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Hi everyone I was diagnosed early last year but have had symptoms for a good 2 yrs before. I am 33 with a 3 and a half year old son. I try to be positive but it is so hard when I am always in pain and tring to be upbeat is so difficult when I feel drained. My main question is how do I explain to others how I am feeling? As you all know on the outside I look fine but inside it is a nightmare. I dont want to go on all the time about how I feel because I think that will only annoy others and make me feel worse in the process.
If I am limping with pain in my hips then thats great because people can see that somehing is wrong and I dont have to explain or ask for help etc but on the days when I am in agony all over and feel so down and exhausted that I can hardly bring myself to talk I feel that I am alone as people have no idea. I dont want sympathy just understanding. My mum and sisterare very good and I never need to tell them how I am feeling. My husband is very good and tries to understand but I can sense his frustration. He wants to solve things for me but he cant. I would like him to just listen without the need to comment or to back off a little when I am feeling out of it. I have to explain how I feel to him all of the time, and I dont know how to tell him how I feel. I feel bad now moaning about him. thanks for letting me get this off my chest moll :wink:
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