Posted , 6 users are following.
Hi,
So i was diagnosed with gallstones in Oct last year and placed on a 3 month waiting list to get them removed. In that time I had a few pretty big attacks but mostly mild attacks after anything I ate. Anything fatty is completely off the menu.
I got a letter end of Jan stating that the hospital had tried to contact me - the date listed was 4th of Jan but they didnt send the letter until the 26th. I found out that despite previously attending the hospital they had my wrong number. What followed was 2 weeks of phone tag after i got it sorted out but finally I saw a pre op clinic in end of Feb.
At this clinic the doctor discussed getting tested for Malignant Hyperthermia as my mother has it. However we discovered this would be another 3 months wait and at this point i was experiencing mild-moderate pain everday and it was affecting my life. I pretty much could only work as that left very little energy for anything else.
After that appointment I finally got a date for March 16th. I was goven 2 weeks notice and had to rush to organise time off work (I run a child care program so not easy to get replacements) and hospital pick ups and drop offs and blood tests.
Everythi g was sorted after a lot of stress and mucking around. However yesterday (10th March) the hospital rang me and said that they were not comfortable preceeding with the surgery without my having a muscle biopsy - to sum up its a lot of effort to run a surgery to protect against MH and they dont want to unless they have to.
The doctors seemed surprised when i mentioned the 3 month wait. I pretty much broke down in tears on the phone. I see one of them on Thursday to discuss options but ultimately I'm not very impressed.
Anyways the point of this is that unless I can convince the doctors otherwise they want to kake me wait 3-6 months to get this test before rescheduling. I've had previous surgery for tonsils at a different hospital where this wasnt an issue but transferring my referral wouldnt be easy. And i cant live another 3 - 6 months with pain, nausea and feeling like i cant eat. Today i attempted to vacuum and mop but the very act of that mist have shifted the stone as i ended up feeling super nauseous.
Suggestions please on ways to alieve the symptoms as nothing is working and I feel so hopeless.
0 likes, 8 replies
E11eth becinator
Posted
It does sound like you are having a rough time, I really do feel for you, I was finally diagnosed on 5th of Jan after being poorly since October. I have been placed on a 4 to 5 month waiting list and I'm finding that hard enough.
I have no answer to the nausea im afraid, suffering a lot from it myself, when I posted on here the other day somebody suggested I ask my GP for some medication to help it, I can't remember what it's called but I'm certainly going to book an appointment next week to see what they can do.
I do find sipping on water throughout the day helps, and although not strictly healthy, sports lucozade ( the still one ) has become my best friend to help when energy levels are waning, which is often. I was training for a wolf run prior to all this but my running has pretty much ceased as I feel so rough most of the time, although I'm still managing to swim which I find helpful.
When I'm in great discomfort I tend to curl up with a hot water bottle, which can be very comforting.
The only other thing I would say is that sometimes nausea can be caused by lack of food, I have days where I really struggle to eat and can feel very sick, if I can manage it I find a couple of rich tea biscuits eaten very slowly can help.
I do hope you get sorted soon, take care & keep in touch x
cynthia89958 becinator
Posted
I cannot eat normally now, I'm having fortified nutritional drinks and soups and melba toast mainly. I eat a lot of peppermints for the nausea as I don't get on too well with many meds. I have the anti nausea wristbands which help a little. I take apple juice and cider vinegar, honey and aloe vera, not sure of the science rationale for this really but it helps too and many ppl swear by these for Gb pain. Charcoal tablets help me with gas pain and I had my bloods tested, showing vit D low so taking a supplement for this and also having probiotics. This regime has not been a cure but I reckon has helped me cope until surgery. Good luck to you x
j75920 cynthia89958
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cynthia89958 j75920
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jay15225 cynthia89958
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jay15225 becinator
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becinator
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The stress from preparing for the surgery and then having it cancelled have not helped matters.
May look into ginger and some of the other ideas. We eat fairly healthy (especially now as pizza and fish n chips just cause me pain) but it can be so hard. My partner is a big meat eater so we're trying to find a balance in food and having to search for meat that is actually low fat. Dairy is a big no no as well.
Hoping i can get them to take it out sooner. I'm 27 and theres a family history of gall bladder issues. And while it was only the one stone the stone likes to move around.
I may have to try emergency sometime however its hard as, due to working with kids I cant take work off unless theres someone to cover me or its an emergency. Dont want to muck them sround by going to emrgency then being sent home plus i need all my current sick leave for the surgery.
lynda20916 becinator
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