1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Further along with my diagnosis

Posted , 5 users are following.

PiliPalaB4ch
PiliPalaB4ch

about three weeks ago I posted here that as aresult of a blood test showing higher levels of paraprotein, my Dr was questioning Myeloma, quite a scary diagnosis. I had to have X-rays and tests at the haematology dept. I have had the tests and the results show that I have osteoarthritis in my lower back, worn discs and a misaligned spine probably due to my hypermobility syndrome, the haematology tests show a lower level of paraprotein coupled with the lack of other indicators mean it is not Myeloma - phew! However, they will test regularly every six months!

instead today I received the pressure point test. Every one of the points was painful! Tomorrow I will have blood tests for rheumatoid and autoimmune diseases to rule them out as the Dr is now sure I have Fibro. She will refer me to rheumatoid.

i would really like to thank all of you who gave me support here and helped me remain positive! I can't tell you what a relief it is not to have to hide something from my children. Whilst I am still in pain and suffering all kinds of other symptoms, I am soooooo relieved it isn't Myeloma. I also know that on my very bad days you will help me through, so thank you so much! Sending everyone gentle butterfly hugs and wishing you all a peaceful and as pain free a night as possible. 

0 likes, 12 replies

12 Replies

  • Bee70
    Bee70 PiliPalaB4ch

    Posted

    Hi Pilipala

    Your Welcome !

    Glad to hear it's NOT myeloma.  My aunt had that and I understand that it can be very painful.  Sadly she passed away a couple of years ago.

    Going on from here is to take one step at time and ruling out all other possibilities.

    We are all to support one another and this is the best place for friendship and support.

    Keep us posted with your findings. wink x

     

  • jeanne81532
    jeanne81532 PiliPalaB4ch

    Posted

    Oh that's brilliant news! So relieved for you. Now at least you can concentrate on other things, and didn't have to worry your children, although it must have seemed like you were waiting forever not knowing. Bless you. Good luck with your final diagnosis. And yes we are always here for you. xx
    • PiliPalaB4ch
      PiliPalaB4ch jeanne81532

      Posted

      thank you Jeanne , I am relieved that has passed. I am so glad to have found this forum it really does help. X
  • christine26761
    christine26761 PiliPalaB4ch

    Posted

    What excellent news for you PiliPala, Fibro is also an autoimmune syndrome...you must be just sooo relieved..the worrying must have been horrific for you...it's just horrid-the worry and stress of not knowing..which of course adds to the pain...I'm very happy for for you PiliPala! Have a really lovely day..a god bless you..:-) xxx
    • PiliPalaB4ch
      PiliPalaB4ch christine26761

      Posted

      Thank you Christine, I am very relieved. Yesterday was my birthday and the news was the best present.  I am in pain, but I am not so worried so it all 'feels' less stressful. Gentle hugs to you xx
    • christine26761
      christine26761 PiliPalaB4ch

      Posted

      Know exactly what you mean PiliPala, the less stress the less pain..happy birthday for yesterday..wow!! What a great present..I was tested for a brain  tumor a few years ago...it wasn't..thank God..but the waiting and worrying was just terrible, even though..like you..still in pain..it was a real celebration...:-) xxx
    • Bee70
      Bee70 PiliPalaB4ch

      Posted

      Happy belated birthday!

      One day at a time.

      Gentle hugs wink x

    • PiliPalaB4ch
      PiliPalaB4ch Bee70

      Posted

      Thanks Bee you are right, today is a new day, after a painful night I am going to achieve something today, even if it is As boring as hoovering round the house! 😊 x
  • Bee70
    Bee70 PiliPalaB4ch

    Posted

    Just enjoy the moment even if it is hoovering.

    Have a great day! razz x

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.