Hyperthyroid back again and I'm starting to panic

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi all,

Could do with some advice from anyone else who has experience with an overactive thyroid gland as I have been recently diagnosed and I'm starting to panic about it.

I first had high thyroid levels after the birth of my 2nd child 7 years ago. At the time, I never took any medication as I was sure it would all settle down once my body got back to normal after pregnancy etc. and it did just that! For 7 years I was tested regularly and my thyroid levels were always normal, even when I felt a bit thyroidy.

Just recently though, I began getting palpitations at night and had blood tests and an ECG to try and investigate. ECG was normal but doc said thyroid levels were high again and has referred me to specialist.

In the past two years I have dropped from 11.5 stone to just under 10 stone. But my thyroid levels have always been fine until now so I didn't think hyperthyroid was causing the weightloss. I put it down to finally withdrawing from venlafaxine which is how I gained the weight in the first place. A healthy weight for me is about 10.5 stone - I'm 5'10".

I'm ranting on. I guess I just want to hear some others experiences with hyperthyroid. Can it just go away by itself again without having to take medication? If I take meds to slow it down , will my metabolism stop and I put loads of weight on? Does anyone else's symptoms get really bad at night? I get racing heart / mind, can't sleep, panicky, lump in throat. But only at night. Maybe cos I'm on my own. I'm a single mum to two boys and I worry. A lot!

Please can anyone help me get to grips with this? Thanks.

1 like, 9 replies

Report

9 Replies

  • Posted

    There are times when natural remedies or letting nature take its course are ok but I don't think this is one of them. Why are you so against treatment. Do you want to feel better as soon possible. If you moderate what you eat you won't put on weight as you need to get your levels normal again. Take the meds and discuss further treatment.
    Report
    • Posted

      Thanks sue,

      I'm not against medication as such it's just I've heard a lot of negative stuff about the meds for hyperthyroid. Piling on 2 stone and their thyroid going under active instead. I guess I just like to feel in control. I suffer with severe anxiety and depression also which makes me think irrationally a lot of the time. Cos I'm tall, I like to stay slim. When I've been bigger I've just felt like a massive giant person and hated it. I know it sounds stupid but it's a real issue I have

      Report
  • Posted

    I was diagnosed in January. Im a Petite person always weighting 46-47kg's. When i was diagnosed i had Heart Palpitations, Hand Tremors, Anixety, Falling over all the time, Dizziness, could not work properly at my job. By the time i went to the doctor i was 40.2kg's, It looked awful. Within 2 days my doctor had me blood tested, Radioactive Idoine tested and Medicated. I was feeling so much better within 2 weeks. Since then they have been trying to get my medication stablised. My eye are a bit puffy, but not to bad. Have had no Palpitations. My weight has gone up to 48kgs. I really dont want to put on any more weight. Ive started walking and light jogging on treadmill, watching what i eat. Haunting the internet for natural help. My latest is, im going to have a vitamin and mineral count done next week and see what my immune system is lacking. I feel that this is where problem lays.
    Report
  • Posted

    Well I've had my hyper thyroid come back twice now and I'm now slightly under active but only 56kilos. Diet plays a big part. The anxiety and depression are related to the thyroid. Get it treated asap. I never listen to negative reports as its what works for you that counts. Make sure you eliminate aspartame from your diet and eat healthy. You will soon feel better but most important to take the meds.
    Report
    • Posted

      Thanks to both of you for your responses. It really is helping me think a bit more rationally. I'm hoping that I'll be started on a low dose of meds first cos my body seems to be really sensitive to medication. I do eat healthy now and exercise regularly but due to me being underweight at the moment, I've actually been trying to put some weight on to look healthier. I guess my current thyroid state is not allowing much progress there! I just don't want to balloon rapidly with medication, but I guess that's me panicking and not what will actually happen hopefully!
      Report
  • Posted

    I too am very sensitive to all medication. I absolutely panicked when i knew i had to take medication. Im on 25mg Carbimazole and 2 beta blockers a day. But its working, im feeling ok. Now i just want to find what my body is lacking and feed it the vitamins and minerals that it needs. I also am very aware of my appearance like yourself. So im trying very hard to make sure it doesnt get out of control.
    Report
  • Posted

    Usually when they check the thyroid, doctors run a TSH test, which if low means the thyroid level is high and if high means the thyroid level is low.  Sometimes they also run a Free T4 test and sometimes other tests including ones for autoimmune attacks on the thyroid.  If you can get a copy of the test results and post them, along with the values for the normal range, it might be helpful.

    Usually a person does not become hyperthyroid and stay that way very long unless there is an auto-immune cause, and that is what Graves' Disease means.

    Some people gain weight and some people lose weight even though the only known trigger is hyperthyroidism.  The same with hypothyroidism.  But it is usually a weight loss with hyper and a weight gain with hypo.  It might be obvious that anti-thyroid drugs would cause a weight gain.  They do.  In the UK the ATD of choice is usually Carbimazole [CBM], while here in the US it is Methimazole [MMI] which is much like CBM, only the CBM is a precurser to MMI.  Another, older drug is PTU which is still used if a woman is intending on getting pregnant.

    Usually it all hinges on the amount of the drug you are taking.  My 2nd Endocrinologist had the policy of starting out low and building from there as needed, so I was given 5mg MMI at first, then 10, then 12.5.  I gained weight, but slowly. My thyroid levels had dropped into the normal range, but my TSH level was still near 0.0 until conditions made it such that the Endo was willing to decrease my dose by 2.5mg per week.  Then my TSH zoomed up into the normal range.

    It is helpful to take some anti thyoid drug for a while, but not necessary if it all rights itself and stays that way when off the drug.  I am off it now, and just being monitored about quarterly.

    I wish you the best.

    Report
  • Posted

    I don't think this is a case of will go away by itself. Get medicated and stabilised then you can gradually withdraw from meds to see if the thyroid will cope on its own again. I was diagnosed with hyperactive thyroid almost two years ago after trying to ignore the symptoms. Mine were just like yours at night especially.. Thyroid eye disease followed. Starting with 30 mg of carbimazole, I was able to reduce this to 5 mg within 7 months and then stayed on 5 mg for 14 months whilst I had treatment for my eyes. I had six weekly blood tests which my GP and Endocrinologist arranged. I am just off the medication and am hoping my thyroid can cope on its own now Iy has been a long old haul but I did feel better myself  within ftwo months of diagnosis. (apart from my eyes)

    It is quite an unpleasant condition which I found difficult to cope with. Get advioce fromn the thyroid foundation and see if there are any support groups in your area. There are lots of people on the net who will give advice and chat. Oh and I lost a lot of weight before diagnosis and gradually put it back on over the last eighteen months. I do watch what I eat now as I don't want to get too heavy.

    Get your medication and you will soon feel better.

    Report
  • Posted

    I have been on carbimazol for 12 months. I changed my diet. Initially off gluten, sugar and dairy. Not so struck now but will be gluten free permanently. Took many supplements . Distressing is important, exercise and mediate. Try and relax.

    I was never over weight but am 3/4 of a stone lighter now than when diagnosed. I feel so much better and happier. I am only on 1.25 msg every 2 days and hoping for remission one day in the future. Good luck.

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up