Fibro Sufferer since age 17 - 37
Posted , 5 users are following.
Hi. This is the first time that I have ever written about my Fibro. I was diagnosed about three years ago. However, I know for certain that it started back when I was 17 years old. I used to twitch my hip around (which I still do) to try and alieve pain. My mom used to say \"Amanda, stop doing that!). I also was taken to the doctor for \"a burning sensation\" in the middle of my back. I am 37 years old and need two knee replacements. So, with the agony of walking on two destroyed knees, I have to function with this Fibro and it SUCKS! I have been raising two children by myself since the death of their dad nine years ago. That also SUCKS! I am not trying to play a pit party, but today has been really horrible. Did I mention that I have also run my own business for the last ten years? I am pooped! Some days I feel like sleeping all day. Today, I have had the burning and pain in my shoulder, neck, mid back and of course my knees, (which the doctor hasn't figured out whether the pain in my knees is the severe osteoarthristis or the Fibro). Really doesn't make a difference to me. I have been taking pain killers .. most recently MS Contin for about six years now. I recently got put on Lyrica, which I have been paying for out of pocket because insurance says it's \"too new\". WHAT? There are days that I wish I had someone to help me. There are days that I think I have to give my business up and go on disability. I am so lonely and confused with this disease. No one really understands, nor do I think they want to. I so wish that I had someone to share of my life with that could hlpe me with this disease. I don't want to let my children down, so I fight through every single day. Rarely, speaking of the intense pain that I am in. You know it's funny. Now that I have been taking the meds for so long, when I am stiff, achy, and pissed off with pain, my father actually says... \"I really think you should stop taking the meds\". WHAT? I am thinking of moving to warmer climate. I really don't think that I can handle another PA winter. I will wait until my oldest graduates in two years. I think my son would move. He loves the GATORS! I have to do something. I just don't want to lay down and give up... because that would be bad. Take Care...
0 likes, 8 replies
Squires
Posted
I am Tess 52 years old and was diagnosed with it in June last year but believe it had been going on for years. Was also backwards and forwards to drs with one ailment after another. Did find out I also have OA in my knees, toes, ankles, wrists and fingers. Both of not very pleasant conditions. You have had it rough and you should be proud of yourself how you have kept it all together for your family. :lol: Must have been extremely difficult after losing your husband.
Don't be alone with this condition this is what this site is for you meet other people and let your feelings out. We all have a good old rant on her not just over the fibro we chat about family life to the good and the bad. :lol:
Some of the others will probably come on and support you as well. They are Ses, Linda, Di, Lindy we all come on quite regularly when we are feeling ok and not busy with family life.
You sound to be like you are a strong person and gets on with things. Other people just don't understand even our nearest and dearest. We all do understand so please come on anytime and catch up with us. Just knowing I have some support on this site has made it easier for me to deal with this terrible condition. :cry:
Well take care and hope to hear from you again soon.
Love Tess x x
paddy
Posted
I`m Linda age 57 going on 100 :!: I was diagnosed 2 yrs ago but like tess am sure i`ve had it for years :!: I did actually give up my job (which I loved) a year ago, I just couldn`t cope anymore. I am my husband`s carer and it just all got too much. I am Mum to two grown up children, my daughter also has diabetes and so life isn`t exactly easy :!: lol
We all know what you are going through and like tess says we support each with all aspects of family life not just the fibro. I was so down when I found these guys on here last summer and they`ve all been such a support I couldn`t do without them :!: We all have a good rant from time to time, but the main thing is we know that there is alwasy someone there to listen.
Hope to hear from you again soon
Love Linda
Skye
Posted
Welcome...
Im Lindy, 42. I haven`t had a diagnosis of Fibromyalgia, but have many of the symptoms. Been back and forth to doctors, rhuematologists, cardialogists over the last while, and still ongoing. So, I keep plodding on.
Jeezo chick...u have it tough! I take my hat off to u. U should b proud of what u have accomplished, despite the heartache and pain uve gone (going) through. I know how difficult it is to bring ur kids up on ur own, and hold down a job to keep the money coming in. I was on my own for 10 years with my son (now 15), until I met Ian 2 years ago. Thankfully, I didn`t have to contend with the pain u have. I don`t believe for one minute that u would lay down and give up...u sound light a fighter. So, keep those boxing gloves on Amanda..
Come on here and share ur thoughts, moans and groans, laughs.
You take Care of yourself.
Lindy..x
dianepaterson
Posted
Hi my name is Diane( Di to my good friends on here) i have read all the girls posts to u and i agree with everything they say especially lindy be proud of what u have got through babes... we do understand what ur going through as we suffer everyday.. im now on morphine slow release and oral morphine for when i cant stand the pain any longer.. i was just diagnosed in sept but i feel i have had this since my kids were small.. they are 22,17,16. im married so suppose im lucky to have john though he has heart probs but still works( which he goes back tomorrow folks). i also have oestoarthitis in my knees and think i need to go back to doc as they are really playing up but i know they will just tell me to loose weight... i find it hard to go on some days but like u i have to as i couldnt do that to my kids.. im in a lot of pain just now(period time) which makes it worse.. my son is just about to take me food shopping as there is nothing in house.. and im dreading going as i know when iget back i will be worse...
so dont be afraid to come on here when u want.. to moan laugh cry or just need a friend.. we are all here for each other on here and its my life line.. gently hugs to u and all my good friends... luv di xx
Squires
Posted
How are you feeling today! Hope not too much pain with your OA and Fibro. I see you have met some of the other fibro girls now on the site.
Don't forget to come on and have a chat and don't be alone.
I am away until Monday so chat with you again soon.
Love Tess x x
dianepaterson
Posted
well it has been a def that my dear aunty has motor neuron disease and our whole family are devasted....... so for u all that didnt realise.. my mum her brother now dead) now her sister have all had it... so im now thinking of going to tested for it.... i dont know what to think....... i just had to say it out loud so thanks so much for listening
lots of hugs.. di xx
Squires
Posted
Sorry to hear your sister has it now. Try not to worry to much and keep positive. Can't be easy for you though. Probably is a good thing to be tested if you are worried as you will spend all your time worrying if not and will make you ill. :cry:
Let us know how you get on and will be thinking of you.
Will catch up with you when I am back on Monday.
Take care
Love Tess x x ps a Big hug for you. x x
Skye
Posted
Sorry to hear about ur Auntie. Thats awful news.
As Tess said, try not to worry but its easier said than done isn`t it.
I don`t know what to say to u , but if I can be of any help whatsoever, just call on me.
A great big hug for u.
Take Care
Lindy..x