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Help please, Labrynthitus, Anxiety or both ???

Posted , 8 users are following.

JaGuR
JaGuR

Hi guys,

Looking for some reassurance, comfort I guess.

I am male and 42

Doctor believes I may have labyrinthitus, or anxiety, he can't diagnose labrynthitus, he is leaving that to the specialist, I have an ENT appointment in 6 weeks, not been well for going on 8 weeks in total, not including the symptoms I have suffered off and on six months leading in. (Feeling of being drunk hung over but not having had a drink, one episode of strangest feeling in the head of going to pass out, black out, dizziness feeling, lasting about an hour, have also suffered tinitus, deafness last few years and suffer bad sinus infections last two years around March)

Current situation came on after massive anxiety stress attack, because of symptoms leading up to current situation and some other circumstances I guess

Had wonky strange feeling in head, dizzyness balance issues when walking or turning my head, constant nausea, struggling to eat, popping ear, head pressure, ears buzzing worse than before, hearing loss feels like it is getting worse.

All blood work and cat scan were fine.

Felt like I was trying to walk on a moving train.

Mostly these symptoms have gone after about 6 - 7 weeks, still slightly nauseous at times, but I am now left with just a general unwellness feeling, still slightly wonky in the head, still some dizziness every now and again, some on again off again sharp sinus type headaches, pressure in the sinuses, neck aches from the back of my skull down the sides of my head.

But the worst and most worrying symptoms that I have now, is the jelly legs and arms, my right arm especially, some days worse than others.

Some times I get up to walk and my legs don't feel like they are beneath me.

My muscles are starting to cramp up also.

My question, is this something others have experienced in the recovery process from labrynthitus, weak fatigued jelly like limbs after the others symptoms have started to subside ?

Is this normal or should I be getting more tests done ?

Doctor checked my strength, which he said felt fine, not sure what that ruled out.

This whole experience has been so scary ,debilitating and depressing, looking normal on the outside but feeling lost and wrecked on the inside.

People think I am crazy, having a meltdown.

At the moment the doctor is just treating these symptoms as anxiety and making me take oxazepam so won't get any more information until I see the ent

sad

1 like, 14 replies

14 Replies

  • michelle_05599
    michelle_05599 JaGuR

    Posted

    Hi, I've been like this for 3 month now can't go out on my own or nothing, I'm 32 female with 3 children who I can't take to school 😔 I've been on all sorts of meds and nothing works, now my doctor is saying it's anxiety, which I think it's not, yes I'm anxious but only because of the dizziness, loss of balance and feel like I have no legs when walking, I've got no head pressure no ear problems, it all feels head related, iv had all tests done all normal, I don't no who to turn to next? , I feel as tho people think I'm crazy and it's easy for them to say just try walk out try to forget about it, but it's not as easy as that, I feel for you know exactly what you are going through
    • Gilly_flower
      Gilly_flower michelle_05599

      Posted

      Hi Michelle , sorry you still feel so unwell , but do understand how you feel , I'm going crazy myself , like you I feel like I'm on a trampoline , hard to go out by myself , doctor just wants to push antidepressants ,not the answer , I'm suppose to be going back to work soon but just can't see how I can , which is upsetting , my job is so physical , , restaurant and B and B , my job is to do breakfast and look after 10 rooms ,bookings etc , I'm going to have to decide soon if I'm going back or not , i just can't make this horrible illness out , I was fine then just woke up and wham , it's like my life changed overnight 
  • audrey1020
    audrey1020 JaGuR

    Posted

    Hello... Sorry to hear you havent been feeling well... im fighting battles similar myself with chronic migraines. But the the doctor you went to, was it just a primary doctor or specialist? I had to go see a Otolaryngologists because I was feeling the somewhat the same way like I was constantly on a boat & lost all balance & driving became scary. My primary said it was Vertigo but the specialist ruled it as Meniere's disease which is sort of like vertigo... I was given a hearing test before then meds to help it but that's hit & miss. Some days I was better then others. I also have an autoimmune disorder called Sjrogrens Disease & you mentioned feeling weak & run down that's what made me go to the doctor 5 years ago & that's what showed on a lupus panel test. The fatigue blah feeling is being caused by me being low on vitamin D so you may want to have a doctor check your vitamin D levels. Tons of people suffer from a Vitamin D defecency these days... it's horrible. Hope you get some answers soon & feel better!
    • JaGuR
      JaGuR audrey1020

      Posted

      Yes, just my general practitioner, when he referred me to the ent he did also mention menieres, but thought more likely lab, I keep going back hoping for a silver bullet or for him to rule out anything else.

      Just so long to have to wait to see a specialist but would like answers sooner rather than later.

      Quite scary to feel this way 24/7 and not know what it is or when it is going to end.

      sad

      I feel for anybody going through the same, but if it is any consolation, reading peoples comments on here helps to relieve some of the anxiety know others are feeling the same

    • audrey1020
      audrey1020 JaGuR

      Posted

      I agree the specialist wait is a ridiculous but I ask if they can give me a call if there are any cancelations or I'll call on my own to see if I can get in sooner... it's worked a few times for me. I've been out of work for 5 weeks now trying to pin point my illness which started as mostly dizziness & nausa then the headaches kicked in & won't go away now. I cant drive & do what I need to do. It's like going downhill & falling in a ditch & now I don't know how to get out of this horrible slump. I've had MRI'S & MRA's & next week I have a whole body bone muscle scan hoping they can tell me what as going on. I was refereed to a neurologist... maybe they can help you in your situation? Not sure but we all need to get answers somewhere. But i think a start would be an Otolaryngologist for you... dizziness is said to be an inner ear issue but we are all so intertwined that is could be anything triggering all these horrible life disrupting issues we are having. You are not alone & we all just want answers & to get back to our lives. Wish you the best. Take care.

  • Gilly_flower
    Gilly_flower JaGuR

    Posted

    Hi ,move been unwell with bppv since October , eppley manerver hasn't worked ,I'm very of balance , seeing an audiologist , who has giving me exsersises to do , MRI scan clear , but my worry is the feeling I'm walking on a trampoline , it's horrible , it's like there is no firm ground to stand on , my doctor keeps on about anxiety , but that's not what caused this , the only reason I'm anxious is because of this illness , no one seems to understand as I look fine ,
  • SonicCD
    SonicCD JaGuR

    Posted

    Hello,

    You sound very similar to me back in August-October.

    If your viral symptoms have gone or if you are over the worst and still left with the dizzies, then you will most likely have a vestibular disorder/dysfunction.

    Try and Google some VRT exercises and do 5 sets twice a day. It will be most likely that your specialist will refer you to a physio, so give your self a head start.

  • alvis48886
    alvis48886 JaGuR

    Posted

    Hi Jagur,

    Sounds kinda like me, ive been dizzy now for 6 months, its kinda out of my body, weird feelling, sometimes gets worse like im gona pass out.

    I did everything, checked everything, MRI head, neck, ultrasonography, massages, pearl baths, A LOT of pills, blood test, EEG, went to 4 neurologists, physiotherapist, did eye exercises, vestibular exercises, checked my hearth, everything is good, like what is going on with me, i feel im becoming insane, and just hate this feelling, dr says its anxiety, but im 90% sure its not, because i tried all kinds of anxiety pills, still on them, there is some little bit improvements, but not enough, and now progress stopped, oh and I was in hospital too.

    Like what is going on with us? We are healthy with all tests, but feel like crap.....

    Next week will have my blood test, b12, iron results, i need to check everything, because i dont know what to do now....

    Take care

  • rocksolid
    rocksolid JaGuR

    Posted

    Look up verticle heterphoria which is an eye condition. I also have heard about impacted wisdom teeth cause dizzy problems as well.
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