a CT or an MRI they should now and I'd demand one to discover the issue!!

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  • Posted

    Hi no had a total hysterectomy, A& P repair and a tvt 14 wks ago. I had my post op appt at 9 wks. Saw a different dr who said I was healing well. So discharged me. Then 2 wks later I could feel and see a bulge so rang my physio who contacted my consultant who gave me an appt the following week. If also noticed my bowels slipping back into their old ways. Feeling of not finishing. Struggling to go. Splinting on occasions. On examination at the appt he said the ops had all went well and I was healing well. The bulge I could feel was feeling was a urethrocele (prolapse of urethra) he wasn't keen to do anything about it at this time. Said it was tricky???? But I asked him about the other lump I could feel. He couldn't find it and on me having a feel I couldn't either. So was sent on my way. Told if any more problems to get in touch. A couple of days later I could feel this smaller flappy type lump on back wall(the one we couldn't find on day of appt) it seems to show up if bowels playing up. No idea what it is and scared to ask again n case it's not there on a nape ruin again. But I'm under a colerectal surgeon for my bowels and was told to get back in touch with him once I was discharged from gynaecologist to get ball rolling as to what next step is. I was hoping that the repair would have sorted bowels out and it did at first but despite still being on meds bowel surgeon gave me I'm still having problems. Dreading the thought of more surgery down there as we all know it's not the nicest experience.

    I would say if you're unsure if go back to GP and ask to be referred back or if still under consultant ring their office and ask for an appt.

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    • Posted

      Yeah I know. I'm hoping once in back under the colorectal surgeon he's be able to tell me what's what. I just need to make the call. But to be honest I've been putting off out of fear of more prodding and picking as still get a bit sore some days.

      Don't lose hope. Good luck. X

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    • Posted

      Thankyou, you too, my consultant did mention sending me to a colorectal surgeon but went on about some disease but not till after 6 mths xx
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    • Posted

      You could maybe suggest it again. It's like a 2nd opinion as you've been seen by gynae. If it's bowel prolapse they can sort it. X

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  • Posted

    I am 12 weeks post op and I still need to be really careful not to get at all constipated. Last time it happened was a couple of weeks ago and it  hurt both before and while I went to the bathroom.  No pain at all if I am not constipated and except for that, going to the bathroom is better than before.  I figured things were still healing and that was why I had to be so careful.  I had a large rectocele repair with biological mesh, which should just now be absorbed.

    I use miralax (macrogal.  Peg 3550) for to stay regular.  I am on opiates for back pain so I have to take something to avoid constipation.

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    • Posted

      My bowels just don't want to work at all ,my consultant prescribed me a tablet which is supposed to be like dynamite and they still didn't want to work my pain has never gone away wether I open my bowels or not

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    • Posted

      I, too am on opiates for lupus. So I'm on Linzess to assist with bathroom motility and on bad days Relistor. If you lady's have serious constipation issues with pain I'd suggest that formula. Linzess is taken before breakfast and then you usually have a pretty regular BM. If things go off the rails as I know they can I add the Relistor which is an injection to tummy and it works fast. No cramping but believe me you go. Your system empties itself pretty well so be close to s restroom when you give yourself that injection. Whoa momma!! I've used it a few times during recovery. Thank god for it. It softens everything so it's not like your straining to go for those post op. And I'd recommend a incontinence pad for at least a couple hours after shot post op until you know how well that repair works. My doc told me I might have leaks in the beginning. I have had some loose bodily fluids but no stool. Just blood and drainage from surgery so far. We'll see if it's repaired my major issue which was pouch and stool collecting there making it harder to pass and squeezing bladder making it hard to fully empty. Now I know I'm fully emptying my bladder. I can feel a difference there. Not sure about other end yet. Too early to tell.

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    • Posted

      Ah, I see.  That does sound different than what I experienced.  I couldn't tell from your original message so I wanted to reply.  Sorry it wasn't helpful.

      if you aren't responding to these meds, maybe you need to see a colorectal specialist.  how strange.  I am really sorry you have to go through this.

      the only other thing I can think of is that if your pelvic floor is in spasm (not uncommon post op) that can cause constipation...  but I don't think it would be as bad as you are describing.

      I hope you get some help soon.

       

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    • Posted

      Hi sorry to hear you are struggling you are not alone i am 20 weeks post op and I am having the same issues as you I am now being seen by colorectal team who are arranging further tests to find out what is causing the pain I too feel like I have been kicked up my butt heavy dragging feeling and pain lets hope we get this sorted we have been through enough x
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    • Posted

      I thought I was going mad I've got the dragging feeling back too, I'm seeing my GPnext week so hopefully she will help, I was diagnosed with a small bowel prolapse 2years ago so I feel it's this not that I'm a Dr but us ladies know our bodies my bowel's sometimes take 5days to work and that's with huge amounts of laxatives finger's crossed We get sorted xx

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    • Posted

      I have only just gone back to work on reduced hours i struggle with sitting so have bought a special cushion it helps a little. One dr says I have pudendal nerve entrapment effecting the rectum and has put me down for nerve block injections another says its coccydinia!, my colorectal dr is doing a repeat proctogram on 2 nd August as before my A&P repair on previous proctogram it did show a slight intussusception but drs say it shouldn't be causing pain. Yes I agree we know our own bodies its just getting them to listen to us and look hope we get sorted soon x

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    • Posted

      I can't get back to work as mine is a heavy job so getting more fed up as the weeks go by keep in touch on how you get on xx

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    • Posted

      Yes keep in touch, I know exactly how you are feeling it really gets you down  I found myself bursting into tears at the slightest thing getting over the operation and still being in pain it's soul destroying. Don't think I could go through another operation so fingers crossed we don't have to. Has matron gone again? I've not been active on here for a while but when I saw your post i had to reply but not seen any posts from matron. If evere you feel like getting things off your chest just message me helps to know you are not alone x

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    • Posted

      I recall matron saying she was moving house so she's is probably busy with that. But hopefully she'll be back on track soon. Hope you get sorted. X

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