Feeling down about being ill and update from last posts

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Hi everyone i have not been doing so well over the last few days. I have been really feeling very down and yesterday was crying the whole day. I phoned to try and get my results about my mrcp to see if stones are stuck in the bile duct but they still have not checked it all over and want to check it again so wont be hearing back till next tuesday about it. I have a date for surgery which is the 2nd of march but im still on this emergancy list so they are going to try and get me in before then. I just feel so down at the moment waiting around for results and waiting to see if i can have my surgery before then or if ill have to wait and being in this pain all the time and for this long i think has just really got to me now. Im on strong pain meds which seem to not be working as well now. Im just feeling so down and upset of being ill for this long and still having to wait then have surgery and will still have to recover aswell. Sorry everyone for being so down on this post its just really been getting to me over the last few days x

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  • Posted

    Hi, Carmella,

    I can understand how you're feeling!  Lots of pain meds seem to work less well the longer you take them.  And, I think that some people get depressed because of them, too.  Then, they also have side effects that can be troublesome, so doctors aren't likely to increase the amount you can take.  You have been in a lot of pain, and I imagine that you just want this surgery over and done with.

    But your surgery will happen!  Then, you'll be able to concentrate on your recovery and you'll be healthier. xx 

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    • Posted

      Hi lynda thank you so much for replying i really needed the support today as been feeling so down with all this. I just get so qorried with all this pain i am having that there is not more going on but i think its me worrying so much as i am in so much pain all the time sad ive had my blood tests done again today at the hospital so should get them back next week to. I just really hope by having my surgery i will feel better smile and be able to have my life back thankyou so much for your message xx

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    • Posted

      You're very welcome!  I know how it is to be in pain and anxious about your health!  It's so very wearing wondering, "is this really what's wrong?"  And all the stress of trying to keep going when all you want to do is close the door and go huddle in a corner!

      It does get better!  

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  • Posted

    Hi Carmella,

    I know its hard and its so frustrating not feeling yourself. I have days like this also. It really is debilitating. What gets me through bad days is just thinking there are people in worse situations than me. just think after your surgery (which at least you have a date) you will feel 100 times better. Try not to get upset. You said the pain is managable now which is good. I recently had a flare up and it was agony but what really upsets me is having to take so much time off work because of it. Hope you feel better soon. xx 

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    • Posted

      Thankyou so much jojo and yes its so frustrating makes me so sad feeling ill everyday with out a break from it. I feel sorry for anyone going through this or anything like this its horrible sad i just want to get my life back to how it was before all this happened sad hopefully after the surgery i will start to feel better. thankyou again for your reply xx

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  • Posted

    Hey Carmella,

    Your allowed to have low days as you are dealing with so much, so seeing my daughter go through it I think you are all so incredibly inspirational on how you do all cope with so much. Hopefully they will have a cancellation and get you in sooner.

    Don't know if the hot baths or heated pillows help you or if you have tried them, but they do help her sometimes.

    She is now on Freefrom food & that's helped as well.

    Your not alone and you are coping incredibly well. X

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    • Posted

      Thankyou so much carol and i feel so sorry for your daughter going through this aswell. It is the most horrible thing ever feeling this ill all the time and being in this much pain all the time. I have tried everything now but not much seems to work anymore. Im on a low fat to no fat diet and that even seems to not work now. My pain seems to be getting worse aswell as its spreading from upper right all the way down to lower right aswell now. Ive told the doctors but they dont seem to say much really. I had blood tests done at the hospital today so should hopefully get them back next week. I just hope they can try and get me in before then like you said its so hard to live life like this everyday in pain for so long xx
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    • Posted

      Hi Carmella,

      I truly feel for you, it is excruciatingly painful going on my daughter. But your right the pain killers seem to stop working & the oramorph whilst it does work if we can keep it in her it doesn't always work. In A&E they have to give her IV 10mg morphine & busscopan that is the only combination that works . Once they get her pain under control usually after 2 lots she can go back home and is normally ok for a day or 2.

      You will get there but got to say the gallbladder issues are pure evil for all of you.

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    • Posted

      I really do feel sorry for her. ive been in hospital twice and A&E about 7 times and doctors all the time sad it really is the worst thing ever x

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    • Posted

      Hi carol i forgot to ask has your daughter had her gallbladder out? and if so how did the surgery go., as im waiting for surgery and would like to know how it went and abit more about the surgery? from carmella x
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    • Posted

      Hi Carmella,

      She suffered for 3 years horrific pain & sickness, no one knowing what was wrong then one Dr did a test & her gallbladder was only functioning at 16%, at the age of 20 that's really poor.

      So tomorrow is day 14 post op after gallbladder removal. It was keyhole but that still means they go through core muscle so you really do need to rest up afterwards, outside heals up a lot faster than the inside, my daughter forgot that bit.

      Also as she was still having pain they told her go dairy free then on free from foods to help with the digestion.

      Since that so yesterday evening and today and this evening , she has no been sick and has not had the horrible pains, the Dr's have said it can take up to 5 weeks for the body to settle back down and you feel much better in yourself.

      She has really good days then a couple of rubbish ones but we had not cut out the dairy or gone forefront right from the start or prior to the op, if I'd of known more I think I would of changed her diet sooner to be honest, worth trying anything.

      her tummy is now not as bloated as she was before the op and just after, so that is settling down & she found straight after the op that peppermint tea helped with the gas.

      Its difficult but we can see the start of changes to see her two days straight no pain is unheard of, so it is so worth having it done.

      Everyone is different but some of the tips from other people on here really helped us cope and look to other options & the Dr's have been good at the new hospital A&E.

      Rest up don't over do it after the op and listen to your body when your tired sleep.

      you will get through this and you will feel so much better once fully recovered.

      x

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    • Posted

      I feel so sorry for her to have to go through all of that. how long did she have to wait for surgery Im 28 and ive been waiting for months for my surgery ive got a date for the 2nd of march but they are trying to get me in as an emergancy so might be quicker and hopefully it will be so i can start to get better. Im so happy your daughter is feeling alot better now. How long did she have gallstones for and what were her symptoms when she had them? I have lots of gallstones and have had a mrcp done to see if any are in a bile duct but im still waiting for results. I also get alot of symptoms with my gallstones i get right side upper pain that radiates to lower stomach pain and also radiates to my back upper and lower. I also get very tired and weak almost like flu type feelings aswell. I cant hardly eat anything now and have been put on low fat to no fat diet and no dairy but i still feel ill everyday even when i eat low fat to no fat foods sad hopefully my op will go well aswell and thankyou for the information about the surgery xx

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    • Posted

      Hi Carmella

      Bless you it's horrible & very understated for all the pain & illness it causes.

      She suffered for 3 years Drs said she was attention seeking & wouldn't believe her. In the end I took her private she had a gallbladder fat functioning test 20/12 & that showed it only working at 16% but no gallstones apparently it not functioning is just as bad as it collapses, swells & blocks.

      She saw her surgeon the 5thJan & was down for surgery on the 9/2, but she also went on the cancellation list & had it done on the 26/1.

      I don't think anything can prepare you for gallbladder, hiatus hernia or acid reflux issues they are all independently horrible & cause you so much pain.

      Being on the cancellation list gave her hope & she did get in earlier.

      She slept a lot prior to surgery & does after I think all the pain you are suffering takes its toll and she says she is drained with nothing left that's how she feels.

      If your in pain go to A&E as many times as you have to before your surgery, they know what you need to have done and they know how Paiute is so at least they can give you pain relief that will work.

      Don't suffer.

      All the pain symptoms and areas are where she gets it before and after as it has to settle back down.

      She has now had 3 days of no intense pain but aches all over due to the op & normal recovery going on.

      I feel for everyone going through this it's awful to watch let alone actually be the person going through it.

      Thank goodness you have been diagnosed the bike ducts is one thing they said it could be with her if it doesn't settle down but I'm hoping it will.

      Hang in there but don't suffer when hospital can get you through the really bad episodes easily.

      X

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    • Posted

      poor girl going through this for 3 years its horrible to go through it for a week then years. Ive had a mrcp done and waiting for results to see if there is stones in the bile duct before they do the op because im in so much pain all the time they want to check for it but i wont get the results back until next week sad its just such a waiting game waiting for this long while you feel this ill sad im so happy your girl is feeling abit better now and yes the pain takes it out of you i think thats why i get so tired all the time and feel so weak sad i just hope when i have this op it makes everything back to normal again and i can have some sort of life back again. thankyou so much for your messages they have reallyh helped ill keep you updated xx

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      Im also going to the doctors today to tell them ive got new pain aswell so ill keep you updated on what they say hopefully they might have some test results back but i dont think ill get them back until next week. ill keep you updated anyway xx
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