fira + rhuemtiod arthritis

Posted , 2 users are following.

Hi my name is lin iam 54 I was 1st diagnosed with R A 3 yrs ago and still trying to get this under control but now 5mts ago the hospital has said my pain is down to firba which i believe i proberbly had prior to RA I also suffer from Severe Osteo A in my spine. I get so frustrated when all they seem interested in at hospital is whether iam fit enough to resume work ha iam in pain 24 - 7 and exhausted most fo the time but I force myself to carry on i smile all the time pain or not have 2+bump Granddaughters and dont want them to see me down anytime have got a great fella who is always there for me even though he is going through hell his self has just found out his mum has term cancer abless her sorry for babling on.

0 likes, 8 replies

8 Replies

  • Posted

    Hi Lin

    Don't worry about going on its good to get it off your chest and talk to others that understand.

    Its not very nice having pain all the while but like you say we have to carry on. I am the same age as you 54 and I also have two granddaughers. Its good you have a partner who is supportive. Not very nice for him at the moment with his mum and terminal cancer. I do know how he feels as just been through the same experience myself with my Dad having terminal cancer. He died just over a week ago and now going through the process of sorting his flat and waiting for the funeral. My aches and pains over the last couple of weeks have been a lot worse and feel this is due to the added stress with my Dad and also my daughter who has been in and out of hospital over the last couple of weeks.

    Now it is me going on! I am sure Linda and Lizzy will come on and talk to us as well. We all try and support each other.

    Come on again and join in our chat its not all about fibro!

    Tess

  • Posted

    Hi Lin,

    we have all been there with our condition and dealing with cancer, my brother just passed with bone cancer, he was only 51, and left a young family, but we are there for them, as will your partner and you be there for one another and support your partners mother.

    I had a tough time when I was dealing with fibro and having a double mastectomy done, it was hard, when your dealing with chronic pain and acute surgical pain, while having no energy at all, but we managed, by pacing myself and not being afraid to ask for help when getting in and out of bath or getting dressed and undressed in the evening, when you feel like a small child again and your friends and family have to undress you....

    It is good that your partner is supportive to you, as so many people I have spoken to that have Fibro, their partner is like their GP - dont understand what the problem is, because we dont look unwell or in pain.,,

    as was mentioned before we are all one big family on here. so come and have a natter with us, about anything and make us smile again.

    xxx

  • Posted

    Hi Linnor

    Welcome to the fibro site. I'm liz I am 45 and have 4 children.

    I was diagnosed with possible fibro about 16 months ago, I also have SLE and Sjogrens syndrome.

    Having other conditions on top of fibro can make life very tiring.

    How has your day been today.

    Hi Tigger I hope you have had a good day too.

    I have no idea how we are surpose to pace ourselves when we have families to look after.

    Lizzy

  • Posted

    hi liz today not too bad been to stupid dr's want to put me on silly meds that mong me out or cause other probs would rather put up with pain than take chance of side affects from med's have already had near miss woith my liver because they don't listen. Any way not letting them get me down am off out to shop for something new for my hols in sept :D
  • Posted

    Hi Lin

    How did the shopping go? where are you going for your hols?

    We have decided not to bother this summer, we had a great few days last bank holiday.

    Lizzy

  • Posted

    hi lizzy be honest we were not going to bother either but mum in law wants a last holiday so has paid for us all to go to Devon bless her,we havent saved any money though we ve got to hire a car to take her an dad dont mind though just means got to put my move off till after xmas we private rent so not a prob want to move closer to family they all live Essex an London didnt go shops in end not up to it today shops will have to wait bit longer for my money smile
  • Posted

    Hi Lin

    Good to see you still on and chatting with us. I hope you have a lovely holiday in Devon. I have been there before and also cornwall some lovely views.

    Went to Scotland for the first time in June this year and we were very lucky with the weather. Went for two weeks and only had a day and half of rain. Lots of lovely views there as well.

    Where do you live Lin? I live in Whittlesey just outside Peterborough in Cambridgeshire. I have a son living in Nottingham and another son living in Manchester. Also have three daughters who all live in Whittlesey. Also my two granddaughters live in whittlesey so I am close to most of my family. I have got some brothers and sisters that live in Peterborough. Also my Dad use to live in Peterborough but sadly died on 18th July.

    Just waiting for the funeral but it isn't until Friday 6th August.

    Take care

    Tess

  • Posted

    hi live in norwich now have lived in plymouth and cornwall before, lovely places but not viable places to live unless you got money or are retired high cost of living and low wages thats why we had to move back up country did not mean to stay in norwich was sposs to be stop gap have been here over 3yrs now. sorry to here about your dad hope you get through it ok have been through it myself so my thoughts are with you at this sad time x

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