Posted , 5 users are following.
I have been under active for 24yrs taking 50mg of levothyroxine went to docs today to be told to stop taking Levi has now hyper. Has this happened to anyone else
Thankyou
0 likes, 9 replies
Posted , 5 users are following.
I have been under active for 24yrs taking 50mg of levothyroxine went to docs today to be told to stop taking Levi has now hyper. Has this happened to anyone else
Thankyou
0 likes, 9 replies
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alasdair80006 linda1958
Posted
If you feel fine you are fine. I did I was.
linda187 linda1958
Posted
I have seen this happen to patients who have a diagnosis of Hashimoto's thyroiditis. These patients swing back on forth very rapidly because prescribed medicines are too strong for their problem (either levothyroxine for hypo or Methimazole for hyper). With Hashimoto's it is the actual thyroid gland that is being attacked by antibodies and with Graves disease it is the thyroid stimulating hormone receptors in the Anterior Pituitary Gland that is being attacked. Perhaps the sensitivity is because in Hashimoto's it is the thyroid gland itself that is being attacked. There was a lady on this Board who had a problem with the swings and she got control of her disease when she was hyper using a very short period of Methimazole (or Carbimazole if you live in England) like one week in decreasing dosages and then taking 3,000 to4,000 of Regular L-Carnitine daily thereafter along with other supplements. The Carnitine worked better at regulating her thyroid hormones. She adjusted her treatment based on taking her morning temperature. I can send you her emails and story if you would like but first I would ask your docs to confirm your diagnosis. You can have Hashimoto's alone, Graves alone or a combination of both. If you have Hashimoto's at all, either alone or with Graves, the Regular L-Carnitine is necessary to control the swings. Also vitamin D.
linda1958 linda187
Posted
Thankyou for the reply. It is very frustrating because I have always been under active . I don't feel any different or have any symptoms of graves . My GP just wants me to stop my thyroxine as blood results came back as undetectable. And to repeat the test in 6 wks. It is worrying me stopping the medication so quickly after taking it for so long and also don't want to put the weight on that I have struggled to lose .
hypnocool linda187
Posted
How can a doctor tell if I have combination of both. I asked endo to test if i have hashi, she said I dont because iam hyper/Graves. its on the other side of spectrum. She scared me because she said if i have hashi she will give me hormones. In my head i was thinking if i am hyper and hashi at the same time. then i might become more hyper when she puts me on hormone. So i just brushed it off...I'll just deal with this with methimazole and Reg-L-CArnitine which is working great for me.
linda187 hypnocool
Posted
Hashi's is usually associated with hypo but sometimes it also begins as hyper. The lady with Hashi's who posted to the Board was hyper and was told it was Hashi's that just hadn't burned itself out yet. So as I said, you can have Graves alone, Hashi's alone or a combination of both and the way doctors diagnose it is the anti-TPO blood test which measures the degree of inflammation (can be high in both Graves and Hashi's but is usually quite elevated with Hashi's), TRAb or TBII blood test for Graves antibodies and TGAb blood test for Hashi's antibodies. With Hashi's as I mentioned what I have seen is that it is way more sensitive to both antithyroid meds, i.e. Methimazole and sends a person from hyper to hypo very quickly or to thyroid hormone replacement for hypo as it does just the opposite - sends the person from hypo to hyper because of the greater sensitivity of the gland.
janice1959 linda1958
Posted
linda187 janice1959
Posted
janice1959 linda187
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linda187 janice1959
Posted
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