I feel that my doctor has not given me any information with regards to my having fibroids

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Been back and forwards with bad back finally after ultra sound said I have multiple fibords and I have an appointment to at hospital but no till April . I am just tired all the time 

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  • Posted

    You can change Drs and do your research about all the options. The information you left was limited. Do they want you to have a hysterectomy?
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    • Posted

      Yes he said I need to have an hysterectomy and referred me to a gynecologist which is on the 16 of April. I am not sure if this is to discuss it or to decide if I need one. I am anemic and very tired all the time. When I asked how may I had he just said multiple with two larger ones but I don't know how big they are.

           

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    • Posted

      Ok well now that you have been referred to a ob they should know to give you and ultrasound and an MRI. I was so low I had to have a blood transfusion I was at 4 and now after two months I am at 13. I was instructed to get a hysterectomy by ob and I researched embolization on my own after seeing ob, but radiologist drs can also give MRIs. Yes find out the size then you can decide on your options. Mine were 9cm and over 100 smaller ones growing. I don't feel women are given choices  I still take organic black strap molasses for iron  with vitamin c helps this absorb my ob told me this. I took a pill form as well.  

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  • Posted

    Hi Ruth, I find GPs do not know much as they are not specialists. They have referred you to those who claim to specialise - the gynaecologists. Your ultra sound report will be looked at and your symptoms reviewed. it will not be considered urgent. Hopefully when seen you can find out more about your options. Please note that fibroids does NOT equal hysterectomy. They will throw that around if you have many symptoms. I have fibroids - many , but I am now getting on with my life. It's good to do your research. I asked for a copy of ultrasound report and was given. Not everyone wants to see all the medical terminology. The consultant said the report was trying to paint a more worrying picture than necessary, all because they could not be sure what they were seeing was fibroid s and not pathology. An MRI is often needed to give a clearer picture. If you have any questions this is a good place to share along with medical advice of course. Good luck

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  • Posted

    Hello Ruth, I find it hard to believe a GP is saying you need a hysterectomy as they are not specialists. Perhaps they just do not know about other forms of treatment that are now available. How close you are to the menopause is a factor. There are medications that help stop the bleeding and now Esmya which can help shrink them for many and also reduce / stop bleeding whilst on them. Where the fibroids are and how large will be a factor to consider.  

    Please do not think you have no choice and that the Gynaecologist makes the decision. You do ultimately.  

    Women do have a choice and you must realise it is YOUR body and you do not need to have anything done that you are not happy with. Come away and think about what they recommend and do your research. If I followed the Consultant's advice I would have had a hysterectomy when I did not need one. I researched Eysma, took them and they helped. I now do not need any treatment and am getting on with my life. I know I still have many intramural ones, and a larger subserosal but because I had just the submucosal one removed it reduced my periods back to how they were. The submucosal ones affect your periods and sometimes they can be removed by hysteroscopy if under a certain size. Lots of factors to consider.  Good luck 

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    • Posted

      Hi there! I do not know if you've heard about it; I  just read on this forum that they issued an official warning in the UK about Eysma recently, that it may be causing liver damage... Just wanted to bring it to you ladies'  attention smile...

      I used it for 1 cure cycle myself as well.

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  • Posted

    Hi Ruth,

    That sounds miserable! Hope you are taking good care of yourself in the circumstances : ) 

    I had multiple fibroids (approx 8) and some were quite large (8cm and 5cm) and I found there was so much different and conflicting information on what to do about them. In the end, it's your choice and it will depend on lots of things including your symptoms, how much they affect you, your age, whether you want to have children etc. Make sure that the hospital gives you a list of all the possible options and pros and cons of each rather than just pushing one option on you.

    Some people find that the pills/injections that are a temporary solution give them the breathing space to make their decision.

    I chose uterine embolisation rather than hysterectomy that was first suggested - partly because I didn't want the recovery time of hysterectomy but also because my symptoms weren't so bad (bulging/bloating and heavy periods). So far, so good. While I was waiting for the procedure I also started taking a few supplements (like green tea) and did castor oil packs which helped the bloating (I think the fibroids affected my digestion).

    Good luck with it all!

     

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  • Posted

    I have been 8 years going to doctor for pain thought I had fibromyalgia.  Now I've been told I have a very large fibroid on my right ovary.  Years of lower back pain, sciatic,right hip pain, now right side, like a kidney infection.  Will see my Dr. Monday about most recent ultra sound.

     

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