Help please!

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Ok so I was diagnosed with Hyperthyroidism over a year ago, it wasn't being controlled by medication even though I was on the highest dose of Carbimazole and Propanol it was getting worse to the point I was close to having a thyroid storm. I was due to have a full thyroidectomy last October, I got put onto Lugols Iodine 10 days before surgery to force the thyroid levels down but unfortunately this still didn't work and so surgery was cancelled and cut a long story short I'm still waiting. 

Well I've been seen by the specialist back in March and had a blood test, and another since and have been told that my thyroid levels are now completely level (I'm still taking the highest dose of Carbimazole, Propanol and the Lugols Iodine) and I'm now waiting for another surgery date. Well since the beginning of March I have felt absolutely dreadful, I am exhausted to the point I am cancelling social events, I come home from work at 1pm and I get into bed and fall asleep where I don't wake up until 8/9pm I eat then I go to bed straight back to sleep again. I have no appetite all I want is to sleep. I have been to the GP and the first thing they do is blame it on my hyperthyroid. I have recently had a full blood test and everything as far as I'm aware came back "normal" therefore the GP isn't interested.

Please help someone I feel like I'm going mad. IF my thyroid levels are back to normal like I've been told then surely I should be feeling on top of the world?? I feel worse than I did when my thyroid levels were at their worst last year and I can't go on like this.

Feeling so upset by all of this sad

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  • Posted

    My best advice as a retired nurse is to find a new Endocrinologist. You absolutely deserve better than this. I think I would travel to the end of the earth to feel better. I am in a boat of waiting, and things did help me a little by researching a diet for hyperthyroidism. 

    Sometimes we need to actively get involved in cases like this. I truly understand your frustration.

    God bless


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  • Posted

    Hi there Fedup ..  

    there’s not really much we can tell you unless you’re able to print out your last blood tests including the numbers in brackets as those are your Lab Ranges which show where you are on their Scales .. 

    if we don’t see the numbers then we have to imagine what  exactly ‘‘normal ‘   Means 

    After reading them we would be able to see if things need adjusting ......   And the best ways to do that 

    Your blood results belong to you and they are obliged to give them to you ...  you should be tested regularly and you should get results printed for your file every time 

    Get back to us with results and to get advice on what to do next ..


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