Has anyone thought about killing themselves because of severe pain and depression

I always feel like I'm being fobbed off. I know that my condition has changed but got discharged by my consultant. When I was diagnosed it was a case of you've got fibromyalgia and chronic fatigue syndrome off you go. I now can't walk very far, I can't go out with my family and my painkillers don't work. if it wasn't for my family I don't know what I would do. I've been told to do CBT but my husband has found out from radio 5 if you go to your GP and ask for the expert patient programme that can help with controlling pain. Hope this provides some help.

I have been told for years that there is not a lot that can be done to help other than painkillers and there is no cure so deal with it.

I know there is no cure but any help is better than none. I'm gonna ask my GP about the programme any help along with painkillers I'll take. I've received no info on fibro or chronic fatigue just got told to deal with it. Its disheartening when you don't get the help and support. Please just give it a try a small help is better than nothing.

My heart goes out to you both. I'm a FM person had it for years. Interestingly because I'm on enforced rest due to unrelated surgery, it has improved a lot lately.

Depending on where you live you may be able to have access to a mindfulness group on the nhs. This is probably the best way to help yourself manage FM apart from rest and kindness, it will help you to to learn to think and therefore cope differently with your pain. There are also private mindfulness groups out there, have a look on google.

FM people tend to be quite driven and hard on themselves, so one of the real challenges is to learn to look after yourself better and slow down. Someone wrote a rather nice piece on one of the other Fibro forums about they handle it.

Have you tried amitryptiline or pregabilin to help with the pain? I take pregabilin, I think it helps my body toss and turn less at night unless I've had a really busy day physically, then nothing helps!

Yes I've always felt on my own with it,and the hospital discharged me too. Apart from drugs they can't offer much. Before we moved to the country I used to have regular acupuncture which was good for relaxing. Another thing I used to do was have a deep tissue massage every month. This helped me enormously, especially after doing it regularly for a while. You need to see someone who can be guided by you how deep to go. A sports massage trained person usually has good knowledge of the anatomy.

Good luck, try and focus on the positives in your life as much as you can. VJ x

Hi vjl56, I have tried amitryptiline and pregabilin and they worked for a while but not anymore and I can't have anyone touching me because my skin is really sensitive, people tell me to be positive but I just can't.

I too am taking amitryptiline but going back to gabapentin along with tramadol and co-drydamol. Still trying to get the dosage of amitryptiline to have a good night's sleep. My skin is very sensitive and breaks out in bruises but that's my antiphospholipid syndrome as well. Try and take it one day at a time and look to the positives of that day. Its only a small thing but I'm getting a new front door tomorrow. Must admit my doctor keeps going on about losing weight but find it really difficult when I can't exercise when in pain.

I have often thought "I wonder if one big pain will lessen all this other background pain" and "my family would be better off without me". You are not alone. I found CBT a real help but I understand it can be a bit of a postcode lottery if you ever get the opportunity I would recommend a course specifically for people with fibromyalgia run by the Mineral Hospital Bath. It's very frustrating being trapped in this body that doesn't feel like your own, someone mentioned being a driven person and I think they are right a know a number of people now all with the condition and we all are emotionally effected by not being as we were! It's a long hard slog finding relief that work's for you, pacing, slowing down and taking care of ourselves it's easy to be disheartened but the internet gives as a wonderful resource in that we know we are not alone. I would recommend confiding in a friend don't bury your feelings understand where they come from, be honest and don't suffer in silence.

I agree with Jo re CBT (from what I've heard - I'm about to get some CBT) and with VJ re deep tissue massage.

I have very tender points that hurt even when resting and even a gentle touch can hurt, but hopefully you can find the right massage therapist (qualified in sports deep tissue), they can learn with you how much pressure you can take, and where not to touch. I find some days are more sore than others so its a different massage each time!

Also, I have started Yin Yoga, which is a super gentle Yoga that gently stretches your deeper muscle allowing them to slowly release any tightness; this along with a bit of meditation in the class has been really helpful.

Finding a good friend that can listen when you need to offload is also very handy....or here on this forum....we are all here to help each other.

JK

I have had fibromyalgia for 2 years and have been getting worse.the doctor can never give me anything to help. I now have terrible pains in my legs at night so can't sleep.what really annoys me is that it is not classed as a disability so it doesn't matter how I'll I feel I have to go to work yet I know people who don't feel half as bad but don't have to work.I hardly have any social life now because just don't have the interest.

I also have suffered bad depression.  I am sure that accompanies any condition with chronic pain.  Antidepressants make me worse or do nothing, or have bad side effect.  Various things that help:  exercise is big for me.   A psychiatrist discovered my hypothyroidism wasn't getting the best lood work run (needed free T3, free T4, reverse T3 and TSH) and I don't do well with T3 only thyroid hormone, so I get a compounded T3/T4.  Llok up mood disorders and hypothyroidism.  A really big Seasonal Affective Disorder Light can work.  A study in overcast Seattle found that 20-30 minute walk in outdoor light improved depression, even in cloudy conditions.  And if I get some good days, I like to spend some of them on something I enjoy.  I like the out of doors.  Even if my walk is short and I soon end up sitting in my foldable chair.

Hi Supersammy, I am so sorry to see that you feel so lost with this awful, stupid syndrome, it has the terrible effect of wearing you down.

You really must !!! Tell your doctor and consultant just how badly you feel., depression added to long term pain can be a very damaging combination.  At the moment you really must stress just how low you feel, it is vital that you get help for this, the Samaritans are very good as are many health telephone support groups.

I have had fibromyalgia for about two years, I also have arthritis of the spine,hips and hands, I also have asthma and cold. 

Years ago I was a very bad alcoholic, I was sectioned into a mental hospital four times.I was I in almost total organ failure,but the worst part was the terrible depression, it is vitally important that you really stress just 

Hi Supersammy, I am so sorry to see that you feel so lost with this awful, stupid syndrome, it has the terrible effect of wearing you down.

You really must !!! Tell your doctor and consultant just how badly you feel., depression added to long term pain can be a very damaging combination.  At the moment you really must stress just how low you feel, it is vital that you get help for this, the Samaritans are very good as are many health telephone support groups.

I have had fibromyalgia for about two years, I also have arthritis of the spine,hips and hands, I also have asthma and cold. 

Years ago I was a very bad alcoholic, I was sectioned into a mental hospital four times.I was I in almost total organ failure,but the worst part was the terrible depression, it is vitally important that you really stress just 

Hi, sorry about the cut off of my answer to you, it is very hard but you must get more help for both yourself and your family, all your health depends on it.

Do you have any hobbies that require a great deal of concentration? 

Or are there any you would like to try such as art or playing a musical instrument?  

Maybe there is a support group in your area for chronic pain sufferers, or maybe you could even start one..... but the most urgent problem is that you are obviously not getting all the help you need, push and plead if you have to, but do not give up.I regret the attempts to end my life in the past, the effect it had on my husband, three sons, my daughter, also my twin sister, my brother and the rest of my family was absolutely horrendous.......I wish you so much luck to you and your family,,

Take care and always be kind to yourself. Sincere regards, Deidre x

Many years ago I did, yes. However, reluctantly, with psychotherapy I eventually found a levelling off of my depression, but it is still there to some extent.  The greatest help I have found has been learning to  accept the situation, go with the depression, stick with it and just be, sitting in stillness and emptying my mind, in a form of meditation.  I know from my own desperate experience that when you feel as you are doing now,  nothing anyone says feels as if it will help...you probably think 'if only they knew how I really feel!' or something similar. All I can say really is to hang on in there, but don't put your faith in tablets, seek some personal help with a counsellor.  Very best wishes to you.