i got brain damage from electroconvulsive therapy.
Posted , 86 users are following.
In 2005 I was given 22 lots of electroconvulsive therapy. It left me with brain damage that means I will never work again. I was lucky because I got support from a neuropsychologist who allowed me to understand and come to terms with my problems. ECT can be used to great effect. However some people like myself end up severely and permanently affected. I want to use this place to link up with those like myself. So that we can support each other. I don't say ect shouldn't be used. But people thinking of it should understand what can happen. The Information given about ECT side effects doesn't go into details, they talk about memory problems. Actually it affects far more than that. It causes cognitive impairment. 10 years on I need 12 hours of home help a week to help me care for my 3 kids. I tire very easily and some days I am able and feel intelligent. Other days if I have pushed myself and not been able to have a midday nap I struggle to do the most basic of tasks. Some days I'm not well enough to drive at all. Other days I will drive short distances. I was a doctor and well never work again.
Please let me know if you have had similar problems. Or if your thinking about ECT please make sure that you understand what could happen to you. It could mean permanent I'll health on top of your existing problems.I am no longer depressed. It wasn't stopped by the ECT but by psychological input to support me out of my coercively abusive marriage.
16 likes, 269 replies
julietexas sue_cunliffe1
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krista_44101 julietexas
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I am so sorry to hear this happened to you as well. 😞
julietexas krista_44101
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Hi, it's nice to know that I'm not alone. I get frustrated when doctors tell me that ECT does not cause long term issues like this. Umm, yes it does, it happened to me and others I have read about. I'm looking into getting into a program that rehabs people with traumatic brain injuries (Memorial Hermann TIRR in Houston). Maybe there is some place near you that does this also? Have you tried seeing a neuropsychologist? They may be able to help.
elizabeth_24009 sue_cunliffe1
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Grasp4 sue_cunliffe1
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I came here initially because I have felt keenly a cognitive degrade immediately following E.C.T. and found reasoned, direct evidence that others have shared the same or similar experience.
A (hopefully) simple question: Have youre cognitive a reasoning skills continued to improve?
merronda75175 sue_cunliffe1
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Lumpkingemini sue_cunliffe1
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UtopianHero sue_cunliffe1
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Hi. I know this is a three year old discussion, but I'm 17 and had 12 treatments, and haven't felt the same since. This unending...FEELING and everything just seems so wrong. On top of that my brain barely functions, I can't find enjoyment or any emotion at all from anything, and I'm so fatigued 24/7, but it's better in the morning and worse in the evening. Do you think that I might have received brain damage as well?
julie9596 UtopianHero
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I can't believe a doctor or parent would allow this on someone so young. Can you tell if your cognitive, learning ability is still good? Did you loose memory or can't remember? I was going to start a new Ect thread. I hope ect helped you in some way. Please feel free to message me here or privately. I'm in my 50's. Almost a year since a treatment. I've lost quite a few memories. My cognitive was bad, but doing some things to try and improve it.
Stress, in my case , definitely increases my issues.
Take care
Julie
mindy45479 sue_cunliffe1
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Sue,
Are u still on this forum? After 17 yrs since ECT, seems my brain & function just continues to go downhill. It was so relieving to find ur discussion thread & I feel a little more hopeful seeing that perhaps that there are others that can confirm that I'm not going crazy. Do u know of any groups or resources in the USA? I'm just beginning my journey of trying to get this diagnosed. Every health care professional I mention my concern & issues with just undermines me & minimalizes it. Makes me think I'm going crazy. What is even more unbelievable is that after I underwent a 5 hour back surgery (being put under), I feel like I've lost so much more brain function & my awareness of "time". I don't know how else to explain it, but I get lost in my time, get so little done bc I'm beyond easily distracted, can't plan worth anything, and struggle to be on time for EVERYTHING. This is the part that is so strange for me to explain to anyone. I've p****d so many people off, had to quit my career as a school counselor & can barely work helping in a local shop. I come across as incompetent, unmotivated & forgetful. Luckily I have a few friends who see my issues, especially the memory issues and are patient in recalling info for me when I'm completely unaware. Ugh! I really want to try my hand at getting to a neuropsychologist as U mentioned. Just not sure if the health professionals I try to deal with wil look at this & truly try to help me. Any info u can share about ur journey thru diagnosis would be enlightening. Thank u for putting urself out there & sharing ur story.
julie9596 mindy45479
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I'd be interested in support groups if you find any
marys1521 sue_cunliffe1
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I am so glad that I found your post. I had ECT in the mid '90's and it ruined my life. I was a really good teacher. I had to give it up due to memory problems. Sometimes now I try to substitute. I feel like a failure when I do. I was a specialist teaching academically gifted children. Now when I substitute I can barely figure out third grade math. It does not help that now our schools have done away with teacher manuals so I can not even peep to see how a problem is supposed to be solved. I have noticed that over the past few years I am now able to remember a sequence of numbers. I am unable to do simple tasks such as put papers together in order and staple them together. Things that took me only a few minutes now take hours and I discover I have made many errors. I hate feeling dumb and stupid all of the time. I was so smart! Most things I read state that ECT causes no long term memory problems. That is a joke. I went to Disney a World one year and went again the next year. I'd say something about I had never seen something before and my husband would say, "We saw that last year." I had absolutely no memory of it or for that matter, the entire trip. My son was young when I had ECT done. I basically have no memory of his childhood. I think I have learned to fake that rather well. When people say, "Do you remember...." and I assure them I do. I actually have no memory of his childhood.
I hate that I ever agreed to ECT.
I could never encourage anyone to do it.
mindy45479 marys1521
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muddledmind sue_cunliffe1
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I recently had 4 ECT treatments for treatment resistant depression. I had memory issues before having the treatments, but everything has gotten so much worse. Reading through some of these responses, I feel like so many people have written what I feel but have been unable to put into words. I feel like I have no mind. I've forgotten so many things. I just don't remember them at all. I'm unorganized. I'm a stay at home mom to 3 kids and feel like I can't do basic things like get them to where they need to be without a lot of planning, multiple alarms, etc. I'm exhausted 24/7 and just feel confused and generally worse than I did before the treatments. I stopped going after the 4th one because I didn't notice any positive effects with my depression, just continued issues with everything else. I fear I've made yet another mistake and this makes me feel even more suicidal.
Patient muddledmind
Posted
Hi muddledmind
We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.
Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.
If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.
Kindest regards
Patient