How stupid can I get!

Oh Amycakes, well done!!!!! :roll: :wink: It's so easy to do though isn't it. I suppose that the best thing that can be said is that you have got this far - even at the expense of a few rough days each time!

I think it is this aspect of PMR/GCA and steroids that is the worst - especially for those of us who have had it so \"together\" previously. Suddenly instead of us being on top of things, things just get the better of us and we become submerged in an untried lake of something. A Australian lady over on the other forum was in a senior management post in a massive corporation and has developed GCA in her late 40s if I understand her correctly, which by anyone's standards is young. Now she is severely affected by something to do with it, describes her current post as one \"for broken down old nags\" (she moved at her own choice) and is despairingly searching for an answer. I can manage most things - at my own pace and in my chosen way, but woe betide someone pushing at me. Then it's so uncomfortable mentally I feel like giving up altogether. :roll: There is no way I could compete in today's frantic workplace even though I can still translate as well as I ever did.

It's been commented about the fact so many of us are formerly very active and efficient types and wondered whether this is a type that \"gets\" PMR/GCA. I don't think so - I think we are the ones who rebel and won't accept the caricature of \"old\" that we don't accept as being OK. I believe there are loads of people out there with it but they accept the limitations when it is relatively mild and, like our parents and grandparents, moan about their lumbago or whatever. Our generation is going to be the one that puts it on the medical map - we are being stopped from working by it and the retirement age is going up. Suddenly the population of PMR and GCA sufferers will rise and they'll think it is increasing - no, just being recognised for what it is.

Hope the aches go away soon :D

Eileen

Just left the other forum and looked in here.

Amycakes what would I give for a clear head. When I wake I'd like to lift off my head and leave it on the table and collect it after lunch.

We have some rather strange bread because yesterday I must have measured the water wrongly and had to add lots more flour to get it to a manageable state so, of course, there was far too much for my tins which means it all rose up over the top and the slices have \"ears\" that won't go in the toaster! I've only been making bread for 45 years. Do you think there is hope. As you say, you have to try to laugh.

Best wishes and mind how you count those pills!! Betty

Oh thank you ladies for your support & humour.

How glad I am that I am not alone in this mess of a life I have at the mo'

You have to laugh though, as my husband says \"what have you done now? \"

I dont know you tell me!

I drop things ,my fingers wont work, I say things all wrong, & I say \"I know what I mean\" you.ll have to catch up!

I loved the expression leave my head on the table & pick it up after, well done,Betty E couldnt agree more!

Eileen , you hit it right on the head, if I had one that works!!

Thanks to you , I can now laugh with my tears.

keep smiling .

Cheers Amycakes.

Oh, Amycakes, every morning I would like to take my head off and dangle it out the window, along with my feet and several other body parts. We all should have come with detachable bits and pieces so that we could clear them all out come morning!

My husband has taken to saying in a resigned tone 'what have you broken now' whenever he hears the latest crash, bang or wallop coming from my direction. Yesterday I told him I was going to get a new 'swarpet keeper'!

I've had to go out and buy new tumblers recently, we were down to our last one. A little over a year ago I was giving them to charity shops before we moved house, now I am buying them back. Am seriously thinking of getting some melamine ones for me to use.

Nefret/Catie

You all need to answer Nona's query on the other forum (I know Catie has). I'm increasingly of the conviction that the brain fog bit isn't steroids - it's this damn disease! But do the docs ask about it? No - if you haven't got a headache and visual symptoms they aren't interested. But it gets to parts other diseases don't get to - maybe a beer would help?????? :roll: :wink:

Eileen

Hi Amycakes

yes we have all done daft things I took 4x5 instead of 4x1 a while back and was very upset at the time !!

I am also great at breaking things We had lots of cheap wine glasses I bought in France for parties Not any more !! I get through them very fast now ! Yesterday morning I spilt my washing powder liquid ? over the floor and it took ages to clean up and I have a very fragrant floor ! Lucky Ive got quarry tiles !

I do find some days i twist my words and not others ? I am feeling better on 5 and not even thinking about reducing at present

Best wishes

Mrs G

Oh Nefret /Catie, I LOVE swarpet keeper!!

Amycakes

It was pre-diagnosis that I broke things. I still have glasses that were engagement or wedding presents (pushing 40 years), plus the ubiquitous Esso wine glasses (remember them? :roll: ) - just rather fewer of them. And of course it was the nice or valued things I knocked over. Nona talked about perception - and it was then I realised that many of the breaks and falls weren't only bad muscular control but actually not getting the distance quite right.

Eileen

Hi All,

Had another bad day, so have decided to take 20mg today & 19mg tomorrow & keep doing alternate days & see if that helps.

Fatigue back again , but really think this is withdrawal symptoms not P.M.R. rearing its ugly head.

Hope you are all having a good day.

Cheers Amycakes.

Cant find Nona's query, am I looking at the right forum though.Help ,can I have the website address please.

Curiousity getting the better of me.

Better day yesterday on 20mg, today on 19mg , we shall see.

Cheers Amycakes.

Amycakes - it's over on the new forum linked to the pmr gca northeast support site. I think there is a sticky at the top of this PMR forum giving a link (sorry should have checked before starting to reply) but if I put a link here it will probably disappear for moderating. If you google the support site you will get a link to the support site and then there is a link to the forum from the homepage. Because of spammers :roll: they've had to make registration subject to approval but it shouldn't take long to get going on there. It's a much more active and informal forum than this one - lots of laughs as well as serious stuff.

Look forward to seeing you over there too!

Eileen

And once you get to the other forum, it is under \"What is GCA?\" and then something like \"strange GCA symptoms\" - there's a selection of posts on that thread but Nona started it with her query about the sort of things we experienced with GCA because her doctors didn't think some of her symptoms were typical of GCA and there must be something else going on. Since most of us have some of them maybe they should think again - I have some and am supposed only to have PMR :roll:

Eileen

Had test results back today of my bloods, all normal, for a full blood count, my E.S.R. was 15, & C.R.P. below 2.lowest E.S.R. for along time.

Cheers Amycakes.

That's brilliant Amycakes :D . Hope you're feeling as well as your results :D I remember when I was first being diagnosed my Doctor reading my ESR and CRP results and saying 'looks as though there's nothing wrong with you' - if only.

Have a good weekend,

Love from Lizzie xxx

Aycakes - what wonderful news! I hope you feel much better but do play safe and continue to take it easy - it's so easy to overdo things when we start to feel better.

(MrsO)