1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Fibro, Vit D, Iron...

Posted , 5 users are following.

kyroar
kyroar

ive been diagnosed with anaemia and vit D deficiency, which might explain some aches and pains, but neither of the Drs ive seen will say 'Yes' when i ask about Fibro..,they gave me supplements for the other problems which I've started today, but could take a while to kick in..so what the hell am I meant to do in the meantime? I have asked this morning to be referred to a rheumatologist because im sick of being in pain and not getting anywhere with the Drs....Am I doing the right thing? Don't know what else to do anymore!!!

1 like, 7 replies

7 Replies

  • jeanne81532
    jeanne81532 kyroar

    Posted

    Hi kyroar, yes definitely the best thing is to see a rheumatologist. Supplements MAY help but to get a proper diagnosis you need to see the expert. You may have to wait a while for an appointment so you will have to try to be patient. Try not to stress as that's the worst thing for FM. And look after yourself; I find warm baths helpful for the pain, or hot water bottles. Everybody finds their own way of dealing with the many and varied symptoms. Are you taking any pain relief? You will find a lot of support and helpful advice on this forum. xx
    • kyroar
      kyroar jeanne81532

      Posted

      ive had more than my fair share of stress and back on antidepressants after a long break but i think i need to give myself a kick up the backside an stop worrying about what others think and take care of ME! I have the patience of a saint so the wait won't bother me lol..also if i get in my bath, i cant get out cos i just dont have the strength anymore...yes i take whatever pain relief I can get my hands on but nothin actually works and ive suffered awfully with a bad hip since Thursday which gave way causing me to fall twice an now im covered in bruises...cant win xx
    • jeanne81532
      jeanne81532 kyroar

      Posted

      Oh bless you. I've been on antidepressants for years, which I've been told I should just take forever, and not attempt to come off them again. Shame you can't have baths, I find it helpful although sometimes I do struggle to get out because of lack of strength. Hot water bottles help too, or heat pads, which I've been thinking about getting. Yes definitely stop worrying about what others think and concentrate on you. Have you been to a pain clinic? I found it helpful to see a pain Consultant and they run courses which may be helpful, such as CBT for pain management. Good luck and take care! xx
  • leona18728
    leona18728 kyroar

    Posted

    Hi yes you are, Sorry to hear your not getting much satisfaction from your GP's

    I was diagnosed with fibro about 5 years after being diagnosed with Lupus, but I beleive I had all the symptoms 15 years before diagnosis, and that was 15 years ago,

    Like you I kept going back to my GP most of the time I felt he was fed up with me and kept telling me it was viral,

    But got there in the end, there is no single blood test to show fibro unfortunately,

    But your right to ask to be seen in rhymatology,

    I understand your frustration but keep strong, try not toget stressed as this makes fibro worse

    All the best x

    • kyroar
      kyroar leona18728

      Posted

      thanks for your help leona..its such a waiting game no matter what we do and I can't believe how many ppl actually suffer with this and for how long before diagnosis! i will keep pushing for answers till they get sick of me lol xx
  • Bee70
    Bee70 kyroar

    Posted

    Hi Kyroar

    Unfortunately, it takes a while to be dignosed with Fibro.....but I too was low in Vit D and Iron and had to take tablets over a three month period. Although my levels went up the pain levels did not go down.  Fibro is such a complex condition that even the Drs don't know what treatment works best.  It's all trial and error !

    You have to cover all areas to eliminate other possibitlites.  Hope you get answers soon. lol

  • grannylee
    grannylee kyroar

    Posted

    It can be , it is rather very frustrating getting some doctors to recognise fibromyalgia, I have both that and pernicious anaemeia along with a host of other things fibro brings when it moves in, inisist on seeing the rheumatologist and ask questions, write down a few and take them in with you it helps you keep focused and make the most of the little time you get with them, best wishes xxx
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.