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Fibromyalgia

Posted , 5 users are following.

beverly64443
beverly64443

Hi I'm Beverly im sick of every thing I was told from my drs that I had Throid prob. I was ok then I had lupus an then I stated to get really sore after that an I used to do a lot of things an I used to hang out with my friends an not anymore im walking with a walking beause im in just to much pain as of know I can't walk that much an lots of swelling up an the drs say it's noting  an now I have fibromyalgia an I just can't do the things like I used to im told hand aped I just don't like it at all 

1 like, 10 replies

10 Replies

  • ingrid19972
    ingrid19972 beverly64443

    Posted

    I sympathise with you I have had fibromyalgia for approx 4 ,years and I'm doing less and less. My friends go to keep fit and other things and I just cant do it and really can't be bothered. Never seem to be out of pain and it does get you down. My friends ask how I am but don't think they.really understand how you feel that's why I like this site
    • Flowerlady
      Flowerlady ingrid19972

      Posted

      Hi Ingrid

      Know exactly how you feel, I were diagnosed in Sept 2011 and I hardly do anything now and I feel so guilty for it. I spend most of my time on this site, it's brill. I do try and go to the gym three times a week if I can as it keeps me mobile. Yes the pain does get me down too, I feel so sore today. I keep thinking I have something else like Lupus or ME .No one every believes how we can be in so much pain can they..Keep coming here..Regards...Anne....

  • gillian81509
    gillian81509 beverly64443

    Posted

    Until it happens to them or a close relative it's regarded a skivers illness a western malaise

    Have you noticed it's the busiest it seems to get at

    What annoys me are those who say they've got it and havnt

    I'm fed up I've had it since 1992 but recognized from 98 slowly got worse I still do a lot and pay for it but I'm on my own so I answer to no one I know my snappy answers and constant moans would soon be the end lol

    We're the fibromyalgia musketeers !!

    • christine26761
      christine26761 gillian81509

      Posted

      Well said Gillian.....only those with it know it's real and how bad it can really be..I am just sooooo blessed to have an understanding husband..I've had it for 22 years...know what you mean about diagnosed dates being sooo different. Great Supportive Site this is, especially for newly diagnosed people....well done you..be blessed.:-) xx
  • christine26761
    christine26761 beverly64443

    Posted

    Really feeling for you Beverly..have you been diagnosed for Fibro from a Rhumotologist or other specialist..I ask this as many doctor GP's are not versed in this condition..things will get better precious, I've glad for over 20yrs also 3 other autoimmune issues I take one med a day at nighti @-8.30pm before bed...it really helps with a good pain free nights sleep making it sooo much easier to handle the next day really good..it's Amitriptilyne ..it does take a little while to get the dosage right...I would just sleep forever if my hubby didn't wake me up every morning..once up..I'm fine...it numbs the pain at the nerve end and stops it from travelling from nerve to nerve throughout the body..do hope you get out on something that helps precious...really feel for you..:-) xx Australia

    This is a great site for knowledge and encouragement..write as often as you need to, we all help each other, I guess you could say...we all need each other...also remember we are all different with Fibro what meds work for one well, may not be so for another..it's all trial and error..:-) xxx

  • shazmill
    shazmill beverly64443

    Posted

    Hi there. It is hard dealing with fibromyalgia. I have had it since 2004 so 20 years. After all this time I still have really bad days. Last Tuesday pains kicked off. I have been in my home not being able to go out or drive the car. I hate lying around the house but, I am in so much pain that's my only option at the moment. Say doctor on Saturday, she upped my meds snd gave me steroid injection. Hopefully I will see some improvement soon.
    • christine26761
      christine26761 shazmill

      Posted

      Horrid flare ups....feeling for you precious, it just won't give up...will it??hope your sorted soon..:-) xx. Australia
    • gillian81509
      gillian81509 christine26761

      Posted

      My fault had a brilliant walk loved it but omg I suffered

      couldn't do anything useful yesterday went to professional meeting feeling like 104 ugh then couldn't wait to sit down meds relax today went out for another walk enjoyed snow falling then onto art class got back looked at house quick dash around supper on , and was Sat feeling awful when son came in ploy worked he did supper !!! Moaning about state of house tough titty

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