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fibromyalgia and a weight less feeling

Posted , 9 users are following.

grahammolyneux
grahammolyneux

Hi all.

I keep getting a strange weight less feeling like a drop out like the feeling you get as a swing reaches its highest point and then changes direction then it's followed by a buzz of all my main pain points.

Has anyone else had this 

1 like, 17 replies

17 Replies

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  • debbar
    debbar grahammolyneux

    Posted

    Omg yesterday I was in so much pain.  My pain meds didn't work.  I wanted to cry.  I had to pick my grandson s at school.I was so out of it, I kept losing things. I finally laid down at my daughters and her comes my daughter, can u hold addie mom.  Oh ure not feeling good!  I love addie with all my heart but I didn't feel like holding her! 

    This morning I was sleeping in, and my grandson calls. Grandma I left my backpack in ur car, can u take it to school.  There goes sleeping in!

  • Xxxxxtttttttttt
    Xxxxxtttttttttt grahammolyneux

    Posted

    Yes! I have never known how to describe it but that description you have given just about sums it up! Its awful, no idea why it happens though. Are you under a rheumatologist? 
  • tiswas24537
    tiswas24537 grahammolyneux

    Posted

    never had that but i do get lightheaded .

    which is a simuliar feeling you describe to being on a swing.

    have u had your blood pressure checked .

    • grahammolyneux
      grahammolyneux tiswas24537

      Posted

      I did a few weeks back all was ok then but I was getting the same feeling a long time before that.

      Living on the Isle of Man it is a little difficult as we don't have all the specialists here so we have to travel to Liverpool, then when you get there everything is rushed through in one hour.

      I am being considered for their Pain Management Course which is 16 days with the right people so hopefully I will learn a lot there.

    • tiswas24537
      tiswas24537 grahammolyneux

      Posted

      good idea hope it works . i live in yorkshire and belive me theres not much on offer. except being pumped full of pills .which is not right for me.

               tian

  • CrazyDaisy88
    CrazyDaisy88 grahammolyneux

    Posted

    Oh my days, I know that feeling, it's awful.  I usually hold onto so etching until it passes otherwise I think I'd fall over. It can make me feel kind of sick too!

    Isn't FM so much fun 😏

  • Rainbow-Bright
    Rainbow-Bright grahammolyneux

    Posted

    Hello,

    Oh yes I can totally relate to this, another lovely symptom of Fibro!

    I just have to concentrate on my breathing & wait for it to pass so that I don't get get panicy. The worst time is when it happens when I'm driving somewhere & it really is quite scary then :\ Sending fibro Hugs to all you suffers smile

     

    • tiswas24537
      tiswas24537 Rainbow-Bright

      Posted

      yes i start to panic because its really quite scary , but just like you i try to focus on my breathing until it passes .

      i think i get scared because i had a really bad inner ear attack in 96 it just came on ut of the blue , just collasped on floor and couldnt get back up , beads of sweat were ousing out all over and i couldnt move my head with out everything spinning ,it was horriable had to call an ambulance . so evrytime i feel light headed i panic in case its that again. so far and touch wood its not happened again.

                     tian . in yorkshire

  • Carinaeta
    Carinaeta grahammolyneux

    Posted

    graham, read the symptoms for "simple partial seizures" in case that's what you are having.
    • grahammolyneux
      grahammolyneux Carinaeta

      Posted

      Carinaeta,

      Thanks for the advice, i don't think that's it but i will put it on my list to discuss with my Dr' .....

  • Tigger_the_Wing
    Tigger_the_Wing grahammolyneux

    Posted

    Oh, I frequently get that, happened just this evening. I was walking (well, hobbling more like!) back to my room from the kitchen and was in so much pain I had to stop and sit down for a while. When I stood up again, I got exactly that sensation - I thought I was going to drop my glass of milk. Buzzing everywhere, and felt like I was floating, detached from the floor - I had to lean on the door post until the feeling went away.
  • sorelin
    sorelin grahammolyneux

    Posted

    I get that feeling exactly. Mine also feels like being in slow motion and the floor just rushes up. Its horrible and I sometimes smack my arm on the table if I am over it or the counter tops in the kitchen. I have burnt my arms on hot irons if it happens when I am ironing. I have recently started to get the feeling in my mouth and jaw muscles and my words come out stuttery for a moment. What else does FMS have in store...or maybe its the meds. I am on pregabalin. Any ideas? Keep smiling.
    • grahammolyneux
      grahammolyneux sorelin

      Posted

      Yes I get the slur or stuttering words and can almost hear it as it happens,

      I am on pregablin and last month found out that the hospital consultant had me on a dose that was not recognised by the "British medical asociation book of knoledge" I was taking 3 - 300mg capsules per day but the medical bible states a maximum of 600mg per day so I've been overdosed for 11 month's

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