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Hi everyone, I'm new here. Just wanted some advice. I guess I will start at the beginning
Last summer I started getting symptoms (at the time were not obvious to me), such as rapid heart beat and exhaustion. It would come and go. I remember mentioning to people that I thought my heart was beating abnormally fast at times. I didn't think anything of it. Around this same time, I was having eye issues. My right eyelid would swell up for no reason. I was told I had a stye, and took meds for a few weeks, trashed any makeup I used, etc. Then a month or so later, my eyelid was swollen again. I went to the eye doctor and he had said that I had blocked glands, and he drained it for me. Fast forward a few months to October. All of a sudden, I have a bulge in my neck and serious pain. I assumed it had to do with my job and maybe I injured my neck. I went to the chiropractor and she said my thyroid was swollen and ordered an ultrasound. I got that a few days later. They found 5 cysts on my thyroid. I then went for blood work and my levels were very high, indicating an overactive thyroid. My doctor then referred me to an endocrinologist but wasn't able to see him for about two weeks. During those two weeks, I wasn't doing well. My heart rate was about 150 while resting, I couldn't sleep, would sweat at night, very shakey during the day, headaches that I never experienced in my life, and was incredibly tired. When I finally got to the endo, he confirmed I had hyperthyroidism as well as Graves. He seemed surprised that my eyes weren't bulging, and said they looked good. He prescribed methimazole and propranolol and I took those for three months until I saw him again (got my blood taken again within two months). During those three months on the meds, everything took a turn. My thyroid shrunk back down, all of those symptoms went away. The only thing that bothered me was the fact that I was so tired and exhausted all of the time. I had zero energy. I just saw the endo again about two weeks ago to review the new blood work and check me out. Now, my levels were in the opposite direction. Since my symptoms had gone away, he told me to wean off of the propranolol, which I did. He also advised to stop the methimazole for two weeks, and then start back up again after those two weeks at a lower dosage. Since I've stopped the meds almost two weeks ago, I have been feeling GREAT. I haven't fellt this good since last spring. I techincally am supposed to start back on the methimazole in two days. I really don't want to as I am feeling so good without the meds. I know it's only been a short time, but it's a gut feeling I have. I was actually able to stay awake the past few nights and get work done. My doctor is hard to get a hold of (I feel like they all are), but I'm going to call again today and see if this is normal and if he thinks maybe I should delay taking the methimazole again. Does anyone have experience with this scenario? Is it bad to not want to restart the meds? I just want to feel normal again. I guess I'm wondering if it's possible to go through all of this and have it suddenly go away. Thanks in advance for any replies
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