gyny appt

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not sure if anyone remembers me waiing for my first gyny appt?,anyway ,that was yesterday and bad news ,i do have LS, the good news,it was so obvious i didn`t need a biopsy!! yaaaaay,that was the part i was most dreading!since being on this forum i`m not so worried anymore as i have read such great advice from you ladies and your personal experience,thank you so much xx i have to use Dermovate and have another appt in 3 months but i now feel positive about managing this awful desease.

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16 Replies

  • Posted

    Welcome to the club no one wants to join. Glad you've found help and comfort here.

    I've made an appointment with my GP today as I am sore and raw inside. It's not supposed to go inside is it? I hope so as I don't want it to be anything else. Need to know if I can use dermovate inside.

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    • Posted

      Hi pollyanne I have had LS for many years which has affected my labia and clitoral hood. I now have lichen planus (think that's how you spell it) which is on the inside of my vagina. It is raw and itchy and my dermatologist and gynaecologist have both said the only treatment is dermovate. You can also get this condition in the mouth apparently. I tried coconut oil but it felt like I was on fire. I am using epaderm to wash and as a lubricant serve real times a day and at the moment have gone back to dermovate twice a day as I'm so sore. Hate this horrid disease !
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    • Posted

      Hi, well saw a different doctor today but she was au fait with LS which is good. She felt that the sore patch was just a random bit of irritation, wash and soothe with aqueous cream, go back if not better and see GP again in 6weeks. She gave me a good examination and said she could see nothing to worry about, she said that I had age related atrophy. I wish we knew how much was age related.

      Reassured anyway that's the main thing.

      My sister has Lichen Planus down below, and seems to be having very similar symptoms but has to have an op to control incontinence, at least I don't have that problem.

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    • Posted

      you were lucky to see a gp who actually knew about LS! i sometimes think that any mystery is put down to age!! but what age?? if we only knew.,but then maybe its as well that we don`t know what the future holds! hope you continue to manage your LS and hope your sister gets a good result from her op,take care x
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  • Posted

    Hi Susan I am also new to the site and agree the advice and support is so encouraging and I hope in time to be also able to help others once I have some more experience in what I am dealing with. I would like to say though that the biopsy for me personally wasn't anywhere near as bad as I had read about or imagined.  In fact having the local first made me very comfortable, the most comfortable I had been for weeks and I had no problems healing afterwards, possibly I has very lucky.  It is great that you didn't need it and had a doctor that could recognise the problem. 
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    • Posted

      i was dreading the biopsy but the consultant said from what he could see and what i had told him ,he was 100% positive that it is LS,i had to take my 3 year old grandson with me and thought ,if he could see what was happening it could traumatise him for life!haha!
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  • Posted

    Hi Susan,

    I managed to escape the biopsy too for the same reason. Pity it wasn't SO obvious to my gp that had been treating me for thrush for a year !!!! 😠. brilliant that you are so positive, I commend you. REMEMBER rub that Dermovate in for 90 seconds it is so important and I was never told that initially I learned that from this site listening to a lecture by a specialist in LS . Since I have been found that I have noticed a huge improvement in the condition of the skin. Good luck lovely lady. Oh btw, I have found Aveeno body wash that you can use and it is lovely. Apparently we should be able to get it on prescription so I am going to ask my gp. You can also get a moisturiser in the brand. A friends dermatologist recommended it to her for the same condition. hope this is helpful. All the best x

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    • Posted

      thank you for your kind words Caroline.i didn`t know about the 90 seconds,but will do that and hopefully see some improvement,are you in the UK? i only ask because some prescriptions are only available in certain countries.i have an appt at my GP for a med review so will ask about Aveeno,i don`t pay for my prescriptions as i have an under active thyroid,so could be worth it,thanks ,hope you also get some relief soon x

       

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    • Posted

      Yes I am in God's country - Wales 😉 If your gp won't cough up I got the big 500 ml body wash from Amazon for £9 so it should last a good while as I just use it for the undercarriage and bottom. Rest of my skin is ok. Have you been told to "wash" after you have had a wee ? Some people use little sort bottles. I just soak some toilet paper and dab the area then dab dry. It stop urine from breaking down the delicate skin we have. That's another thing that had greatly improved the skin condition for me. Sorry if I'm teaching you to stuck eggs , thought is mention it. X
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    • Posted

      i`ll look on amazon,thanks Caroline,not been told to wash after a wee,so will try dabbing the toilet paper,knowing me i`d squirt water everywhere but the right place!you`re not teaching me to suck eggs,cos i might be told things but forget! old age (again!)

      take care x

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    • Posted

      Hi Susan, many of have found that protecting our undercarriage with a barrier ointment will also protect the area from urine menstrual blood and other body fluids. Do watch Dr Goldsteins webinar..I have seen it several times and there is so much info it is hard to digest in one go.

      My medics prescribed Diprobase, it is great for washing with, rubbing in  as protection...and a useful moisturiser keeping the skin mucous membrane supple.

      i have a small bottle in my hand bag, and if having a flare up I will also have the small bottle of bicarbonate, a very weak solution to walk away the urine, before dabbing dry. When I first joined this site there were discussions about using bleach free loo rolls....not always easy to find tho. Remember non biological washing powders and no smellies on the clothes or in the bath/ showetake care 

      Sue

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    • Posted

      thanks Sue,i have watched the wbinar but as you say it doesn`t all stay in my brain!i`ll watch it again and take notes this time.i was prescribed Deprobase when my GP thought it was  exzema! i usually buy the scented loo rolls but i`ll buy different ones for myself if i can find them,i`m going to try and find the Aveeno for in the shower,thanks for all your input Sue,it all helps xx

       

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    • Posted

      I watch the webinare on my desktop computer and took screen shots of the slides- it is so much easier to remember  after i printed the screen shots - i took them to the GP for their info too
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