Has the forum got M.E again ??

Cars, sinks, mugs, what is the most annoying thing is that even with insurance there is excess to pay and it is such a waste of money. If I was going to be spending a few hundred pounds I would rather spend it on something nice to benefit the family rather on replacing things I have broken.

Thanks guys, I could get depressed about this but it is good to have this place to vent and rant. :steam:

Hi All

I would say i drop things alot but like Katie i do walk into dorrs and furnature alot and my shine are constantly covered in bumps and bruises, guess i can blame my tunnel vision for that !!

Take care all

Jay xox

Hieveryone,

just when it looked like I was having a good day I managed o sink to a new low!!!!

I went into town, eager to mke the most of my newfound strength and clear head, I bought some new trainers and while sat outside on a bench waiting for Mark to come out of a shop I decided to put the new ones on an throw the old ones away, saves carrying them and te old ones had a one way ticket to the bin anyway. The first one was fine but th second........ well would you beleive it? I couldn't do it up. I tried or a few minutes before my 10 year old daughter had to show me hw to do it. She thought it was hilarious but I was not amused and just wanted the ground to swallow me up. I know its just brain fog or something but I do find this illness most degradng at times. Please God, I just want my life back :wah:

Anyway sorry for the rant

Take care

Michelle

I'm really clumsy too, I drop things when my hands get numb and pins an needles and I walk into stuff too but I blame it on being dizzy a lot of the time

Michelle

I can relate so well to that, Michelle.

My daughter Anna, is getting married next month. She has a final dress fitting on Saturday and has asked me to be there so that I can see how to lace her into her dress on the big day. :shock: :shock:

I've had to tell her that as much as I would love to, there is absolutely no way I would be able to manage to do that. It sounds crazy, but to have to concentrate and lace a dress from top to bottom would render me useless for the rest of the day. It's so hard to explain to anyone. Thank goodness her chief bridesmaid will take my place. What a useless mother!

Even concentrating to sew on a button these days is a monumental task - and I've given up trying to put mascara on - I just feel so dizzy the minute I try and do anything that requires manual dexterity.

Including typing!!!! I've had about 97 attempts at typing this - if I left it without correcting it you would have thought I had been on the bottle! :redwine:

IT'S SOOOOOOOO FRUSTRATING .......

Goodness knows how I am going to get through the wedding - any ideas anyone?

A week in bed before and after - seriously? Conserving every ounce and gram of physical and mental strength and energy from now till then, giving you some reserves for the day. It's the only way.

No, I wouldn't do it either :roll: But it's what the physiotherapist at the ME clinic I go to would say. :hug:

Hey Kaite

i wouldnt worry too much as I am sure with all the will in the world your daughter will want to enjoy her day and will be SO busy that she wont even notice you never did her dress for her. I would save all my energy to getting the right hat!

As for the make-up I would treat yourself to a make-up session at your local beuticians.

When I got married I was SO busy with the photographer etc etc that is when you could sneak off for a lay down and if you wake up with your looking like its been dragged througha bush then put your hat back on! hee hee hee

Joking aside, dont panic too much cos this will exasperate you ME making you fit for nothing.

Donna x

Just another thought...Tank god the brides mother doesnt have to m ake a speech! :oops:

Just finished my anitbiotics!

I will monitor nurse katie :nurse:

Donna x

Hi Katie

I was usher at me sisters wedding and like you i was panicking as to how i was gonna get through the day, but all i did as mentioned in here was to have a few good days rest before hand, on the day i was fine, mostly addrenaline got me through, but i must admit i was ill for a while after so proberly expect the same, but most of all just try and enjoy your daughters big day and smile for the camera :D :D :D :D :D :D

Anyway hope and pray you all have fine weather and it all goes without a hitch

Take care

Jay xox

P.S try not to stress or worrie about it, im sure you'll make your daughter proud on the day

Hi friends

Thanks so much for all the helpful advice - I knew I could rely on you!!

Yes, I will have to be very strict with myself the week beforehand and afterwards, frankly I shall be so relieved it's all over that I won't care how I feel!

Re. the hat Donna, - what hat? I haven't even got one yet - everytime I venture into a shop I come over 'all peculiar' and just have to get out in the fresh air again. But, I shall order one of those fascinator thingys over the internet - should be interesting. The thought of even trying to put a pair of tights exhausts me - I don't DO tights!! And the make-up artist is a no-go - don't think I could stand anyone touching my face let alone chat whilst she's doing it!!! I'm becoming a grumpy old woman!

I think you are right tho Jay, hopefull adrenaline will get me through.

Thanks again for all your help folks - hope you all have a great day!!

Katie xxx

Just checking!! :

After the initial few months of being knocked back with this illness, things started to improve slowly.

Firstly I let myself off the hook, for not being able to run round like most mums do, that helped the depression and frustration that came with the illness. I tried just walking to the bottom of the garden and managed a little more over time (we had a huge garden). There seems to be a 48 hour delay too, if I did too much one day sometimes the problems didn't flare up till later sometimes. So just doing a tiny bit more when I felt I could helped. I try not to get out of puff, rest then do a little more, this seemed to help me build my strength back up slowly.

I have had CFS for 10 years now but it is mild, unless I get a bug or I am generally run down. I just rest and it passes in a few days, but I still can manage to work full time. I'm also decorating a victorian house. But I pace myself.

CFS and I just get along together rather like surfing a wave, you get to know how to ride it. :D

Hello Carole

Gosh, 10 years is a long time to have had ME - but it's encouraging that you have obviously learned to pace yourself. I think the problem with most of us on this forum is that we are still novices in doing this - it's almost as if we are fighting against it and just push ourselves a little too far.

Well done for decorating a Victorian house - our last one was from this era and I know just how high the walls and ceilings are.

Take care and if you have any more tips for coping and remaining sane, they would be much appreciated!

Katie

hi donna rachel messageing, i've now starting to have nite sweats in bed, i thought i'd wet the bed( silly isn't it), it's not good, also u girls have any of u found a difference in your menstrol cycle, i know it's personal it was only 2 weeks ago & bang again it started. could u let me know please message later xx.