Fibromyalgia and spondulosis of the spine

Posted , 6 users are following.

I have had problems with my spine and neck for years now hut recently the pain has been spreading.  I have now been diagnosed with fibromyalgia.  What I want to know from other sufferers is does this only get worse over time or does it stay the same?

0 likes, 5 replies

5 Replies

  • Posted

    Hi.

    I started like you and also have just been diagnosed. I find I have to take each day as it comes. Some days I'm brilliant, others I'm not and I think it's coming to terms with the fact you can't do what you want,when you want....like I used to. It's hard, but I now understand that it's not in my head, which was the hardest thing to make people understand. There are some lovely people on here who will help you move forward. I find meditating helps me tremendously. It helps me relax, which in turn makes me cope. My back goes into spasms, along with other body spasms...I cope now I understand that I have to relax more. The more I push myself the worse I am...so I listen to my body more than ever now. 

    Good luck and hope you have a good day tomorrow x

  • Posted

    Hi kathleen

    Have a look at my posts in the Backache section.  esp. Mycotic arthiritis.

    It's just a guess, but it could be responsible for many ills.

    The symptoms of Fibromyalgia are similar to the ones I experienced.

    Best of luck

    Max

  • Posted

    I believe it can get better, it can get worse and maybe it can stay the same.  It's a difficult illness cos it's different for each person so it's hard to say what your future is.  Some say it gets better if you're nice to it (don't keep pushing yourself).  The advice I was given is that you have to keep it moving.  In other words if you stop doing things altogether Fibro likes that and will continue to try to stop you doing even more.  However, I believe there is a level when you are asking it to do too much (the boom and bust theory).  I'm very good at the boom and bust!  When I feel good I try to do everything which I want / have to do, consequently I then pay for it physically & mentally. 

    You need to learn what your body can cope with.  Rest when it needs it and physically keep it moving when you can.  You're suppost to not push it to the point it hurts (if someone can teach me how to do that please do). Good Luck

  • Posted

    I have pain in my neck and it spreads to my shoulder and then down to my elbows. The pain gets to the point where I cannot take a dinner plate out of the cuboard I then get a block done. What that is is injections(for me it is 7 of them) in my neck and nerve trunk at the top of my shoulder. This is done with me in twilight sleep. It really helps. The last one I had was in Nov of 2013 and I am just now starting to hurt some. My doctor says that due to the extreme case of Fibro that I have the disease is attacking my joints and of course all of my nerves. You will discover that you have limits (everyone is different) as to how far you can push yourself. If you push yourself to far then usually the payment for that is pain all over and tiredness for a day or two. You can live with this disease however. Keep a positive attitude and watch for signs that you have or are reaching your limit (listen to your body). The signs for me are reversing words when I am talking (my husband says this one really helps him monitor me) possibly getting irritable for no real reason and fatigue and weakness or extreme sleepiness. When I start having any one of these or combination of these signs I know it is time to stop whatever I am doing and I am done for the day. If I choose to ignore these signs and I keep doing what I am doing (usually because I want to finish something) then I know that there will be a penality. It is a choice. As far as if it gets worse over time that differs from person to person. I was diagnosed with Fibro when I was in my 30's but it went dormate. Then it decided to come back when I was in my 50's and it returned with a vengence. I hope this helps you.
  • Posted

    I am afriad hun it dose get worse sorry to say ive only had it since januaty of this year and its getting worse hun

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