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Hi, my husband has been having ?ms symptoms but he's made to feel like a hypochondriac

Posted , 5 users are following.

sharon19799
sharon19799

my husband started to have severe spasms last year, some of which would throw him to the floor, he was sent for an eeg and although it happened during testing, he was told nothing to worry about its myoclonus. He's had every blood test imaginable but again all negative. Since then his symptoms have continued but now also has problems with his eyesight, he has extreme frequency of urinating and unable to empty his bladder, also his bowels also go into spasm and he produces lots of bile. He falls over almost daily, his memory is terrible and by mid afternoon, he is exhausted. He changed his consultant for a second opinion who was aware that we had changed consultant and didn't even have the medical notes, just a slip of scrap paper to write on, he tested feeling to both sides of my husband and there was a definite difference to his feelings down the left side, he offered an MRI of spine along with a lumber puncture but told him to stop chasing a diagnosis.My husband has just received a letter to say that it's all in his head and caused by depression !! He has now lost all faith in the Nhs and has said he will not ask about it again and just get on with it. I'm really scared, my husband looks terrible and I can actually see the spasms when they happen. Surely this cannot be "put on" ? he needs help but I just don't know what to do. I might add that he did have an MRI of the brain but of course came back negative, his go is also very concerned. Does anyone have any advice please ?

0 likes, 7 replies

7 Replies

  • bic24773
    bic24773 sharon19799

    Posted

    Hi so sorry you're going through this, both be and mum had similar experience. I went through being treat like a hypo for years then got my diagnosis but ive developed a sirt of phobia abkut medical people. Mum onmy git her diagnosis after I went with her she had NRI and evoked potentialsike me. has he had head MRI ? It's a terrible feeling being treat like a hypo. You really will have to go back and push it, saying its not in his imagination if its not MS what is it is the question you ask. Unfortunately fir me I have a new neuro and they've 'lost' my notes so my going through "your new symptoms aren't ns they're Arthritis"/from neuro to Dr " its ms your bloods dint show inflammation ". Don't know if it helps to know others get sane treatment. Contact ms society they may be helpful. Good look.
  • amanda88048
    amanda88048 sharon19799

    Posted

    Hi I'm sorry to hear about your  husband, it is shocking in how he has been treated. You said he had a brain MRI scan, did he have a spinal scan? In February, I went blind in my right eye and lost function in my legs. My Doctor put it down to low iron levels. I was sent to the hospital about my eyesight, nothing! Within 4 weeks I had  enough my husband took me to A&E. They took me immediately, I had a CT scan  nothing, blood tests came back negative. When I closed my eyes I had no balance at all and fell over. They kept me in and done a MRI on my spine & brain, a lumbar puncture, they confirmed  there was elisions in my fluid spine, but nothing in my brain. I got a drip of steroids, kept in for 9 days sent home with they believed it was a virus? 5 months later I had another MRI then 2 months later told 95% MS. Then went to meet another Consultant to be told, they cannot definitely diagnose MS as there is nothing shown in the brain scan? So they are just shooting in the dark. I done my own research into MS and it maybe worth your while too. Google Professor Jeleck and Dr Wahol it may give you some insight into things. I would  force the issue with the hospital, & your Doctor, your husband should not be treated this way you don't have these symptoms for nothing. I am not fully recovered, but I am getting there by changing my whole lifestyle. Don't take NO! For an answer. 
  • tracy35015
    tracy35015 sharon19799

    Posted

    B12 deficiency can mimic MS and cause all sorts of health problems. Was his B12 tested? If so, neurological symptoms are known to occur within the so-called normal range of 200-450 pg/mL (or ng/L). Doctors typically use a cutoff that is way too low, 200 or even less. Has he been taking stomach acid reducing drugs for a long period of time? They are known to cause a B12 deficiency.

    What about other vitamin levels, like D?

    Has he been tested for celiac (gluten sensitivity)? It can also cause a lot of problems.

    It may help to put together a list of his symptoms and the approximate date they started, along with any medications he was taking. Find out if there is any family history of pernicious anemia, Parkinson's, diabetes, or other autoimmune diseases which may help lead to a diagnosis.

  • duncan83338
    duncan83338 sharon19799

    Posted

    Hello Sharon, I have been suffering for a year and a half with neuro symptoms very similar to your husbands, I allready Knew I had MS as I research all my symptoms but I got diagnosed two weeks ago. I also have cerebral vascular disease which does all the mind and memory eating like your husbands, I got CVD from a small stroke I had in my teens. in the beginning, middle of last year I suffered an attack of Pluericy(bad lung infection), it demobalised me for three months, when I got well enough to go back to work. then I was off again with a severe facial palsy on the left side of my face, I was completely deaf in that ear other than Tinnitus(which has been my constant companion since), also my left eye, left side of my mouth and tongue and the skin on my left side of my face was  dead, I still have problems but not so bad. Then just before xmas I was laid out by a full on neurological attack down my left side, I was completly immobilised for three months, then I got well enough to return to work only to be laid off due to the oil crisis, straight afte that I had another wave affecting my left side, arm, leg, face, bladder and bowel dysfunction, depression and a serious anxiety dissorder, to top it off I've just lost my bennefits(ESA) cause I failed a bogus health assement so I have no money to keep me afloat over xmas, bloody government!     My heart goes out to you and your man, all I can say is get another doctor cause it definately sounds like your husband is suffering from some kind of neurological dissorder, do you know you can sue doctors and hostpitals if you dont think you are being treated fairly, everybody has the right to be treated fairly, thats the thing this government has forgotten, you can even sue the government!  Duncan.  Aberdeen. SCO. good luck
    • bic24773
      bic24773 duncan83338

      Posted

      Appeal Duncan but get a 3rd party to help like ms society ir CAB. Thus government is nasty nasty nasty :'(
    • duncan83338
      duncan83338 bic24773

      Posted

      Hi bic24773, I got a cracking letter from my doctor to go with my manditory reconsideration, got a text msg from the DWP saying they will have made a decition by 29/12/15. I allready have CAB helping me with this and also the SNP office in aberdeen are eiger to know the result. I believe that I was infected with MS from the dirty oil yard I was working in when My symptoms first appeared, I asked my doctor what the chances are of my ex-employers being the cause of my death sentence, he said its entirely likely that that could be the case but to clear my intentions with my Neurologist, I have him this friday when I will find out the extent of my problems. so hopefully I wont have to wait for this Tyranical, neanderthal government to grow a sense of fairness to the people of this country.
    • bic24773
      bic24773 duncan83338

      Posted

      Don't see it as a death sentence people rarely die from MS its usually complications. I have a phobia about medical stuff so I doubt my Dr could help me. Re the infection thing, ms isn't infected it's a nerve. Muscle and brain inflammation thing. My mum who died in October had MS very late diagnosis because they don't like to tell you when you have it, my sister was diagnosed Parkinson's but I think it was ms and my other sister has the lesions and symptoms no diagnosis. I do think a car accident, active military service and severe stress can trigger what us already there. Ms can be hereditary. I hope you get sorted. You can live with ms you just have toimit stress and listen to your body when tired.
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