Having trouble with creams

Getting the right combination of potions for daily use with LS is a pain and it takes time to get the right combination. Dermovate cause some to sting but there again anything gently rubbed on has a tendancy to sting us for a short while. Have you tried epaderm aqueaus to wash with..I pressume you are not using any soap products near the affected areas cos that will not help at all. Epaderm is more expensive,you can use it to barrier yourself against any acidic wetness like urine which smarts the area if you like too...Mind you a lot of us use aqueaus to wash with and a diaper rash cream called paladin to keep on all the time. Thats great at reducing your sore areas Do you know what is the list of ingrediants that were the common denominator in all the things that you tried that stung.,,..Vaseline may keep you sort of moist but i dont know whether it would help to heal your soreness. CHeck out the other message board at **** as they natter about all the options too so between here and there it may help you. JEN

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Hi I have some news which might help with the sting that you get from the creams prescribed I had a look at the ingredients Emuovate has clobetasone butyrate in it Dermovate clobetasol propionate am not a pharmacist so although close in spelling I dont know how simular they are have you tried Oilatum this has white soft paraffin and light liquid paraffin in when I tried vaseline it made me very sore when I spoke to the practice nurse she said it was best not to use as it can cause hypersensitivity which it did in my case an alternative to the dermovate is fucibet which my gp put me on firstly (main ingrediant betamethasone valerate) I have also used it in conjunction with the steriod betnovate (main ingredient betamethasone valerate) neither have caused me any problems with stinging I hope you find the right product for you soon take care

Thanks for your suggestions folks. I am trying using the aqueous cream to wash with (I don't use soap! usually just water) which feels very pleasant, but hasn't helped the itch, which woke me up in the night for the first time last night.

The ingredient that my doctor thought was common to all the things that upset me was cetostearyl alcohol, which is in loads of things, including aqueous cream. I wouldn't be able to use paladin because I'm definitely sensitive to lanolin. I have never been able to use cosmetic creams with it in because they bring me out in a rash. It was E45 cream that sent me to the doctors in the first place with this problem, having tried to use it for soreness and itchiness. I had a very bad reaction to it - I now realise it has lanolin in it!

I'm trying to deal with a bad back for which I'm having physio, and have a hospital appointment for that on Monday, so I feel as if I'm immersed in medical problems at the moment. Due to go on holiday in 3 weeks time (volcanoes permitting) and I really want to be able to enjoy it. Still, I always feel better if I can take my mind of it all so hopefully it will do me good to get away.

have you tried using dermol 500 to wash with? my doc told me to use this, only just started using it and it's working ok so far for me xx

yes dermol is good. They do it in a shower cream dermol200 that works.If you cant use the greasy tub aquaeus like epaderm then the dermol is good.The epaderm also moisturises and can be left on as a barrier cream. try a little tub first - ebay or amazon sell it cheaper. If it works you have killed two birds with one stone ,as you have a wash and barrier in one It must be awful to been allergic to lanolin as there are still so many good products which help LS that has it in. JK.

I just went out and bought a bottle of Dermol 200 shower wash - only to discover it does contain ceto stearyl alcohol, and there is a specific warning about it on the leaflet inside the box! So that's £6.99 down the drain I'm afraid. It isn't mentioned that it contains this on the website I looked at. Very annoying!

Thankfully managed to sell the dermol via ebay, so not too out of pocket! I went back to the hospital this week and the doctor I saw was the same one as last time, and she was absolutely lovely. She said I have very mild disease, but I really couldn't work out exactly how far the white areas extended, though she said it was much the same as last time. She has prescribed betnovate instead of eumovate to try to treat it, as I wasn't able to reduce the eumovate without the itching returning, but we're away this weekend so I may wait until next week until changing the steroid cream, in case I have a reaction! She has also changed my emollient to cetraben, though the chemist can't get that until next week. Has anyone else used this?

I really have difficulty seeing where the skin is pale, I suppose that is because it is very mild disease. So I am spreading the cream very thinly all over.

Not sure if I'm replying to the right one but just wanted to share some recent hopefulness which may help other people. Was getting desparate last week aqueous cream was stinging/burning and having to wash it off no sooner had I applied it and jump into a salt bath which does give me relief. Contacted a herbalist and after bursting into tears on the phone and making an appointment for later that week she recommended I use olive oil instead of the aqueous to wipe myself after peeing and for general relief against the ridgyness. Have not used the aqueous for a week and used extra virgin olive oil instead and for the first time in months it's feeling better also finding drinking a lot of water is helping as the pee is weaker and not so painful. Was reading about aqueous cream last night and realised that it's not meant to be left on the skin and that lots of people are finding it is burning them. Inspired by the olive oil and with the herbalist's reassurance about the contents of the product have bought a jar of organic ultra rich. It smells like olive oil and is helping with the pain. So just wanted to say if you're using aqueous cream and leaving it on the skin and it's burning like it did me, it's not the end of the line and there is hope. I'm going to continue using it as an alternative to soap but not as a moisturiser as that is now what it is meant for. I've only been using this ointment for a couple of days and already the skin is less ridgy and I've gone 2 days without the necessity of a salt bath. For the first time in ages feeling hopeful that I can get it back under control. Hope this post helps someone else and thanks to everyone who contributes to this site. Makes me feel less lonesome and that I'm not going crazy!

Hi Olive , I've heard about people using olive oil before ,but never been brave enough to try it myself. It's the fear it's going to make a bad situation (down there) even worse. I'm really glad it seems to be helping. I now know a few products to use that i already have in my kitchen cupboards that i can give a go. Another one is apple cider vinegar watered down a little (4 parts water to 1 apple cider vinegar) to use for the onset of thrush (which plagues me) . I find this really does work as well. I might be brave and try the virgin olive oil now. Thanks for that. Netty x

Hi all - after much experimenting I ended up using Cetraban for washing down below. It was recommended by my Dermatologist and I've been using it for about 3 years now and its been fine. I also use Paladin as a barrier cream which has also worked well.

Hiya, i've just done some reading on-line about Cetraban and it looks like a good substitute for soap. My dermatologist said if i must use soap to use a hard soap and not a pump action liquid soap (as they have far more preservatives and nasties in them). Don't know how true that is but i'feel i just can't wash down below with just water as i just don't feel clean ,even though i probably am so i'll give the Cetraban a whirl.

Epaderm aqueaus ointment not the cream, just used for washing only has been my relief for over 18months. You must not leave it on. Rinse it off after washing and use a moisturising barrier cream after. Maybe leaving it on has caused a problem. Just my opinion -jk

I have tried so many things to soothe, moisturise, heal etc. I think that we need to avoid anything with chemicals as we are ultra sensitive (at least I am). Now I use all organic things if I can. I don't like aqueous cream (too yukky, and chemical) and find I am fine with an organic shower jel. (You can get one from Neal's Yard, or Revital or other health food shop.}

After that to moisturise and heal I use calendula cream. If I am sore and need extra protection I use Weleda's Calendula Nappy change cream (which is lovely and soothing). If I am going to ride my bike I use Paladin.

I often make my own creams using a pure base cream (eg from Neal's Yard) and drop herbal tinctures and oils into it (buy a small jar and put some of the cream into it and add a couple of drops of essential oil). So for example to help itchiness I find Tee-tree essential oil is wonderful, and have a little pot of that to use as and when. Chamomile is soothing too.

Get to know your skin and what you feel comfortable with.

Good luck to you all x

The cetraben has turned out to be the answer for me. If I need anything other than water to wash with I use aqueous cream, because it doesn't sting so much when mixed with water. Then I smear on a small amount of cetraben - and I'm fine now. Just had a check-up at the hospital and there is no sign of active disease. I was changed from eumovate to betnovate and am now using that only once a week, and the doctor said I can just use it when I need it - but I'd rather use it on a regular, occasional basis just to make sure!