Fibromyalgia Pain (New)

oh you'v got that as well bloody annoying that need to pee every 20/30 mins .even changing to decaff tea has only helped a little

 

I have changed to green tea but its made no difference at all  In fact to be honest - it may even be slightly worse  Sticking to water mostly now 

My cousin works in health food shop and has suggested that I start using zerrazyme   Have you any knowledge of this at all?

not heard of this one i am in the uk maybe your in another country.

iv heard of serpeptese . but not zerrazyme

Yeah  She says they are one and the same thing apparently   May give it a go  Am hoping it does something for the pain cos the Amitripylene and paracetomol does nothing   Not even sure what they are supposed to do to be honest 

 

dont punish your self hun ,if you prefer tea or coffee have it it makes no differnce what you drink ,iv tried cutting down at night , i still  keep getting up but just for little drops instead of larger amounts if i drank normaly 

just as annoying . 

Thanks for the advice   Its nice to have someone to talk with about all of this    Confused about a lot of how I feel and nobody seems able to give me answers   Thanks again 

iv used serpepetese for several months i didnt find they did much .

try D- manose not sure its spelt quite rigth but near enough so should be able to find it easly enough , and i swear by magneisum oil and bath flakes ,.

 

Thanks   I will definitely give them a go

Thanks Anne   Its nice to be able to share   My husband is great but says things like - how long will you have this?   and Its not worth making plans in case you have a really bad day - I know he loves me and I know most of it is my fault   I was only diagnosed recently and I am not really sure of the illness myself and find it really difficult to explain it to others  Thanks again

iv had it 10 yrs  and still cant explain it to people hun .

i know what you mean about people saying including husbands its not worth making plans in case your not well enough.

its so dishearting

My partner came to a support group with me only last week and it finally sunk in that this was life long, not neccessarily all the time but it will be around in some capacity.  He admitted he'd completely misunderstood Fibro and was much better informed now he'd talked to professionals and other fibro fighters and their partners.

You always give up the things you love first and sacrifice your own happiness, so if you can work as a team to get some of this back then great.  

We're now learning to be positive about making plans and we are trying to get some long term goals together to have things to look forward too as this positive enforcement can help fibro too.  

Hi Wendy, it made me sad to read what you said "I know most of it is my fault". NONE of it is your fault Wendy; none of us have asked for FMS. I struggled for a few years with pain and fatigue, and only after diagnosis have I 'allowed' myself to feel that I need to be kind to myself and don't need to force myself to do things I can no longer manage. My husband has accepted that this is how things are, although I'm not sure he completely understands the condition. Take care. Jeanne x

you done good kid . 

Thanks, it's baby steps - I count these things as a win!...trying to get my mind sorted and hoping the body follows at some point 😀

school of thought is that fibro is triggered in the prehistoric part of the brain that deals with the flight or fright triggers

,and when we have a trauma or alot of stress in our lives some people get the trigger stuck on flight and produce to much of the chemicals that deal with it  when its not needed and it builds up in our muscles etc causing pain and  fatigue 

Thanks! x

Its sad   This is the time of year that we are normally planning our holidays but with finances being as they are ( I was main breadwinner as husband a lot older than me and retired) and my health at the moment, its like there is nothing to look forward to  On top of that my friends say I look well and dont understand this illnes at all   Frustrating and disheartening!! 

I feel your frustration. I was the breadwinner too and since 2012 we haven't been able to have a holiday or even a nice meal out as we are fighting to keep the house and fending off creditors daily. I really don't think this helps with my Fibromyalgia.Tis has said in a few posts there is a nasty circle of negativity thats really hard to break and is so right, the cycle seems impossible to break when other external factors impose on our health.

All I can suggest is you do what we're trying and look for the positive in the little things, going to the park, a picnic, a day trip on the train - all cheap do able trips that keep you going.

My friends and family see the "normal" me because often I only visit on good days and they don't see the housebound days or the days I can't force myself to do more than brush my teeth, but I'm not ashamed to put them straight. Take the compliment you look well, mine are always quick to point out when I look like death!

xxx