Feel as if my brain has been damaged.

Its as if the previous taking of beta-blockers has kept my body in a state of in-action, and that for whatever reason today, my body has deci9ded to produce some adrenalin or whatever, that not only has woken my brain up, but also my heart to the very thing the beta-blockers would have protected it from.  

Thanks to all you Ann's.

And Annie, your comment about it taking months gives me hope, as its about one month now since I stopped the Sotalol, and a couple of months re the Bisoprolol.

Anyway, on the day of my initial comment, my issue with my heart turned out to be Ventricular Tachycardio, I know this because this episode didnt stop once I went to bed, it got so bad that after 12 hours of it, I called 111 who sent a doctor in a car who then called a priority 1 ambualnce to take me to St Georges who kept me in for five days then performed an abulation.

I then went home to find my mother who I have not seen for 16 years and  who has recently taken to contacting me since I asked her if there was a family history of heart desease, well, she must think she can make up for abusing and neglecting me as a child by showing concern now when she couldnt contact me by getting the Police to smash my front door in.

Maybe it was the drunk dream lkike state I still find myself in that then caused me to attempt suicide, so right away another four days in hospital.

Feeling almost like losing conciousness now, but I dare say the lack of sleep one gets in hospital doesnt help along with my oxygen content which should be between 94 and 100, was always keeping the bedside alarm sounding at 91, sometimes as low as 87. No wonder I discribe beta-blockers as making it feel as if my lungs are not working.

I notice on my hospital discharge letter that I am now described as being allergic to Bisoprolol, and the stated side effect for me was anapolactic shock which rather surprised me.

My life is now totally ruined of course and everybdoy now considers me a mental case, will lose my job, but you might get to see me on the Channel 4 show "24 hours in A & E" as they attached a microphone to me and said they would be in touch.  

So I went to see my original Cardiologist at Guys Hospital today in response to the alarming call I received that he needed to see me urgently.

Turns out that this is a late response to the 12 hour Ventricular Tachycardia incident that saw an ambulance take me to St Georges for five days, even though the Cardiologist at St Georges is a personal friend of the one at Guys and spoke to him on the phone in front of me, seems to have not registered. The woman who downloaded the data from my chest device told me they had been repeatedly ringing me the next day, when I wasn't there to answer, as I was in hospital by then.

Still, not a complete waste of a day as I got to ask the Doctor some questions, turned out to be an under-study who I got to speak to, he was very defensive of the Beta-Blockers claiming they have a half-life of a few days so cannot possibly still be affecting me, even when I said all my symptoms started as soon as I started the Beta-Blockers and that there are dozens of people on the "Patient-info" forum who are suffering from exactly the same symptoms as me when they started Beta-blockers!. He does agree breathing problems are a side effect of Bisoprolol , but didn't want to consider they could have a more permanent effect, but when I suggested is it possible that if somebody has a border-line condition such as Asthma that they are unaware of, can the Bisoprolol trigger it and make it worst, he then said yes! Regarding my permanent cough now and constricted asthma feeling, he told me to go to my GP.

I told him since the Ablation I am getting worst and worst heart pains as if its being squeezed or poked with a sharp stick, painful enough to make me wince, he said that wont be anything to do with your heart, must be a co-incidence then that may heart started getting these pains after it was subject to causation then!

I also told him I was still getting the trigger but that at least it would only do it the once rather than triggering a run of tachycardia, feels like my breath is being snatched away and an expanding hollow feeling starts in my chest, I was getting these every few minutes on the train journey in. Once again he said its nothing to do with your heart, must be something else, until that is they downloaded and checked the data from my implantable device, every time I got this feeling last night, I marked it with my key-fob thing, the ECG graph showed a Ventricular Ectopic beat on every mark, so it is still my heart beating wrong whenever I get that feeling. Though its quite an alarming occurrence, at least the Ablation stops it starting a long run of Ventricular Tachycardia, just leaves the single ectopic jumps which are not dangerous. It does show the propensity of NHS doctors to try and reduce their workload and responsibility with whatever they can get away with. So many people on that forum have had exactly the same experience where the doctors deny the meds they proscribed can have further adverse effects!

So, seems the Arrhythmia Cardiologists feel there is nothing more that they can do for me, though they still want me to mark incidences on my implantable device thing, lets see what the Heart Failure Cardiologist has to say on 9th June, turns out he is concerned about the scar tissue that was discovered when I had the MRI scan, though it cannot be from a heart attack as today's doctor told me I have no blockage at all in my arteries so a heart attack wasn't possible.

Latest update is that it is now 11 months since they took me off beta blockers, my cognitive impairment is substantially worst, the first hour or two in the morning I am not to bad, just a bit fuzzy in the head, but by mid-day I find it rather difficult to walk in a straight line. 

The NHS has fobbed me off all this time claiming I got "anxiety" the same day they put me on beta blockers, but I got a nice cardiologist to listen to logic in December, and he agrees there is a possibility beta blockers permanently disrupted my Autonomic Nervous System, so I actually have my first appointment to see a Neurologist next Tuesday, hope its not going to be a money saving sort! 

Before I even saw the Neurologist, I had an Autonomic Blood Pressure test that any GP could have done, take blood pressure sitting down, stand up and take again after three minutes, it should be about the same once a correctly functioning Autonomic Nervous System adjusts things, mine blood pressure went down enough to qualify me for Orthostatic Hypotension.

Saw the Neurologist who confirmed what I had been trying to tell my GPs and cardiologists for months, I have Autonomic Instability.

She informed me of a whole host of tests I will have, that was back in February, it is now half way through July, when I rang up I learned there is a 5 month waiting list for tests, hope I get them soon as I am deteriorating still and my GPs will only allow me one investigation at a time.