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Hi I woke up with primary ms may 1 2010.is this common

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jo-ann_cha28796
jo-ann_cha28796

When I wokeup the left side of my body was numb,doctor thoughtI had a stroke. Had a brain scan nothing there, had an MRI lots or lesion,my doctor still did not believe it could happen that fast. Had a spinal taps,had rings in fluid so was told I had primary progessive ms. I was 58 then I will be 63 in december. Is this common 

1 like, 16 replies

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  • judy43125
    judy43125 jo-ann_cha28796

    Posted

    Not sure,I am 51 was diagnosed when I was 45 they say rrms,had 2 flare ups back to back and decided this is not how I will live my life and changed diet drastically and have not had anything since,I am also on Avonex and select vitamins but will not let this beat me
    • martgp
      martgp judy43125

      Posted

      What diet change did you go for. I have chosen a bit from a few different ones ie low saturated fats, low refined sugars, high fruit and veg, and pretty much cutting out most dairy. Still eat meats and upped my fish intake. Interesting to know what others do.
    • jo-ann_cha28796
      jo-ann_cha28796 martgp

      Posted

      I added a cup of aloe vera juice aday seems to be helping. Have stayed the same pretty well aswhen I was first diagnosed. badlegcramps last night
    • judy43125
      judy43125 jo-ann_cha28796

      Posted

      Avonex is a disease modified drug weekly injection,they say it will reduce relapses by 30-40 %
    • jo-ann_cha28796
      jo-ann_cha28796 judy43125

      Posted

      I do not think I can have it because I have orimary m.s. so they say it I do not qualify to get it.

       

  • judy43125
    judy43125 jo-ann_cha28796

    Posted

    Hi, it was a pretty nasty diet ehen I started but it gets easier,I eat no beef or pork,some chicken or turkey but mostly different fish, no dairy quite a raw type diet with nits and seeds.lots of fruit and veggies, I juice every morning and toss on about 1 lb of mixed veggies and fruit and that is my breakfast,I found I was really missing snacks so now I take almonds and soak in lime juice then drain and sprinkle and toss with chilli powder and roast in over at about 150 celsius for a few hrs,toss around as not to burn and when I am craving something I have a few of those
    • martgp
      martgp judy43125

      Posted

      Ok that sounds quite strict...did you find that your symptoms reversed at all?
    • judy43125
      judy43125 martgp

      Posted

      I still have numbness in right foot bit thst is it, nothing since everything else I recovered from, I am active busy MS does not flow me down
  • virginia1950s
    virginia1950s jo-ann_cha28796

    Posted

    Hi Jo-ann, the answer to your question is, yes it is common to have undiagnosed MS for long periods of time. Brain scans are not always effective enough, MRIs are. I do not think you just jumped to progressive ms, usually what happens is that you had relapsing for a long time but did not have any symptoms that caused to you see a doctor until the point that the relapsing turned into progressive.  I had MS likely for 15 years before I was diagnosed, have many lesions but function pretty well. My best advice is to take care of your heath and get into as good physical shape as possible. It is easier to handle if you are lean and mean ! 
    • judy43125
      judy43125 jo-ann_cha28796

      Posted

      A few months ago I was given a nerve block for pain in my leg it has worked awesome ask your dr about it
    • jo-ann_cha28796
      jo-ann_cha28796 judy43125

      Posted

      I hate to get nerve blosks when I onlt get the once or twice a week. I am drinking more green tea,taking cacium and drinking aloe vera juice
  • jo-ann_cha28796
    jo-ann_cha28796

    Posted

     i have two sister- in- laws with m.s. one hase had it for 30 tears and is a wheel chair, the other one was diagnosed after me but is in worse shape. I is nice to be on a disscusion board and not hearall doom and gloom
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