1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Hello! I am new here and just been told I have Fibromyalgia

Posted , 9 users are following.

Gone_Girl
Gone_Girl

Would like to ask if anybody has pain in their pelvis and legs, especially in the thighs. I have had excruciating pain here for over two weeks. Am taking tramadol and pregabalin but there is little pain relief. I feel as though I am saddle sore or have had an extreme exercise class. I cannot walk or bend properly or put my legs together. Is this just an episode that will end or is it more likely to be always there? I have terrible pain in both shoulders and upper back. I have burnt my skin using hot water bottles to ease it.

2 likes, 22 replies

22 Replies

Next
  • cherl450
    cherl450 Gone_Girl

    Posted

    hiya thier i two get pains like that and it can be awful where its in hips and legs and arms like you i take pregablin and tramdol but recently my gp has put me on lidid morphine which helps reduce my pain by miles so i can cope better but for me the morphine doesnt last long but sorry to say its all part of fibro i try to keep busy but my pain is worse at night talk to your doctor explaiin you carnt cope mayby they will refer you to a pain clinic wishing you lots of love cherl xx 
  • jeanne81532
    jeanne81532 Gone_Girl

    Posted

    Hi Gone Girl, love the name! I liked both the book and the film. I also have pain similar to what you describe, and am also on Pregabalin and Tramadol. I've also recently started Amitriptyline at night as well. So far it has made me sleep all night and often during the day as well. Personally I find the pain sometimes concentrates in one area, subsiding after a few days. I also use hot water bottles, but make sure they have covers on! Hot baths with Epsom salts also help me. Good luck. xx
  • kaz_40
    kaz_40 Gone_Girl

    Posted

    Hi with fibromyalgia you can get different symptoms some stay some go some come back again. I am in constant pain with my legs back and thighs. the only pain relief I take is Ibuprofen and I use a hot bottle. Im unable to take any other form of medication for pain relief tablet wise as ive had terrible affects from everything Ive taken. its a case of trial error and trying different things to ease your pain. what I surjest you do is wrap the hot water in a towel so you dont burn your self thats what I do. the heat still gets through and you end up not burning yourself. I cant say if its an episode with you and if it will stay or go as we are all different. but you are not alone hun most of us get the same symptoms. fobro is learning curve for us all, Im getting new symptoms all the while sppech is a real problem with me, I keep loosing it my husband things its great  as it stops me nagging haha. gentle hugs take care  
    • kaz_40
      kaz_40

      Posted

      also as you can see word forming is difficult also. the joy of having fibro.take care hun 
  • loxie
    loxie Gone_Girl

    Posted

    Definitely sympathise over the thigh pain - doctor tried to blame it on OA of the hips but I definitely dont have that and its not 'in' the hip as such its in the muscles at the top of the thighs, it's excrutiating sometimes but goes away at times also.When it flares up my legs have a tendency to give way and i can't crouch or get up easily from a chair.  Fibro just keeps on giving eh.
  • Meg53
    Meg53 Gone_Girl

    Posted

    I certainly know what you are suffering, for me hot packs or hot water bottles are my constant companion. It is weird it comes and goes, some days I am fine other days it's constant rest, with legs up and endless hot water bottles. It's all round weird. I find gentle exercises help relieve the tightness but you need to see a specialists like a physiotherapist to learn the right ones for you. 

    Good Luck Meg

          

  • tiff74
    tiff74 Gone_Girl

    Posted

    Hi I ha e had problems with y right side of my pelvis for years, the pains I'm afraid come and go a s they please, you learn to deal with new flare ups every day.

    Today your pelvis tomorrow your arm an so on. Staying positive is the key to trying to live with this illness, you have to have a strong attitude push yourself don't go e up on life, just adapt, fi.d New ways around the things you used to take for granted, please don't be beaten fight on xxx

  • Gone_Girl
    Gone_Girl

    Posted

    Thank you everybody for all your support and empathy. what a terrible disease this is. The pain is on a new level of feeling and intensity. I believe that I have had this for many years but only now have got my GP to acknowledge it. This deterioration has come about since I had some virus in december which I have not been able to shake off. Has this happened to any of you? I did not sleep well last night .... Just took painkillers and drank spicy tomato. Soup. Oh yes that's another thing - a cardboard tongue and different chemistry of the mouth with all the medz I have been throwing down my neck = prescription junkie!!!

    • Spotsy
      Spotsy Gone_Girl

      Posted

      Gone Girl that is exactly what happened to me, I thought I've had fibro for many years, but then suddenly, three years ago, after a virus, everything got way worse and has been moving around my body in different ways and pains and worsening. It is scary.
    • kaz_40
      kaz_40 Spotsy

      Posted

      hi spotsy it is very scary all these different symptoms and us having no control over it. mine started in 2004 I finally got diagnosed in 2014. fibro is a learning curve for us all. do as much research as you can on it and get has much surportand help as you can take care gentle hugs
  • kaz_40
    kaz_40 Gone_Girl

    Posted

    Hi gone girl having fibro is a learning curve for us all, its for ever throwing up different symptoms. the key point is learning to pace yourself which is easier said than done. when youve always rushed round and been on the go all the time. you go through a grieving process for the life you use to have. Ive found it hard coming to terms with how I am, as how Im feeling its like an alien has taken over my body and brain. Im not the person I use to be in so many different ways. Ive always helped to look after others friends family but now its me that needs looking after. you have to now start thinking of yourself and not others as much. we have to look after ourselves and be kind to ourselves if we want to moan or rant just do it. also treating ourselves is a great way of lifting our spirits whether its flowers choclates perfume clothes. anything to help our life more bearable.Im so thankful I joined this forum theirs a great surportibe bunch on this forum. your not alone we are all in this togeather take care gentle hugs x
    • Meg53
      Meg53 kaz_40

      Posted

      I whole heartedly agree with you Kaz this forum has saved my sanity. Gone girl you will get so much gentle support here.

      Meg

        🌺

    • kaz_40
      kaz_40 Meg53

      Posted

      Hi meg its saved my sanity also gentle hugs take care hun x
    • Spotsy
      Spotsy kaz_40

      Posted

      Hi Kaz Im trying to accept this fibro as well. I just joined. Is there a place to introduce ourselves?  Your post was really good for me to read.  This is a hard thing to accept and I keep searching for other diagnosis that seem more "real" to me. Every time I read people's post I see fibro is very real and painful. Does everyone keep trying different tests hoping for other results? Thanks for your help.

       

    • kaz_40
      kaz_40 Spotsy

      Posted

      Hi spotsy us girls live all over the place hun I live in the uk where do you live. Ive found fibro very hard to deal with, Im still struggling to come to terms with it and everything it throws at us. I was ill from 2004 I saw no end of specialists from heart specialist lung specialist neuro specialist test I lost count of the amount of mri ct scan blood test I had so many of them I felt like a pin cushion. In the end my gp sent me to see a rheumatologist, he sent me for more bloods a bone scan and he did a pressure point test. on different areas of my body. their are 18 pressure points I got the full 18.When I went back to see the rheum he said I had fibro and was low in vitmin d. some areas have a support group that you can join. their is no cure for fibro at present, all drs can do is help with medications for the pain. drs  like to do tests to rule other conditions out like rheumatoid arthritus. its only rheumatologist that can dianose fibro. research fibro find out as much as you can about it, talk to your gp see if their is a surpport group in your area. ms and fibro are a like except fibro is more based on pain than ms.talk to us girls we are here for you we are all in this togeather and we will do all we can to support each other take care hun gentl hugs xx 
    • kaz_40
      kaz_40 Spotsy

      Posted

      fibro is very real hun I wish their was more understand on it in the medical profession, as we are sometimes looked on as frauds and as if its all in our heads. people want to be in our shoes even if its just for 1 day then they would know and understand what its like.You go through all different emotions with fibro you grieve for the person you use to be and for the life you use to have. not being able to do what you use to is very hard to come to terms with.last sunday I was dispairing and I had really had enough thought, I cant take no more. I came across this site the girls on here are so lovely and very supportive its helping me a great deal. because your talking to people that are going through the same as you and that fully understand the pain and sheer agony hell at times that you are in. only we know what were going through not many people understand and care. I also use mobility aids as my mobility is very poor Ive got a walking stick wheel chair walking frame. a bath board for over the bath so I can sit while showering. a wrist and thumb support. a coccyx cushion for the car. my gp got me 2 commodes 1 upstair 1 down a perching stool for the kitchen.ableworld is excellent for buying aids if you register with them, you pay vat on some things and no vat on other things. do all you can to make your life a bit more easier. its trial error on alot of things especially medication. I cant take pain meds ive had very bad side affects with them all. I just use a hot water I take ibuprofen its takes the edge off the pain a tiny bit when the pains really bad grit my teeth. Im quite stubborn I dont like anything getting the better of me this is one battle that I cant win. its finding what suits you what you can do to make life easier we are all different and what suits one person may not suit another person. my dr told me like ms and many other conditions. fibro varies from person to person one person may not have it too bad another may have it more extreme. she told me Im at the extreme level typical haha.put it on a scale of 1-10 1 being the lowest 10 being the highest Im at 10. here for you take care thinking of you gentle hugs xx 
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.