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I can't take any more pain, is it FYBROMYAGIA or hodgkins

Posted , 2 users are following.

Mrs_doodles
Mrs_doodles

I'm sorry to sound so desperate but I am I've been told I have c/f and FYBROMYAGIA  but ..... I have a lump on the back of my neck like notra dame I have constant night sweats where I wake up soked I'm in so much pain in my fybo sights but not in my lumpy ones ???? My neck is huge, my shoulders are really painfully knawing me but not to touch I had a bunged up sines for a MOUNTH or more a yucky cough but in my throught not my chest .... The last four days I've had this pain between my rib an hip on the left side of my body and I'm at the end of my tether .... Please help ... My meds are gabapentine 3x3times a day ..300 mg. tablets 

tramadol.... 2x3 times a day..  50 mg  tablets 

duloxetine  2 x1 times a day ... 30 mg tablets

topiramate 2x2 times a day...... 25 mg tablets

pramipexole 3 x 1 times a day .... 88 micrograms tablets

oramorph 2x10mg.....up to four times a day  for pain

i also have restless leg syndrome ,ibs, depression ,a rash on the trunk of my body ,I just don't know if I should ask my doc about hodgkins as I had to keep on for nearly 12mounths before they said I had FYBROMYAGIA and that was only cause I insisted on going to bath for a diagnosis 

PLEASE ANYONE I NEEEEEED SOME ADVICE 

PLEASE PLLLLLLEEEEEAASSEEEE 

 

1 like, 3 replies

3 Replies

  • Xxxxxtttttttttt
    Xxxxxtttttttttt Mrs_doodles

    Posted

    I understand your desperation. I am in the same place now. The pain is so severe I just cry constantly. I dont have a lump on my neck, but I do have restless legs, shoulder pain, wrist pain etc, but the worst for me is constant hip pain! Its so bad I cant even sleep without waking in agony throughout the night. I dread going to sleep. I sweat really bad theough the night too, my pillow is saturated from my hair and its a waste of time going go the doctors. They have just told me there is nothing they can do and I have to learn to live with it, but its getting worse and worse, and I cant live with it when I am stuck sitting up in bed all day. I have to try to cook a meal each night or the kids would just eat crap. I used to love cooking but it cripples me now. The knife keeps slipping when I am chopping, my hands seize up and my back aches terrible. The sweat pours from my face when I wash dishes, into my eyes and mouth, its quite unbelievable!  I take tramadol, co-codamol, oramorph vit D lansoprasole, cetirizine, fenofibrate and atorvastatin. My cholesterol was the highest my gp had ever seen and I had no idea why and he thought I was a heavy drinker cos my triglycerides  were over ten times higher than they should be. What is topiramate and pramipezole for? I havent heard of them.

    as for advice, you need to go demanding! And do not take no for an answer! That is what I am about ti do, couldnt get a blinkin appointment today though, cos I am starting to wonder about my diagnosis. I wonder about PMR as my symptoms seem to be exact, it was like I was reading my symptoms when I read fhe list, so I am gonna ask again. It seems you have to make a pest of yourself before they start to take you seriously. Good luck x

    • Mrs_doodles
      Mrs_doodles Xxxxxtttttttttt

      Posted

      Topi rampage is for migraines and epilepsy .... It's a precortion now I've been ok for a year or so now but will have these life long apparently ... The pramipezole are for Parkinson's, but are highly recommend for bad restless leg syndrome ... What do u mean p.m.r ???  So have y looked up hodgkins .. WHAT DO U THINK
  • active74513
    active74513 Mrs_doodles

    Posted

    Gosh!! YOu are helping everydoby who reases your pelese because we all thought hthere was no one in as much trouble as we --or le me speak only for myself--I thought that.  A little blue sky-- A tree branch near the window--a bird flyin gin the sky--a friend wo smiles you  still have these vibant moments You know if they tried to donstruct something --like a robot for exmaple--that could do what your right hand can do, it would have to be fourteen sotiries high.  Does that help a t all?
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