Graves’ disease block and replace method
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Hi,
I have been diagnosed with Graves’ disease 15 months ago and have been put on the block and replace method at a level of 125mg of Levo per day but I always felt I was too high due to having heart palps constantly, brain fog etc and feeling generally anxious but the endo said for me to continue to take the 125mg as I was in the normal range......until 5 weeks ago, I had a blood test and he said I was at the high end of normal and I could come down to 100mg of Levo per day. This was music to my ears. He asked had anything changed in my life over the past 3 months for this too happen and I said I gave up smoking. He said this might have had an influence. I reduced to 100mcg 5 weeks ago and I’m all over the place. I’m not complaining that much as I’m not as anxious as what I was like at 125mg which is good but I’m still very hyper than hypo. My heart palps have calmed in general but I do have a rush once a day where my heart starts racing and I have very bad brain fog. Also I can go from very calm to very anxious or irritated or angry or very sad. Is this normal on a decrease? Have anyone decreased via a block and replace method and did you experience similar things and if so how long did it last please as I feel like a right mess.
0 likes, 3 replies
linda187 james22918
Posted
Sorry I can't respond to the block and replace question but I wondered what was the cause of your hyperthyroidism? Did any traumatic events precede your hyperthyroidism?
james22918
Posted
rosemary57996 james22918
Posted
Hi James
I suffer from hyperthyroidism and Graves disease with double vision and am also on a block and replace regime which I started in January 2018.
My dosage is 3 x 20 mg of Carbimazole and 25 mcg Levothyroxine daily all of which I take first thing in the morning. Obviously people can be at different stages in the control of their thyroid problem and I am now slightly under the normal range so this is why I am taking a combination of medication. Even so I do still have the occasional 'brain fog' and plenty of bursts of overheating but no palpitations. Now I'm no longer off the scale hyper as I was in Sept, Oct, Nov, Dec 2017 mood swings are not an issue. In short I feel lots better although the double vision is certainly an ongoing problem.
I am not an expert on this subject and I can only say how this has affected me. I just hope you feel lots better soon and that this helps.
Rosie