Help or advice please

HI, Kelle,

I think you might have bile acid malobsorption.  It happens to some people who have their gallbladders removed. Your gallbladder acted as storage for and a valve to measure out the bile produced by your liver.  The bile is released into your small intestine during digestion. Because you don't have a gallbladder now, the bile drips constantly into your small intestine.

If you have it, you will have yellow liquid surrounding your stools.  That's bile acid.  It's extremely caustic, as you probably already know.

There is a medication that can help you.  I have BAM and I take cholestyramine (which is a powder) mixed with papaya juice each night before bed.  I also sometimes need to take immodium.

One other way that you can help yourself is to change your diet.  Keep it low fat. 

There is a BAM group on the Patient web site.

Best of luck to you, and let me know how you do.    

I'm very sympathetic to all that your going thru.

it can take months to years to recover. Staying on diets recommended and not eating certain foods can be painful and frustrating help in many ways to learn what foods can be difficult. Soups early on was all I Could eat and jello.

When I was out and about I knew where every restroom in the county was. Had no choice.

 I cannot eat out food is to greasy and fatty and fizzy drinks can throw me for a loop.

once everything settled months later the dr prescribed enzymes to replace those made by the GB to break up foods, add probiotics and plain yogurt .p

it takes a long time for me to get thru the side effects of certain foods that cause issues its trial and error finding which foods are a problem. The stress alone is enough to cause issues.

Not being able to eat anything is very hard. Plz see your dr again and discuss a plan to help get you back on track and thru recovery . 

Best wishes it's a real problem for many recovering from GB removal. Especially since yours had ruptured. Terrible complications seem miserable.

Take care and plz see the dr ASAP. Be carful not to get dehydrated.

How long were you suffering with symptoms before the rupture ?

Hi Kelledee

So sorry to hear what your going through. Do you have the yellow poo all the time?

Only I get it now and then. It normally follows 24 hours of vomiting. Also without being crude. Does it really burn your bum hole when it comes out?

Only that's what I get to.

Wishing you better. Claire. X

Hi Kelledee, so sorry to hear that you have obviously been going through such a bad time.  In regard to the diarreah, 6 weeks is still relatively early days and for some people it can take even longer than this for it to stop - so i would say that there is still hope that this may only be temporary. I'm just over 10 weeks post op and i would say it's been one of the worst periods of my life so i can totally sympathise with you when you say you're feeling very fed up.  The foods that i have found i can eat are grilled or boiled chicken, carrots, courgettes, cucumber, red pepper, lettuce, brown bread or rice, bran flakes, soya milk.  As others have said, i would definitely stay very low fat, avoid fizzy drinks, herbs and spices... and drink plenty of water. Keep in touch - i know it's so hard when all you want is to feel 'normal' again.

You had which kidney removed? I just had an auto transplant of my left kidney to the right side, next to the gallbladder. I have very rare vascular conditions that was the cause for this autotransplant. I have been dealing with nausea for years but attributed it to my fears of having such rare vascular conditions.

It only became clear during my recovery from the Autotransplant, that it was fats that was making me nauseous. I had my gallbladder tested in the HIDA scan show that it's not functioning.

Which kidney was removed, you're right kidney or your left?