Posted , 9 users are following.
Hi, I was diagnosed only yesterday and took my first pill today. I have been quite worried to hear about people's experiences levo, but more importantly I'm worried about the anti-body attacks!
I don't have many symptoms except feeling the cold - that's the main one.
But my results were really bad: TSH 79.9, T4 6.8, AntTPO 4777.7!!!
My question is, while the thyroxine will regulate my hormone, what do people do about the anti-body attack??? I'm getting a coeliac test done, although have previously come out negative.
What do people think? I've read about functional medicine practice is to heal the gut and cut out grains, which I will certainly try. Just wondered because no one seems to be questioning this and it's the anti-bodies causing the destruction!!
Do antibody levels decrease on Levo? What do you do about this? Anyone else gluten free?
Thanks!
Sarah.
0 likes, 42 replies
isabel36588 sarah23656
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glad to here you don't have many symtoms that is a very high tsh I was diagnosed last oct my tsh was 18 and antibodies 75 and wasn't feeling at all well my main symtoms were palpitations. My tsh in March is now 1.91 and feel a lot better I'm on Levo 25mg every other day as was experiencing a fast pulse so seems to work. Although now I feel I'm going the other way more hyper! My experience gp doesn't seem interested in antibodies and I haven't been tested since as told they go by tsh level. I would be interested in getting my antibodies tested again to see if they have dropped.
Theres a lot of people on here that have a lot of experience on diet and getting other vitamin tests done. If you check thyroid uk lots of useful information as I took the info my GP to check on vit levels and my vit d was 22 now 74 as on prescription so you need to check out vit d and vit b12 levels etc. Some people find gluten free diet really works I haven't tried that. I'm on the menopause as well so difficult to know what is causing what. I've felt OK on the Levo and assume that has got my levels more normal but my dose is low. Hope this helps.
Ps you need to take Levo on an empty stomach morning leave an hour before eating for it to absorb
stephanie1968 sarah23656
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I'm on ranitidine 300 mg levoceterizine twice daily and montelukast at night
100 mg levothyroxine......
Next phase Dapsone........
Seriously had enough lack of sleep is the worst ....even bought a FitBit to show the dc how bad it was lol
Hairs coming out all the time when I wash it, aches back ache ...feel like I'm falling to bits
barbara98940 stephanie1968
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stephanie1968 barbara98940
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Back to immunology wouldnt test me for grains wheat etc said it was auto immune ....no further forward :-(
May ask for referral to gastrointestinal bod ...and get the same response
Endorsement appt this week she was checking t3 results for hashimotos as antibodies 189 lower than most I've seen posted but would support me not digesting grains and bread without belly ache :-)
barbara98940
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stephanie1968 barbara98940
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barbara98940 stephanie1968
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lucy51252 barbara98940
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barbara98940 lucy51252
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lucy51252 barbara98940
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Not as expensive as I thought.
If you found a dr willing toprescribe ndt then can you obtain it at chemists here?
barbara98940 lucy51252
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Sheen Road, Richmond Upon Thames stocks NDT and will post it by special delivery on receipt of a prescription. Last I knew he stocked NatureThroid and WP Throid (aka westroid-P).
lucy51252 stephanie1968
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barbara98940 lucy51252
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lucy51252 barbara98940
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Thanks for letting me know.
Lucy
barbara98940 lucy51252
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karen30256 barbara98940
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I take it that your GP provides the prescription. How does your dr calculate the dose bearing in mind that blood tests don't reflect how the patient is progressing or not progressing?
barbara98940 karen30256
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karen30256 stephanie1968
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You mentioned antibodies. Whch ones are you referring to ?
Sorry if this posting sounds bitty I am having another bad day with all this!!
Take care.
stephanie1968 karen30256
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Some people have them in their 1000's so I suppose I'm lucky.....
Antibodies attack the thyroid gland......
The thyroid releases hormones that control body temperature...Liver /kidney function metabolism heart rate .....and many more ....that's why we're in the tabs for life as it's a life threatening disease if not sorted as the body eventually will shut down .......dontvpanic .....
I might also be telling you stuff you already know.
If your in the UK you are covered under the equality act 2010...... Regarding the illness as it's for life and therefore protected under the characteristics.......just in case like me you've had a few times off work and feel like many others under pressure to go in when feeling bad or catch bugs that take a while as you immune system is supressed.
We are also prone to getting other Auto immune conditions.......
I have 2
Diagnosed hypo in Aug last yr, off once a month since :-(
I've had hivessince Oct everyday since then but confirmed Autilo immune Chronic Urticaria and Angiodema.......you don't want that one .....so gets you down :-)
Aches and pains feel like an old woman I'm only 47 .....
Anyway the thyroid UK websites got loads of good stuff on it to read.....
Best of luck Steph
karen30256 stephanie1968
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stephanie1968 karen30256
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If your thyroid isn't functioning properly then the Drs put u on Levo thyroxine .....start on a low dose and increase until your thyroid results are back in range or what the endocrinologist says you need to be on .....
Mine telling me It should be 1 tsh that is...
The tablets are for life .....prescription free and any other medication you receive, you apply for an exemption card which lasts for 5 yrs and renew when it's time to.
If your drs are switched on they'll do it for you :-)
You should also avoid taking food and caffeine 1 he before taking the tablets as it affects absorption into your system.......
Go onto the thyroid UK site it explains everything to do with functioning properly and is pretty useful like these forums
karen30256 stephanie1968
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t feels like a flare up minues the headaches, sweating and throbbing pain in the eye.
Barbara has sugegsted selenium so I will buy siome in . Thanks for your reply it has helped a lot.
Best wishes
barbara98940 stephanie1968
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barbara98940
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cindy30745 barbara98940
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barbara98940 cindy30745
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cindy30745 barbara98940
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I am only just beginning to settle down and try to becalm myself.
Can u eat butternut squash and red cabbage?
I know that sweet potatoes are high in oxalates.
barbara98940 cindy30745
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barbara98940
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The same research also mentioned oxalates and autism - and as I have a child with aspergers (which is an autistic spectrum condition) who has just developed a dairy intolerance and switched to soya milk, it was doubly relevant!
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